Long COVID Real Talk Podcast

S5E3: "When It's A Struggle Just To Exist"Keywords: Long COVID, fatigue, emotional health, mental health, hope, resilience, chronic illness, motherhood, coping strategies, personal experiencesSummary: In this episode, Katherine Marie shares her personal struggles with long COVID, focusing on the emotional and cognitive challenges she faces daily. She discusses feelings of hopelessness, fatigue, and the burden of illness on her identity and relationships. Despite these challenges, she emphasizes the importance of hope and connection, reminding listeners that they are not alone in their struggles.Takeaways:I usually don't have trouble sleeping, but tonight I do.It affects your mind and how hopeless you feel.I feel ashamed that I'm not working.Just existing was almost painful.It's hard to think of words that you want to say.I keep thinking to myself that I'm gonna get better.There's no one way that we know works for every person with long COVID.I worry that my daughter and my husband will resent me.You're not alone and not all the nights are gonna be bad.I really miss myself.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E2: **BIPOC Series** "Don't Lose Hope, People!" (w Kiki)How you can reach Kiki:Threads: @alchemythroughsisterhoodYouTube: https://youtu.be/KMtTrnC5m90Keywords: Long COVID, personal story, health journey, coping strategies, mental health, recovery, lifestyle changes, healthcare, symptoms, advocacySummary: In this episode of the Long COVID Real Talk podcast, Kiki shares her personal journey with long COVID, detailing her life before the illness, the onset of symptoms, and the challenges she faced in navigating the healthcare system. She discusses the significant lifestyle changes she made to cope with her symptoms and emphasizes the importance of self-advocacy and hope in the recovery process. Kiki's story serves as an inspiration for others facing similar challenges, highlighting the resilience and adaptability required to manage long COVID.Takeaways:Kiki felt she was thriving before long COVID, with a strong intellectual and physical capacity.The onset of COVID-19 was initially mild, but the second infection led to long COVID symptoms.Recognizing the gradual decline in her health was challenging, as symptoms worsened over time.Kiki had to navigate a complex healthcare system to receive proper care and diagnosis.Lifestyle changes, including pacing and self-care, were crucial in managing her symptoms.Kiki emphasizes the importance of rest and reducing cognitive load to aid recovery.She found value in herbal teas and mindfulness practices to help calm her nervous system.Kiki advocates for self-advocacy in healthcare, sharing her experiences with doctors.Despite the challenges, Kiki remains hopeful about recovery and the future of long COVID research.Kiki's journey highlights the importance of community and support in managing chronic illness.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S5E1: "But You look So Well" (+Weight Mgmt & SGB)Keywords: Long COVID, health management, weight loss, community support, treatment options, personal experiences, wedding reflections, coping strategies, mental health, wellnessSummary: In this episode of Long COVID Real Talk, Katherine Marie shares her experiences attending a wedding while managing long COVID symptoms. She discusses the challenges of social events, the importance of pacing, and the misconceptions people have about long COVID. Katherine also talks about her health management strategies, including weight loss efforts and the impact of medications on her appetite. She explores treatment options like the stellate ganglion block and emphasizes the importance of community support in navigating the long COVID journey.Takeaways:​Attending social events can be challenging with long COVID.​Pacing oneself is crucial during exertion to avoid post-exertional malaise.​Misconceptions about long COVID can lead to frustrating interactions.​Weight management is a significant concern for those with long COVID.​Medications can affect appetite and weight loss efforts.​Community support is vital for those dealing with long COVID.​Sharing experiences with others can provide hope and understanding.​Cold water therapy may help alleviate some symptoms.​It's important to communicate the realities of long COVID to others.​Self-esteem can be impacted by physical health challenges.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S4E25: **BIPOC Series** "Unprecedented Doesn't Mean Impossible" (w/ Cynthia Adinig)How you can reach Cynthia: Email: cynthiaadinig@gmail.comIG: @cynthiaadinigWebsite: https://www.bipocequityagency.com/Book: DEI Delusion: https://a.co/d/97VULjYKeywords: Long COVID, advocacy, healthcare, legislation, domestic violence, patient engagement, AI in healthcare, community support, systemic barriers, research innovations, patient-centered research, diversity equity inclusion, AI in healthcare, advocacy, healthcare equity, chronic illness, Long COVID, patient support, healthcare reform, institutional accountability, BIPOCSummary: In this episode of Long Covid Real Talk, Katherine Marie interviews Cynthia Adinig, a prominent advocate for Long COVID patients. Cynthia shares her personal journey from being denied care to becoming a leading voice in legislative advocacy. She discusses the systemic barriers faced by patients, the importance of community support, and her innovative work using AI to improve healthcare outcomes. Cynthia also opens up about her personal struggles, including domestic violence and the challenges of navigating the healthcare system. In this conversation, Cynthia Adinig discusses her innovative approach to creating a patient-centered research framework that emphasizes diversity, equity, and inclusion without explicitly using those terms. She shares her strategies for stealthily implementing these frameworks in institutions, the development of tools to assess institutional equity, and the integration of AI in groundbreaking research. Cynthia also highlights her commitment to patient advocacy, accountability in healthcare, and her dedication to supporting patients in need, emphasizing the importance of accessibility and the refusal to let financial barriers hinder patient care.Takeaways:​Cynthia's advocacy began after being denied care in 2020.​Cynthia has faced significant personal challenges while advocating.​The healthcare system often fails patients with chronic conditions.​AI can play a crucial role in advancing Long COVID research.​Community support is vital for those facing chronic illness.​Hope and resilience are essential in the fight for change. ​Cynthia is developing tools to assess institutional equity.​Advocacy for patients is a core part of Cynthia's mission.​Cynthia emphasizes the importance of accessibility in healthcare.​She refuses to let financial barriers prevent patient support.​She is committed to helping patients navigate the healthcare system.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

