Tom's Hirschsprung's Podcast

155 Episodes

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Episode 149 - With Mete Redif

2026-11-1248:12

A host of incredibly rare conditions are discussed as Mete talks about his daughter Mila, from a dads point of view.Mia's conditions include; Central congenital hypoventilation syndrome, Hirschsprung's disease and hyper insulinism, Mete talks about how he and his wife manage Mila's conditions, as well as how well she is doing in the face of adversity.

Episode 148 - With Laurence and Paddy Tottingham

2026-11-0546:13

Laurence and his son Paddy chat about Paddy's Long Segment Hirschsprung's story at nearly 16 years of age. Both Laurence and Paddy are part of the chronic illness 'club' with Laurence's brain tumour, however despite these challenges both men have achieved so much in life.Both guys talk about how Paddy has thrived, whilst Paddy himself talks about his autism, and how it has impacted dealing with Hirschsprung's, as well as having a stoma. We have an interesting chat about different treatments and how they have helped Paddy.

Episode 147 - With Kiran Mann

2026-10-2958:30

A combination of Short Bowel Syndrome and a rare form of Hirschsprung's Disease, has led doctors to believe that this is a case that may never be seen again. Kiran's daughter is believed to be one of only 4 people in the world with this combination, and chances of seeing this to be roughly 1 in 2,000,000,000!!!Hear the extraordinary journey thus far, beginning in 2025 and running through to the present day.

Episode 146 - With Tiffany Dwyer

2026-10-2240:35

With over 50 procedures for her son Arlo, Tiffany talks through the first 16 months of her son's eventful life. We talk about the impact of Long Segment Hirschsprung's Disease and 5 rounds of Botox, as well as a bright look towards the future.

Episode 145 - With Shabana

2026-10-1545:45

Shabana joins me to talk about her son's Hirschsprung's journey, and the frustrating early stages of not being listened too by her GP. This episode shows that not all Hirschsprung's diagnosis are the same, and not everyone has the same 'classic' symptoms.We also have an interesting discussion on diet and what has worked for Shabana's son.

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