Spotlight on Pulmonary Fibrosis

While the focus is often on taking care of one’s physical well-being, the challenges of living with a chronic disease can take a tool on people’s emotional health. But it is important to know that you as a patient is not alone and that a variety of resources are available to help patient maintain a positive mindset. In this episode of “Spotlight of Pulmonary Fibrosis”, we hear from Eszter Rozan a patient from Hungary and Dr. Bardia Monshi , a clinical psychiatrist from Austria. Listen t...

There are various actions patients with pulmonary fibrosis can take to manage their symptoms and help them live their life to the fullest. While pharmacological treatments are an important tool there are many things that patients can do to manage their health. In this episode of Spotlight on Pulmonary Fibrosis, we are joined by pulmonologist Dr. Ralf Harun Zwick from Austria, and Matea Perkovic, a patient advocate from Croatia. Listen as they discuss why it’s important to develop a holistic t...

Receiving a diagnosis is a key step on the patient journey, but what happens next? Based on the patient characteristics the physician will prescribe a pharmacological treatment, but it can be challenging to understand how it works and how it together with the disease itself might impact their lives. In this episode of “Spotlight of Pulmonary Fibrosis”, we hear from Gali Ruttner an IPF patient from Israel, and Prof. Yochai Adir a pulmonologist from Israel and the chair of the Israel society of...

There are many types of pulmonary fibrosis, including Idiopathic Pulmonary Fibrosis (IPF). However, the journey towards a diagnosis of IPF is not always straight forward and it can also be difficult to understand the diagnostic process. In this episode of “Spotlight of Pulmonary Fibrosis”, we hear from Patient A.M. an IPF patient from Bulgaria, Dr. Kathrin Hostettler, a pulmonologist from Switzerland, and Prof. Jens Bremerich radiologist from Switzerland

Connective Tissue Diseases (CTD) are disorders that exhibit autoimmune-meditated damage to various organs, one type of CTD is Scleroderma, also known as Systemic Sclerosis. Pulmonary Fibrosis is a lung manifestation that can develop in patients with Scleroderma. In this episode of “Spotlight on Pulmonary Fibrosis in Connective tissue Disease” we will meet the scleroderma patient Michaela Linkova from Czech Republic as she talks about her journey towards diagnosis. We also hear from Dr. ...

Connective Tissue Diseases (CTD) are disorders that exhibit autoimmune-meditated damage to various organs, one type of CTD is Scleroderma, also known as Systemic Sclerosis. Pulmonary Fibrosis is a lung manifestation that can develop in patients with Scleroderma. In this episode of “Spotlight on Pulmonary Fibrosis in Connective tissue Disease” we will meet the scleroderma patient Michaela Linkova from Czech Republic as she talks about her journey towards diagnosis. We also hear from Dr. ...

Over the past 2 years the COVID-19 pandemic has in many ways had a profound impact on our lives, and this is especially true for patients living with pre-existing lung diseases such as pulmonary fibrosis. In this episode of Spotlight on Pulmonary Fibrosis, we hear from Dr. Veronika Müller, a pulmonologist from Hungary, and Olga Drapalova, a patient with myositis from Czech Republic, who talk about the COVID-19 pandemic, vaccinations and how it has affected those living with Pulmonary Fibrosis...

A diagnosis is the first step on a patient’s journey. For those facing a future with Pulmonary Fibrosis, the first thing you need to do is find the right specialist that can offer tailored and personalised support, but this process can be both challenging and hard to navigate. In this episode of “Spotlight on Pulmonary Fibrosis,” we hear from Dr. Katarzyna Lewandowska a pulmonologist from Poland and Radostina Getova a patient advocate and a consultant to IPF patient organisations from Bulgari...