S4E24: "Chillin' Like A Villain"Keywords: cold showers, long Covid, mental clarity, health updates, therapy, medication, wellness, personal experiences, brain fog, neurotransmittersSummary: In this episode of Long Covid Real Talk, Katherine Marie shares her journey with cold showers as a therapeutic practice for managing long Covid symptoms. She discusses her experiences, the importance of consulting with a doctor, and the potential benefits of cold exposure on mental clarity and mood. Katherine also touches on her medication adjustments and expresses hope for continued improvement in her health.Takeaways:Katherine has been trying cold showers as a therapy.Consulting a doctor before starting cold exposure is crucial.Cold showers have helped improve her brain fog.The cold exposure may stimulate neurotransmitter release.Katherine feels hopeful about her health improvements.She has adjusted her medication dosage recently.Cold showers provide a refreshing and invigorating experience.Katherine is exploring the potential of cold water therapy.She emphasizes the importance of personal experimentation in health.Katherine is optimistic about future health developments.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . UNDER NO CIRCUMSTANCE SHALL WE HAVE ANY LIABILITY TO YOU FOR ANY LOSS OR DAMAGE OF ANY KIND INCURRED AS A RESULT OF THE USE OF THE SITE OR RELIANCE ON ANY INFORMATION PROVIDED ON THE SITE. YOUR USE OF THE SITE AND YOUR RELIANCE ON ANY INFORMATION ON THE SITE IS SOLELY AT YOUR OWN RISK.The Site cannot and does not contain medical/health advice. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical/health advice. THE USE OR RELIANCE OF ANY INFORMATION CONTAINED ON THE SITE IS SOLELY AT YOUR OWN RISK.

