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Welcome to the NICU Alumni Podcast. Your baby has graduated from the NICU (Neonatal Intensive Care Unit), and you're finally home! Now what? We know that the end of the NICU journey is the start of a whole new experience. So, we're dedicated to supporting families as they navigate life after the NICU. We're so glad you're here!
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In this conversation, Andrea and Rita discuss their experiences with the NICU and the challenges they faced. They talk about the emotional impact of the NICU stay, the difficulties of bonding and providing care in the NICU, and the feeding challenges they encountered. They also discuss the importance of celebrating milestones and how their children have connected with their NICU experiences as they've grown older. Rita shares her involvement in supporting NICU families through the NICU Family...
Darla Vazquez shares her journey as a NICU parent and the challenges she faced raising her son, who was born prematurely and spent 203 days in the NICU. She discusses the importance of advocacy and the need for support in navigating the medical system. Darla also talks about her work in helping families transition their children from G-tube feeding to oral eating, providing resources and guidance for parents in similar situations. In this conversation, Andrea speaks with Darla about life afte...
We had the best conversation with Ashley and Martha of Dear NICU Mama! Vilma shares how she became connected to DNM and then later went on to become a founding board member of NICU Alumni.Quick Takeaways from the Episode:Dear NICU Mama is rooted in the desire to connect with others who are also going through the NICU journey so that they know they are not alone and are part of the shared sisterhood.Listen to Ashley’s NICU StoryListen to Martha’s NICU Story Part 1 and Part 2Listen to Vilma’s N...
Bricen Urquidi is a stay at home mom of 3 kids. She has been involved with ICU baby (a local nonprofit in Miami that is very near and dear to us at NICU Alumni) for over 8 years and is a volunteer at her children's school and other organizations in Miami. Her NICU journey began with her first born Ila and that experience lead to helping others in need. Ila is a 9th grader at a local school in Miami and is a Youth Ambassador with ICU baby. Ila started a club at school called Faith4NICU wh...
After giving birth to triplets at just 25 weeks 5 days gestation and losing one of her daughters at 14 months old, Keira Sorrells was propelled into maternal-infant health out of a deep-seated desire to ensure no parent experiences the trauma of preterm birth or loss alone.Together, with a dedicated team of NICU Parent Leaders, Keira has grown the @NICUParentNetwork to be a sought-after resource and collaborative partner for providers, researchers, industry, and other stakeholders in this nic...
Dr. Marta Grisel Galarza is a Board Certified Lactation Specialist as well as a Neonatologist at the University of Miami Miller School of Medicine and she has worked at Holtz Children’s hospital since 1997. She is the Medical Director of the Intermediate Care NICU, a 70-bed unit. More recently she developed a Neonatal/Antenatal specific Palliative Care Program for the Division of Neonatology. She has worked endlessly and passionately on these projects because they promote and protect mot...
Alexa Marsellos, a board-certified music therapist and music educator joins us to discuss how she implements adaptive music lessons for students of all ages and abilities. In 2023, she founded Neurobeat Music Therapy (@neurobeatmusictherapy), a practice dedicated to fostering growth, improving lives, and advocating for the transformative power of music therapy.Quick Takeaways from the Episode:Music therapists work with people of all ages, and all diagnoses, utilizing music to achieve non-musi...
Brittany Aquart is a Doctor of Physical Therapy, Board Certified Pediatric Clinical Specialist, and mom of two, one of whom had a NICU stay. Quick Takeaways from the Episode:Going through the NICU with her own child is an experience that changed her perspective as a Physical Therapist and her practice.She understands that it is really easy to feel insignificant in the NICU and like you don’t have a role with your baby while they are there.Now, as a provider, her practice aims to remind p...
Tune in for a Special Episode: "Reflecting on One Year of the NICU Alumni Podcast" with our Board of Directors! 🎉Join us as we look back on a year of inspiring stories, valuable insights, and heartfelt connections. Hear from the dedicated individuals behind the scenes who have made this podcast possible.Quick Takeaways from the Episode:FL Partners in PolicymakingThe Zaky HUG collaborationNICU Alumni Parent GroupsNICU Parent NetworkGIVE MIAMI DAYNICU Alumni Grad Guide - Board of Directors Edit...
Savannah Jane O’Malley is a wife and working mother of 3 former preemies. She works full-time, pursues her artistic passions part-time, and moms all the time. We talk about her twin boys who were born 3.5 months early, how they spent their first 3 months fighting for the chance at life despite being given many devastating diagnoses, enduring countless ups and downs, and achieving absolutely incredible triumphs.This season of her life made her discover her true role as a mother and set her on ...
