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Occult Awareness

Author: Amy Wang-Hiller

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The "Occult Awareness" podcast shares stories about “hidden” medical conditions. It empowers global health advocates and undiagnosed patients by telling their stories, educating the broader public, and discussing the lack of healthcare with health professionals who are rare/undiagnosed patient advocates and allies.

The podcast serves as a beacon of hope and knowledge for individuals navigating the complexities of the often misunderstood realm of hidden or 'occult' medical conditions, such as Occult Tethered Cord and Cervical Cranial Instability (CCI) within the Ehlers-Danlos Syndrome (EDS), and beyond.

Each episode invites listeners into the lives of those who face the daily challenges of seeking accurate diagnoses, battling misperceptions, and often receiving inadequate treatment.

The heart of "Occult Awareness" lies in its compelling storytelling, as guests share their personal journeys, from the trials of living with undiagnosed symptoms to the triumphs of finding understanding and proper care. Alongside these powerful narratives, the podcast brings expert voices from the medical community to discuss the subtleties of occult conditions, current research, and emerging treatments.

By fostering a community of empathy and advocacy, "Occult Awareness" empowers those affected by these conditions and educates the broader public, healthcare providers, and policymakers about the critical need for awareness and the nuances of medical care for occult disabilities. Each episode aims to educate, inspire, and advocate for change, contributing to a more informed and compassionate society.

7 Episodes
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Send us a Text Message.In this episode of Occult Awareness, we welcome Mark, a licensed professional counselor and health advocate, to discuss the complex interplay between chronic illness, trauma, and holistic health approaches. Mark shares his journey as both a professional and a patient, offering valuable insights into the limitations of the medical model and the importance of viewing health holistically.Key Discussion Points:Mark's journey into counseling and his experiences with chronic ...
Send us a Text Message.In Episode 5, Part 2 of Occult Awareness, Dr. Hillary Merry continues her deep dive into the critical issues of Craniocervical Instability (CCI) and systemic medical neglect. Part 2 of the conversation, Dr. Hillary Merry continues to uncover the hidden flaws in the medical system, focusing on how often critical tests are dismissed, and the consequences this has on patients with conditions like Craniocervical Instability (CCI). She highlights the systemic negligence...
Send us a Text Message.In this episode of Occult Awareness, we explore the personal and professional life of Dr. Hilary Merry, a veterinarian who has bravely faced the challenges of living with Ehlers-Danlos Syndrome (EDS) and multiple comorbidities. In part one, Dr. Merry shares her journey from experiencing early symptoms as a child to receiving a formal diagnosis at the age of 27. She opens up about the struggles and triumphs of navigating a healthcare system that often overlooks comp...
Send us a Text Message.In this episode of the "Occult Awareness" podcast, host Amy dives deeper into Aella's journey, exploring the complex and often frustrating realities of living with a chronic illness. From misdiagnoses and systemic healthcare issues to the everyday challenges faced by those with Ehlers-Danlos Syndrome (EDS) and other connective tissue disorders, Aella shares her experiences with raw honesty and courage.Join us as we discuss:The impact of stigmatization and misdiagnosis i...
Send us a Text Message.In this gripping episode of Occult Awareness, Aella Askew bravely shares her harrowing journey through a maze of undiagnosed chronic illnesses and medical gaslighting.From a childhood filled with pain and dismissed symptoms to a life-altering spine injury, Aella's resilience shines through as she fights for answers and validation. Join us as we delve into the complexities of invisible illnesses, the power of self-advocacy, and the importance of finding community and sup...
Send us a Text Message.Marika emphasizes the importance of grieving and finding joy in daily life despite the difficulties. The hope is that the conversation will help others feel less alone and inspire better care in the medical field.In this episode of the "Occult Awareness" podcast, host Amy Wang-Hiller interviews Marika, who shares her journey navigating complex health conditions. Marika discusses living with Loeys-Dietz syndrome (LDS), a connective tissue disorder with various symptoms l...
Send us a Text Message.In this deeply personal episode, join Amy as she shares her harrowing journey through a labyrinth of medical mysteries that span years of misdiagnoses and ineffective treatments. From the initial shocking symptoms following a float tank session to the life-altering diagnosis of Ehlers-Danlos Syndrome and related complications, Amy's story is one of resilience and relentless pursuit of answers. Delve into her experiences with sudden paralysis, chronic pain, mental health...
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