S4E23: "Cold Water Therapy: A Path to Recovery from Long COVID" (w/ Nigel)How you can reach Nigel: nigel@couchtorecovery.comRecommended Books:1) Chill: The Cold Water Swim Cure - by Dr. Mark Harper2) Winter Swimming: The Nordic Way Towards a Healthier and Happier Life - by Dr. Susanna SobergKeywords: Long COVID, cold water therapy, mitochondrial function, recovery, health, wellness, Nigel's journey, chronic fatigue, mental health, energy recoverySummary: In this episode of Long COVID Real Talk, Katherine Marie speaks with Nigel from the UK about his personal journey with Long COVID. Nigel shares his experiences before and after contracting COVID-19, detailing the debilitating symptoms he faced and his struggles with recovery. He discusses the transformative impact of cold water therapy on his health, emphasizing its benefits for mitochondrial function and overall energy levels. The conversation highlights the importance of mindset, community support, and practical tips for incorporating cold exposure into daily routines. Nigel's story serves as an inspiration for others facing similar challenges, encouraging them to explore alternative therapies and maintain hope for recovery.Takeaways:Cold exposure can significantly improve mitochondrial function.Nigel's life was active and fitness-oriented before Long COVID.The acute COVID infection led to severe health issues for Nigel.Long COVID symptoms included extreme fatigue and depression.Cold water therapy has been a game changer for Nigel's recovery.Mindset plays a crucial role in overcoming health challenges.Consistency in cold exposure can lead to significant health benefits.Community support is vital for those dealing with Long COVID.Cold water therapy is low risk and has little to no side effects (but still should check w/ your doctor before starting).Nigel aims to help others find recovery through cold water therapy.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . UNDER NO CIRCUMSTANCE SHALL WE HAVE ANY LIABILITY TO YOU FOR ANY LOSS OR DAMAGE OF ANY KIND INCURRED AS A RESULT OF THE USE OF THE SITE OR RELIANCE ON ANY INFORMATION PROVIDED ON THE SITE. YOUR USE OF THE SITE AND YOUR RELIANCE ON ANY INFORMATION ON THE SITE IS SOLELY AT YOUR OWN RISK.The Site cannot and does not contain medical/health advice. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical/health advice. THE USE OR RELIANCE OF ANY INFORMATION CONTAINED ON THE SITE IS SOLELY AT YOUR OWN RISK.

Keywords: Long COVID, mental health, disability claims, workers' compensation, emotional struggles, personal experiences, coping strategies, healthcare challenges, support systems, recovery journeySummary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey with long COVID, detailing the emotional and physical challenges she faces, particularly regarding her recent flare-up and the difficulties with workers' compensation and disability claims. She discusses the psychological toll of repeated denials and the impact on her mental health, as well as her efforts to navigate the complexities of her situation with legal support. Katherine emphasizes the importance of sharing her experiences to connect with others facing similar struggles and to highlight the exhausting nature of dealing with long COVID.Takeaways: Katherine shares her experience of a recent flare-up of long COVID. The psychological pain associated with long COVID can be overwhelming. Navigating workers' compensation and disability claims is challenging and frustrating. Denials of disability retirement can lead to emotional distress. Katherine reflects on the loss of her job and its impact on her identity. She emphasizes the importance of support systems during difficult times. Coping with long COVID involves both physical and mental health challenges. Katherine's journey highlights the need for better healthcare support for long COVID patients. The emotional toll of long COVID can lead to feelings of hopelessness. Katherine aims to connect with others who share similar experiences.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . UNDER NO CIRCUMSTANCE SHALL WE HAVE ANY LIABILITY TO YOU FOR ANY LOSS OR DAMAGE OF ANY KIND INCURRED AS A RESULT OF THE USE OF THE SITE OR RELIANCE ON ANY INFORMATION PROVIDED ON THE SITE. YOUR USE OF THE SITE AND YOUR RELIANCE ON ANY INFORMATION ON THE SITE IS SOLELY AT YOUR OWN RISK.WE DO NOT WARRANT, ENDORSE, GUARANTEE, OR ASSUME RESPONSIBILITY FOR THE ACCURACY OR RELIABILITY OF ANY INFORMATION OFFERED BY THIRD-PARTY WEBSITES LINKED THROUGH THE SITE OR ANY WEBSITE OR FEATURE LINKED IN ANY BANNER OR OTHER ADVERTISING. WE WILL NOT BE A PARTY TO OR IN ANY WAY BE RESPONSIBLE FOR MONITORING AY TRANSACTION BETWEEN YOU AND THIRD-PARTY PROVIDERS OF PRODUCTS OR SERVICES.The Site cannot and does not contain medical/health advice. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical/health advice. THE USE OR RELIANCE OF ANY INFORMATION CONTAINED ON THE SITE IS SOLELY AT YOUR OWN RISK.