Jennifer Degl is the mother of four, including a micro preemie born at 23 weeks gestation. As the founder of Speaking for Moms and Babies, Inc., her mission is to educate the public on maternal and neonatal health issues. She's also the author of three books and has published articles in both the Journal of Pediatrics and the Journal of Perinatology.Quick Takeaways from the Episode:Jennifer described coming home from the NICU with one word: Scary. This shouldn't be the case! At NICU Alumni, t...
Martha Sharkey is the Founder & CEO of Today is a Good Day, a non-profit providing personal and financial support for families who experience the Neonatal Intensive Care Unit (NICU).Martha and her husband, Paul, founded Today is a Good Day in honor of their daughter, Claire, and in memory of their daughter, Mary. They welcomed their identical twin girls at just 23 weeks and 5 days on November 14, 2010. Quick Call Outs from the Episode:Mange expectations in the NICU - remain hopeful, ...
This week we are interviewing Alexandra Sportini, a NICU Mom to an IUGR (Intrauterine Growth Restriction) miracle baby who will soon be 15 months old.We talk about Alexandra's journey with breast milk which actually started before her son was born while she was in antepartum. From there, we discuss her son's NICU experience, and how, following his birth, she became an exclusive pumper. She was eventually able to nurse her son, and later also became a donor for Prolacta Bioscience, a company d...
In this episode, we hear from Dr. Michelle Klein, a pediatrician at Uptown Pediatrics in NYC. Originally from California, Dr. Klein earned her BA in Neuroscience from UCLA, followed by a master’s degree in Physiology and Biophysics from Georgetown University, and her medical degree from New York Medical College. Her journey continued as she completed her pediatric residency, chief residency, and pediatric endocrinology fellowship at Mount Sinai Hospital. Dr. Klein is passionate about sharing ...
Trish Ringley has been a NICU nurse since she graduated from nursing school in 1997. After more than 15 years serving NICU families, she realized how hard it is for parents to find the products they crave to support them during their NICU experience. So in 2014, she founded Every Tiny Thing, a brand devoted to providing the NICU products parents need and deserve.Quick Call Outs from the Episode:Trish shared that the Every Tiny Thing journal and the milestone cards serve as more than just “a n...
In this heartwarming episode, we interview our founder's daughter and dive into the beautiful tradition NICU Alumni started of collecting The Zaky HUGs® to distribute within our community.What is The Zaky HUG®? 🤗 It is a soft, weighted hand-shaped pillow that simulates the touch and warmth of a parent's hand. It's designed to provide comfort, security, and a sense of closeness for premature and sick babies during their NICU journey and beyond. 🩵 Embracing the NICU Alumni Tradition 🩵 Here...
Krystal Janet is a full time working momma and stepmom. She embraces all parenting a child with special needs, coparenting and life changes with good books and cafecito. Krystal enjoys traveling, attending community events, eating sushi and trying all the red wines. This momma strives to continue strengthening and growing her village through her family and friends, both local and out of state, and has a soft spot for Autism Moms, Stepmoms and graduates of the NICU. Check her out on instagram ...
Alesia DiSano, is a Senior Pediatric Occupational Therapist with 19 years of experience in the field. We met through a mutual contact, Leah Jayanetti, a PT that we also had on the podcast earlier this year. In Leah's words… “Alesia is a renowned occupational therapist with a wealth of experience in early intervention, inpatient and outpatient therapy and has worked in the Sensory Integration and Constraint-Induced Movement therapy (CIMT) worlds for a long time. She is the best OT I know and h...
Marci Launer, is the owner and founder of Launer Speech Language Therapy, a private speech language pathology practice based out of Long Island, NY. While working in early intervention she found her passion for feeding and swallowing in infants and specializes in treating infants and toddlers with Feeding and Swallowing difficulties. Marci has worked with preemies, micro preemies, infants and toddlers with various genetic disorders, syndromes and their families.Quick Call Outs from the Episod...
Yamile Jackson, is the Creator of The Zaky HUG and International Kangaroo Care Awareness Day. In this interview, Yamile shares about her experience in the NICU with her son and how skin to skin helped them both thrive even in the midst of a tropical storm, and being transferred between two hospitals.From these experiences she went on to found Nurtured by Design®, where she has harnessed her experience of being a mother to a micro preemie, as well as her professional experience in engineering ...
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