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Just Needs: parenting children with disabilities
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Just Needs: parenting children with disabilities
Author: Exceptional Lives
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© 2024 Just Needs: parenting children with disabilities
Description
Some people think of disabilities as "special needs." But as parents of children with disabilities, we know our kids just have needs... like everyone else. Settle in with our podcast for real talk about advocacy, friendships, developmental delays, evaluations, IEPs, sensory meltdowns, autism, and all the ups and downs that come with this gig. We don’t have all the answers, but we promise to try to figure it out with you. Join us.
61 Episodes
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This week, Christina chats with Dr. Nilong Vyas of Sleepless in NOLA, on the importance of sleep in early childhood. They’ll answer questions like, “Why is sleep important?” and “My child is a terrible sleeper. Is it me or something else?” Listen along for helpful information and tips and tricks around sleep. Resources mentioned in this episodeWhat is a sleep consultant and how do they help families?Sleep Disorders in ChildrenAutism Awareness & SleepMelatonin for Kids: A Guide for Pa...
Nothing’s sure but… well, you know the end of that sentence. If your family includes a child or adult with a disability, here are 5 important things to know before you file your taxes in 2022.Resources mentioned in this episode5 Things to Know Before Filing Taxes for People with DisabilitiesABLE (Achieving a Better Life Experience) AccountsSpecial Needs Alliance: Attorneys for Special Needs PlanningTax Help for People with DisabilitiesLiving and Working with Disabilities (IRS) Volunteer ...
Flying with kids with disabilities can be stressful and overwhelming. This week’s podcast episode has 5 tips to make the trip easier for you and your child.Resources mentioned in this episodeBetter parenting using self-regulationWhat is self-regulation and how can it help me be a better parent?¿Qué es la autorregulación y cómo puede ayudarme a ser un mejor padre?Co-regulation: Your secret tool for managing meltdownsHow can co-regulation help my child’s behavior? Strategies for parenting child...
In this bonus episode, Christina discusses doing a pediatric sleep study with her son and his sensory needs. Resources mentioned in this episodeThe importance of sleep in early childhood with Dr. Nilong VyasSleepless in NOLAOur Lady of the Lake Sleep MedicineWhere to find Exceptional LivesFacebookInstagramTikTokLinkedIn
This week, Christina chats with Dr. Nilong Vyas of Sleepless in NOLA, on the importance of sleep in early childhood. They’ll answer questions like, “Why is sleep important?” and “My child is a terrible sleeper. Is it me or something else?” Listen along for helpful information and tips and tricks around sleep. Resources mentioned in this episodeWhat is a sleep consultant and how do they help families?Sleep Disorders in ChildrenAutism Awareness & SleepMelatonin for Kids: A Guide for Pa...
What do you do if you just found out your child has medically complex needs? Do you know how to be a great health care advocate for your complex kid? Christina gets helpful information and insight from Julia Roberts, parent and long-time advocate, in this week's episode. Resources mentioned in this episodeJulia RobertsChildren with Medical ComplexityHealth Insurance for a Child With Disabilities: Easily Navigate Coverage and ServicesHow to get medical insurance for a child with a disabil...
Speech Apraxia vs Autism: Are they related? If a child is speech delayed what can you do? Christina gets helpful information and insight from Kacy Woodson, a speech-language pathologist, in this week's episode. Resources mentioned in this episodeWho Are Speech-Language Pathologists, and What Do They Do?Childhood Apraxia of SpeechIs my child different? Six steps to assessing your child’s development.Understanding child development milestonesCDC’s Developmental MilestonesIs My Child Develo...
Mr. Raymond A. Jetson says, “... If our children are going to feel present and valued and able to be the best version of themselves in the world, we have to be intentional about impacting the world in a way that creates space for that to happen.” In this week’s episode, Christina gets practical advice on how to build community for children with disabilities.Resources mentioned in this episodeMeet Raymond A. JetsonBuilding a Village of Support with Raymond A. Jetson (webinar)Children with disa...
In this week’s episode, Christina gets back-to-school tips from Julie McIsaac, Learning and Mental Health Consultant. Get some real-life tips to support your child and their teacher as we head back to school.Resources mentioned in this episodeMeet Julie McIsaac, Ph.D.Introduce your child with F-Words; it’s not what you think (podcast)How Can I Prepare for My Child’s Transition into School-based Services at Age 3?Is your child having behavior problems at school? Here’s how to helpFellow Parent...