Keywords: Long COVID, hiking, health, wellness, POTS, dysautonomia, nature therapy, mental health, recovery, personal experienceSummary: In this episode of Long COVID Real Talk, Katherine Marie shares her personal journey of adapting to hiking with Long COVID. She discusses the emotional and physical challenges of returning to nature, the joy of experiencing the outdoors again, and the importance of finding ways to engage in activities you love, even if they look different than before. Katherine also provides insights into her medical journey, including treatments that have helped her manage symptoms of dysautonomia and POTS, emphasizing the importance of consulting healthcare professionals for tailored advice.Takeaways You can adapt activities you love to your current abilities. Hiking can be a therapeutic way to connect with nature. It's important to celebrate small victories in recovery. Medications can significantly improve quality of life for Long COVID patients. Consulting specialists can provide valuable insights and treatments. Finding accessible trails can help reintroduce outdoor activities. Mental health benefits from being in nature are profound. Sharing personal experiences can help others feel less isolated. It's okay to take breaks and pace yourself during activities. Hope and positivity are crucial in the recovery journey.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: Information provided by Long COVID Real Talk Podcast is for general informational purposes only. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Always consult with your designated medical professional.

Keywords: Long COVID, BIPOC, healthcare, primary care, symptoms, Angela Rudolph, COVID experience, chronic illness, patient advocacy, health disparities, Long COVID, healthcare disparities, disability, personal journey, community support, chronic illness, advocacy, mental health, systemic barriers, identitySummary: In this episode of Long COVID Real Talk, host Katherine Marie speaks with Angela Rudolph about her personal journey with Long COVID. Angela shares her experiences as an essential worker during the pandemic, the challenges she faced after contracting COVID, and her struggles with the healthcare system. She emphasizes the importance of finding a supportive primary care doctor and the unique challenges faced by BIPOC individuals in healthcare. Angela's story highlights the need for better understanding and support for those suffering from Long COVID. In this conversation, Angela Rudolph shares her personal journey with long COVID, highlighting the systemic challenges within the healthcare system, the emotional and physical struggles she faced, and the importance of community support. She discusses the disparities in long COVID awareness, particularly among people of color, and emphasizes the need for better advocacy and understanding of chronic illnesses. Angela also reflects on her identity as a disabled person and offers practical tips for navigating life with long COVID, including the significance of pacing and listening to one's body.Takeaways:Angela was a career-focused individual before COVID.She worked as an essential worker during the pandemic.Angela contracted COVID at a women's empowerment retreat.She experienced severe symptoms of Long COVID.Navigating the healthcare system was challenging for her.Angela felt the need to advocate for herself in healthcare.She sought a primary care doctor of color for better outcomes.It took over a year to find a supportive primary care doctor.Angela's experience reflects broader health disparities.Community support was crucial in her journey. The healthcare system often overwhelms doctors, impacting patient care.Chronic illness patients face systemic barriers in receiving adequate care.Angela experienced cognitive challenges due to COVID, affecting her communication.Rehabilitation helped Angela regain her mobility and cognitive function.Embracing disability is a crucial part of Angela's healing process.There is a significant lack of representation in long COVID research for people of color.Disability can occur unexpectedly, affecting anyone at any time.Community support is vital for those navigating long COVID.Pacing oneself is essential to avoid post-exertional malaise.Listening to one's body is the best guide for managing health.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: Information provided by Long COVID Real Talk Podcast is for general informational purposes only. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Always consult with your designated medical professional.

