Amplify: A Podcast Powered by Patient Voice Partners

Who gets to define what matters to patients in clinical research? Martine Elias, CEO of Myeloma Canada, joins Ursula Mann and Anne-Marie Hayes to explore why meaningful patient involvement must go beyond asking doctors what patients want. From clinical trial design and treatment side effects to access barriers and research priorities, Martine shares how patient organizations connect people, challenge assumptions, and turn lived experience into action. Episode highlights 02:56 — From saving wh...

What does it take to turn lived experience into lasting change for patients? Gail Attara joins Ursula Mann and Anne-Marie Hayes to share how growing up with a mother living with Crohn’s disease shaped her commitment to advocacy. Together, they explore the impact of inflammatory bowel disease beyond the gut, the importance of medication coverage, and the work behind patient organizations. Gail also offers candid insights into funding, accountability, and what meaningful collaboration requires ...

Pregnancy complications can affect a woman’s health long after delivery—but those connections are not always recognized. In this episode of Amplify, Ursula Mann and Anne-Marie Hayes speak with Bonnie about her experience with HELLP syndrome, a rare and potentially life-threatening pregnancy complication involving the blood and liver. At 36 weeks pregnant, Bonnie developed high blood pressure, a severe headache, and vomiting, leading to an urgent induction and the early delivery of her first c...

Episode Summary When Kathleen “Kathy” Barnard noticed two small spots on her arm, she had no idea they would lead to a diagnosis of metastatic malignant melanoma—and a prognosis of just three to six months. In this episode of Amplify, Kathy shares the extraordinary story of how persistence, family advocacy, compassionate-access treatment, and emerging immuno-oncology gave her another chance at life. She also speaks candidly about the gaps she encountered throughout her journey, from an initia...

This episode is part of Amplify’s special three-part series on Chronic Hand Eczema, sponsored by LEO Pharma Canada. Across this series, we’ve explored Chronic Hand Eczema through three deeply connected perspectives: the lived experience of patients, the professional realities of healthcare workers, and the clinical understanding of a condition that is often underestimated. In the first episode, Amy Wright shared what it is like to live with Chronic Hand Eczema — how painful, visib...