In this week’s episode, Christina talks with Dayna Abraham, bestselling author of Calm the Chaos: A Fail-Proof Roadmap for Parenting Even the Most Challenging Kids. They discuss supporting neurodivergent kids at home in a realistic and shame-free way.Here’s some more about Dayna. As a National Board Certified educator, parent of three neurodivergent children, and an ADHD adult herself, Dayna brings a unique and out-of-the-box perspective to parents raising kids in the modern world. Through he...
We’re back in school. Is your child with disabilities working with a new teacher? In this week’s podcast learn how to introduce your child to their teacher using helpful F-words!Resources mentioned in this episodeThe ‘F-words’ in childhood disability: I swear this is how we should think!Meet my Child documentFull letter by Julie McIsaac, PhD. to her son’s teacherWhere to find Exceptional LivesFacebookInstagramTikTokLinkedIn
Resources for children with disabilities: what are they, how do I find them? If you’ve found yourself overwhelmed with where to start in getting support for your child with disabilities or developmental delay this podcast episode is for you. Listen along as I break down the systems of services in this week’s episode. Resources mentioned in this episodeMy child was just diagnosed with a disability. Now what do I do? (Podcast)My child has a new disability diagnosis. Now what? (Blog)My chil...
Flying with kids with disabilities can be stressful and overwhelming. This week’s podcast episode has 5 tips to make the trip easier for you and your child.Resources mentioned in this episodeBetter parenting using self-regulationWhat is self-regulation and how can it help me be a better parent?¿Qué es la autorregulación y cómo puede ayudarme a ser un mejor padre?Co-regulation: Your secret tool for managing meltdownsHow can co-regulation help my child’s behavior? Strategies for parenting child...
Pool safety is important for everyone, more so for children with disabilities. Parents need hints for summer, some that are not always obvious. This week’s podcast contains 9 quick tips for water safety and UV awareness.Resources mentioned in this episodeHow to climb out of the poolSwimsuit colors for water safetySunscreen for people of colorSunscreen application tipsAssign an adult to be Water WatcherWhere to find Exceptional LivesFacebookInstagramTikTokLinkedIn
Self-care for caregivers: You’re tired and you know you need it. But how? And why would you want one more thing to add to your to-do list? This week on the podcast, I want to share with you how some things you’re already doing every day can be self-care.Resources mentioned in this episodeParents, let’s talk mental health (podcast)Fellow Parents, Let’s Talk About Mental HealthBetter parenting using self-regulation (podcast)"Calmness feels nice;" An interview about how tapping helped one mama's...
There is often confusion and fear and difficulty when talking about mental illness, especially when children are involved. There doesn’t need to be though. This week’s podcast focuses on how you can support parents of children with mental illness. Listen along as we share 3 ways to be a great friend.Resources mentioned in this episode988 Suicide & Crisis LifelineThe Trevor Project: Help for LGBTQ+ Youth in CrisisFellow Parents, Let’s Talk About Mental Health (blog)Parents, Let’s Talk Ment...
In honor of Occuptional Therapy Month, we are re-releasing on episode on occupational therapy.If your young child has a disability or delay, you may have been referred to Occupational Therapy. But what does occupational therapy mean for a child? In this episode, we’ll talk about all of the ways OT can make a difference for your child. Kim Haynes and Anne Hindrichs of the McMains Child Developmental Center explains how OT can help a child with their most important work - play.McMains Child Dev...
“There’s no magic amount of knowledge.” This week I have a conversation with Nell Curran and she has some great insights into raising a neurodivergent child. Listen along as two neurodivergent moms talk about raising neurodivergent children.Resources mentioned in this episode5 things to do if your autistic child needs an ambulance (podcast)Body doubling and other parenting tips for neurodivergent adults (podcast)Neurotribes: The Legacy Of Autism And The Future Of Neurodiversity By Steve Silbe...
Do you ever ask yourself, “as a neurodivergent parent, how can I teach my neurodivergent child skills that they’ll need?” This week on the podcast, I want to share some skills that I have discovered work for me and my family.Resources mentioned in this episodeNeurodivergent: What Is It, Symptoms, And TypesStimming: Why It Happens And How To Manage ItThe Link Between ADHD and Object PermanenceBody Doubling for ADHD: What It Is and How It Works?Body Doubling: Not Just for ADHDBody DoublingAdult...
“It’s tough and there’s some really, really hard days. Just don’t give up hope.” This week we talk to one parent about raising her child with disabilities. Listen along to hear some of the lessons she learned along the way.Resources mentioned in this episodeEarly Intervention (Louisiana)Early Intervention (Massachusetts)Six things you really, really don’t want to say to children with disabilities (try these instead) (Podcast)Exceptional Lives on FacebookExceptional Lives on InstagramException...
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