S4 E19: "The Emotional Toll of Medical Appointments" + Bonus content: My Follow-Up Chronic Fatigue Clinic Appointment Keywords: Long COVID, chronic fatigue, medical appointments, medication management, brain fog, patient experience Summary: In this episode of Long COVID Real Talk, Katherine Marie shares her experiences during a recent chronic fatigue clinic appointment. She discusses the challenges of communicating her symptoms, the emotional toll of medical appointments, and the adjustments made to her medication regimen. Katherine emphasizes the importance of understanding and support from healthcare providers, as well as the need for patients to advocate for themselves in managing their health. Takeaways: The emotional toll of medical appointments can be significant. Communication challenges can arise during medical visits. It's important for patients to feel understood by their doctors. Medication adjustments can be a difficult process. Chronic fatigue clinics are not widely available to everyone. Patients should advocate for their needs during appointments. Brain fog can impact the ability to communicate effectively. Follow-up appointments often lack sufficient time for discussion. Support from healthcare providers is crucial for patient well-being. Regular updates on medication can help manage symptoms effectively. Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟 Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217 YouTube: @LongCovidRealTalkPodcast Facebook Group: https://www.facebook.com/groups/418306020831350 Instagram: longcovid.realtalk Threads: longcovid.realtalk Twitter: @LCRealTalk Tik Tok: @katherinemarie974 Pinterest: @longcovidrealtalk Bluesky: @longcovidrealtalk.bsky.social Snapchat: @lcrealtalk Discord: katherinemarielongcovidrealtalk Discord group: https://discord.gg/aNbKfPHf DISCLAIMER: Last updated January 16, 2025 The information provided by Long COVID Real Talk Podcast ("we," "us," or "our") on http://www.longcovidrealtalk.com (the "Site") is for general informational purposes only. All information on the Site is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . UNDER NO CIRCUMSTANCE SHALL WE HAVE ANY LIABILITY TO YOU FOR ANY LOSS OR DAMAGE OF ANY KIND INCURRED AS A RESULT OF THE USE OF THE SITE OR RELIANCE ON ANY INFORMATION PROVIDED ON THE SITE . YOUR USE OF THE SITE AND YOUR RELIANCE ON ANY INFORMATION ON THE SITE IS SOLELY AT YOUR OWN RISK. The Site cannot and does not contain medical/health advice. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical/health advice. THE USE OR RELIANCE OF ANY INFORMATION CONTAINED ON THE SITE IS SOLELY AT YOUR OWN RISK.

S4 E 18: "Don't Be Afraid To Ask For Help" (w/ Patricia)How to reach out to Patricia: patricia.tudosa@gmail.comOpen Medicine Foundation website:  ⁠https://www.omf.ngo/⁠- Does a lot of LC research- Engages regularly with the LC community online- Including offering opportunities for participating in researchApp mentioned during episode: QomixYouTuber w/ Long COVID mentioned during episode: Physics Girl (Dianna Cowern): https://youtube.com/shorts/xALv93I6xLo?si=QE3jwzWdoZEp4rnYKeywords: Long COVID, health, personal story, treatment, community support, mental health, recovery, chronic illness, awareness, patient experienceSummary: In this conversation, Patricia shares her personal journey with long COVID, detailing her life before the illness, the onset of symptoms, the challenges of diagnosis, and the various treatments she explored. She emphasizes the importance of community support and self-care, offering advice to others facing similar struggles. The discussion highlights the need for awareness and understanding of long COVID, as well as the emotional and physical toll it takes on individuals.Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: Last updated January 16, 2025The information provided by Long COVID Real Talk Podcast ("we," "us," or "our") on http://www.longcovidrealtalk.com (the "Site") is for general informational purposes only. All information on the Site is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . UNDER NO CIRCUMSTANCE SHALL WE HAVE ANY LIABILITY TO YOU FOR ANY LOSS OR DAMAGE OF ANY KIND INCURRED AS A RESULT OF THE USE OF THE SITE OR RELIANCE ON ANY INFORMATION PROVIDED ON THE SITE . YOUR USE OF THE SITE AND YOUR RELIANCE ON ANY INFORMATION ON THE SITE IS SOLELY AT YOUR OWN RISK.The Site may contain (or you may be sent through the Site to links to other websites or content belonging to or originating from third parties or links to websites and features in banners or other advertising. Such external links are not investigated, monitored, or checked for accuracy, adequacy, validity, reliability, availability, or completeness by us. WE DO NOT WARRANT, ENDORSE, GUARANTEE, OR ASSUME RESPONSIBILITY FOR THE ACCURACY OR RELIABILITY OF ANY INFORMATION OFFERED BY THIRD-PARTY WEBSITES LINKED THROUGH THE SITE OR ANY WEBSITE OR FEATURE LINKED IN ANY BANNER OR OTHER ADVERTISING. WE WILL NOT BE A PARTY TO OR IN ANY WAY BE RESPONSIBLE FOR MONITORING AY TRANSACTION BETWEEN YOU AND THIRD-PARTY PROVIDERS OF PRODUCTS OR SERVICES.The Site cannot and does not contain medical/health advice. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical/health advice. THE USE OR RELIANCE OF ANY INFORMATION CONTAINED ON THE SITE IS SOLELY AT YOUR OWN RISK.

