Let's Talk About The POTS life

In this episode, Ryenn shares her journey from misdiagnosis to managing POTS and vascular conditions, highlighting the importance of persistence, proper diagnosis, and lifestyle modifications. Her story offers hope and practical insights for others navigating similar health challenges.In this episode, Ryenn shares her journey from misdiagnosis to managing POTS and vascular conditions, highlighting the importance of persistence, proper diagnosis, and lifestyle modifications. Her story offers hope and practical insights for others navigating similar health challenges.This episode is sponsored by Re-Lyte Hydration Electrolyte Powder.Click on the link below and use the code: KELSEY to receive 15% off your first order.redmond.com/kelseyIf you want more information about what Dr. Kelsey can do for your POTS journey:https://thepotslife.com/This podcast was produced and edited by Ashlyne Blue at Small Batch Sound.https://www.smallbatchsound.com/

In this episode, Kelsey and her husband Cale discuss the journey of living with POTS, diagnosis, treatment, and how it has impacted their family life. They share insights, challenges, and advice for others navigating similar experiences.

Living with chronic pain, hypermobility, POTS, or other complex conditions can make it difficult to connect the dots. In this episode, I sit down with Dr. Linda Bluestein, a board-certified physician specializing in connective tissue disorders, to discuss the connections between hypermobility, Ehlers-Danlos syndrome (EDS), POTS, mast cell disorders, and chronic pain.Dr. Bluestein shares her personal journey, why these conditions are so often missed, common misconceptions, and practical strategies for improving quality of life. We also discuss her MEN'S PMMS framework and the importance of individualized, patient-centered care.Whether you're newly diagnosed, supporting a loved one, or a healthcare professional looking to better understand these conditions, this conversation offers education, validation, and hope.Connect with Dr. Linda Bluestein:Website: https://www.hypermobilitymd.comInstagram: @hypermobilitymdPodcast: Bendy Bodies with Dr. Linda BluesteinConnect with Us:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

Receiving a POTS diagnosis can be both validating and overwhelming. After finally getting answers, many people are surprised to learn there isn't a quick fix and that managing POTS often requires consistent lifestyle changes over time.In this episode, we talk about the emotional side of life after diagnosis, including grieving your old life, learning to let go of constantly pushing through, and building a support system that truly understands what you're going through. We also discuss practical strategies for focusing on what you can control, including hydration, electrolytes, gradual exercise, and creating habits that support long-term improvement.If you're newly diagnosed or still learning to navigate life with POTS, this episode is a reminder that you're not alone and that while the journey isn't easy, it can get better.Connect with Us:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife

Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy.In this episode of Let's Talk About the POTS Life, Kelsey sits down with Dr. Seeley to discuss her journey from developing POTS after a post-viral illness in 1993 to helping change the future of care for people living with POTS and dysautonomia around the world.Together, they discuss:Dr. Seeley's personal journey with POTSWhy so many patients are dismissed or misdiagnosedThe connection between POTS, Ehlers-Danlos syndrome (EDS), and hypermobilityWhy women with POTS often face unique challenges in healthcareWhy we're experiencing an "epidemic of recognition," not an epidemic of POTSThe future of POTS research, advocacy, and patient careWhether you're newly diagnosed or have been living with POTS for years, this conversation offers insight, validation, and hope from someone who understands the condition from every perspective as a patient, clinician, researcher, and advocate.Learn more about the Australian POTS Foundation: https://potsfoundation.org.auConnect with Us:⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Facebook: The POTS LifeInstagram: @thepotslife_Tik Tok: thepotslife