S4 E17: From Workaholic to Long Hauler (w/ Allex) Keywords: long COVID, health journey, nutrition, recovery, symptoms, wellness, supplements, personal experience, healing, community support Summary: In this conversation, Allex shares her personal journey through COVID-19 and the subsequent long COVID symptoms she experienced. She discusses her initial health struggles, the challenges of identifying her condition, and the importance of nutrition and supplements in her recovery. Allex emphasizes the need for community support and the sharing of knowledge among long COVID sufferers, highlighting her commitment to helping others navigate their healing journeys. Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟 Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217 YouTube: @LongCovidRealTalkPodcast Facebook Group: https://www.facebook.com/groups/418306020831350 Instagram: longcovid.realtalk Threads: longcovid.realtalk Twitter: @LCRealTalk Tik Tok: @katherinemarie974 Pinterest: @longcovidrealtalk Bluesky: @longcovidrealtalk.bsky.social Snapchat: @lcrealtalk Discord: katherinemarielongcovidrealtalk Discord group: https://discord.gg/aNbKfPHf DISCLAIMER: Last updated January 16, 2025 The information provided by Long COVID Real Talk Podcast ("we," "us," or "our") on http://www.longcovidrealtalk.com (the "Site") is for general informational purposes only. All information on the Site is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . UNDER NO CIRCUMSTANCE SHALL WE HAVE ANY LIABILITY TO YOU FOR ANY LOSS OR DAMAGE OF ANY KIND INCURRED AS A RESULT OF THE USE OF THE SITE OR RELIANCE ON ANY INFORMATION PROVIDED ON THE SITE . YOUR USE OF THE SITE AND YOUR RELIANCE ON ANY INFORMATION ON THE SITE IS SOLELY AT YOUR OWN RISK. The Site may contain (or you may be sent through the Site to links to other websites or content belonging to or originating from third parties or links to websites and features in banners or other advertising. Such external links are not investigated, monitored, or checked for accuracy, adequacy, validity, reliability, availability, or completeness by us. WE DO NOT WARRANT, ENDORSE, GUARANTEE, OR ASSUME RESPONSIBILITY FOR THE ACCURACY OR RELIABILITY OF ANY INFORMATION OFFERED BY THIRD-PARTY WEBSITES LINKED THROUGH THE SITE OR ANY WEBSITE OR FEATURE LINKED IN ANY BANNER OR OTHER ADVERTISING. WE WILL NOT BE A PARTY TO OR IN ANY WAY BE RESPONSIBLE FOR MONITORING AY TRANSACTION BETWEEN YOU AND THIRD-PARTY PROVIDERS OF PRODUCTS OR SERVICES. The Site cannot and does not contain medical/health advice. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical/health advice. THE USE OR RELIANCE OF ANY INFORMATION CONTAINED ON THE SITE IS SOLELY AT YOUR OWN RISK.

S4 E16: “Listen To Your Body” (w/ Carrie)Keywords: Long COVID, functional nutrition, health journey, dietary recommendations, liver health, holistic health, nutritionist, ME-CFS, wellness tips, health coachingSummary: In this episode of Long Covid Real Talk, Katherine Marie speaks with Carrie Bailey, a functional nutritionist who shares her personal journey with ME-CFS. They discuss the differences between functional and conventional nutrition, the importance of understanding individual health histories, and practical dietary recommendations for those suffering from long COVID. Carrie emphasizes the significance of whole foods, liver health, and listening to one's body as key components in recovery. She also offers insights into common dietary mistakes and provides resources for listeners seeking to improve their health.Connect with Carrie:https://carriebaileyfunctionalnutritionist.comYouTube: @carriebaileynutritionistFree gift: https://longcovidrecoveryguide.comDon’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟Listen to our podcast here: www.longcovidrealtalk.com or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdSIf you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can: Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217YouTube: @LongCovidRealTalkPodcastFacebook Group: https://www.facebook.com/groups/418306020831350Instagram: longcovid.realtalkThreads: longcovid.realtalkTwitter: @LCRealTalkTik Tok: @katherinemarie974Pinterest: @longcovidrealtalkBluesky: @longcovidrealtalk.bsky.socialSnapchat: @lcrealtalkDiscord: katherinemarielongcovidrealtalkDiscord group: https://discord.gg/aNbKfPHfDISCLAIMER: Last updated January 16, 2025The information provided by Long COVID Real Talk Podcast ("we," "us," or "our") on http://www.longcovidrealtalk.com (the "Site") is for general informational purposes only. All information on the Site is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . UNDER NO CIRCUMSTANCE SHALL WE HAVE ANY LIABILITY TO YOU FOR ANY LOSS OR DAMAGE OF ANY KIND INCURRED AS A RESULT OF THE USE OF THE SITE OR RELIANCE ON ANY INFORMATION PROVIDED ON THE SITE . YOUR USE OF THE SITE AND YOUR RELIANCE ON ANY INFORMATION ON THE SITE IS SOLELY AT YOUR OWN RISK.The Site may contain (or you may be sent through the Site to links to other websites or content belonging to or originating from third parties or links to websites and features in banners or other advertising. Such external links are not investigated, monitored, or checked for accuracy, adequacy, validity, reliability, availability, or completeness by us. WE DO NOT WARRANT, ENDORSE, GUARANTEE, OR ASSUME RESPONSIBILITY FOR THE ACCURACY OR RELIABILITY OF ANY INFORMATION OFFERED BY THIRD-PARTY WEBSITES LINKED THROUGH THE SITE OR ANY WEBSITE OR FEATURE LINKED IN ANY BANNER OR OTHER ADVERTISING. WE WILL NOT BE A PARTY TO OR IN ANY WAY BE RESPONSIBLE FOR MONITORING AY TRANSACTION BETWEEN YOU AND THIRD-PARTY PROVIDERS OF PRODUCTS OR SERVICES.The Site cannot and does not contain medical/health advice. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical/health advice. THE USE OR RELIANCE OF ANY INFORMATION CONTAINED ON THE SITE IS SOLELY AT YOUR OWN RISK.

S4 E15: "If I Go Crazy, Then Will You Still Call Me Superman” Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟 Listen to our podcast here: www.longcovidrealtalk.com Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217 DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. We are not responsible for any losses, damages or liabilities that may arise from the use of this podcast. This podcast is not intended to replace professional medical advice.

S4 E 13: "Your Illness Doesn't Define You" (w/ Dr. Meg) Dr. Meaghan Anderson is a Doctor of Physical Therapy with 12 years experience and is the owner of the private practice, Rising Tides Restorative Training, LLC, created specifically for long COVID rehabilitation. She received her Doctor of Physical Therapy degree from Northeastern University in 2013. Her time at Northeastern University was recognized with various awards recognizing leadership, entrepreneurial or innovative spirit, volunteerism and community engagement. Since then, she spent nearly a decade working in the acute care and acute rehabilitation setting. From 2020-2023, Dr. Anderson spent hours, days, and months in isolation working with people severely ill with covid, she saw first-hand the devastating effects that covid has on the mind, body, and soul. She quickly realized that this group of people was being left behind and this fueled her mission to launch her private practice in 2021. Her persistent curiosity and growing dedication to Long COVID treatment has led her to become engaged in advocacy for the long COVID population, having attended the 2024 U.S. Healthcare Leadership Summit on Long COVID rehabilitation. She has also been presenting her work on long COVID to university physical therapy programs, state, regional, and national level APTA chapters. Recently, she was published in the Cardiopulmonary Physical Therapy Journal's special edition on Long COVID. Dr. Meg Anderson is a humble and determined Covid Rehabilitation Specialist who believes that in a world where Long COVID doesn't have a clear cut cure and is often dismissed, it is her calling to teach the public that the physical therapy profession has a breadth of knowledge to handle this emerging condition, while also providing PTs/PTAs with the skills to deliver. To register for a session of monthly RESET Breathwork, go to Meg's website and under the breathwork section, use the code 'breathe100' to sign up. Meg Anderson, PT, DPTFounder | Rising Tides Restorative TrainingPresident | The Energy Expansion Project  risingtidesrt401@gmail.com www.risingtidesrecovery.com Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟 Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can email: longcovidrealtalk@gmail.com Google Voice/Text: 1-650-382-2217 DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. We are not responsible for any losses, damages or liabilities that may arise from the use of this podcast. This podcast is not intended to replace professional medical advice.

S4 E12:”Not Everything Is Your Fault”(w/ Caitlin)How you can reach Caitlin:Caitlin Mari Oliveros, Physical TherapistFounder, Studio Duyan Physical Therapy + Wellness(424) 447-2727caitlin@studioduyan.comstudioduyan.com@studioduyanDon’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. We are not responsible for any losses, damages or liabilities that may arise from the use of this podcast. This podcast is not intended to replace professional medical advice.

S4 E11: Saying Goodbye To The Old You To Embrace The NOW YouDon’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. We are not responsible for any losses, damages or liabilities that may arise from the use of this podcast. This podcast is not intended to replace professional medical advice.

S4 E8: “Why Isn’t Anyone Talking About This Crisis Besides Us?” (w/ Matthew) 🌟⭐️✨💫You can reach Matthew at: MatthewNeil@comcast.net.COVID-19 Longhauler Advocacy Project - Website: https://www.longhauler-advocacy.org- Facebook group: https://m.facebook.com/groups/c19lap/?ref=share&mibextid=S66gvFLong Covid, MD Podcast: - Website: LongCovidMD.com- Episode on the Long COVID Moonshot Bill: https://open.spotify.com/episode/41sgZ6WRKEx896lARUPDpd?si=tUBtJ6zOTpKrRhxfnl8TugPlease subscribe, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. We are not responsible for any losses, damages or liabilities that may arise from the use of this podcast. This podcast is not intended to replace professional medical advice. The views expressed in this podcast may not be those of the host or the management.

S4 E7: How To Survive Holidays/Events (guest: Dr. Zeest Khan) 💫🌟⭐️✨You can find Zeest on her podcast: Long Covid, MDEmail her at: LongCovidMD@gmail.comhttps://podcasts.apple.com/us/podcast/long-covid-md/id1716072073Website: LongCovidMD.comPlease subscribe, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice.

S4 E6: Life UpdatePlease subscribe, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350Email: longcovidrealtalk@gmail.comGoogle Voice/Text: 1-650-382-2217DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice