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© 2026 originALS: more than ALS
Description
originALS: more than ALS steps into the world of the incredible people affected by Amyotrophic Lateral Sclerosis or ALS. In each episode, hosts Flynn Mason and ALS Canada Community Ambassador Hayley King highlight firsthand experiences of one special guest. From the challenges of diagnosis to the passions that make each one of us unique, you’ll hear stories of hope for all that is possible, even in the face of a devastating disease. Whether you’re here for inspiration, to learn more, or to feel the power of a community coming together, originALS: more than ALS is for you.
10 Episodes
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Send us Fan Mail “They’ve found cures for other diseases in my lifetime. Why not me in my lifetime?” Jason Ritchie is a 49-year-old husband and father of two with a simple motto when it comes to participating in ALS research: the more invasive, the better. While Jason would never call his June 2024 diagnosis a gift, he tells us it's clarified what's important to him in life and pushed him to pursue his goals without hesitation. For Jason, this means blending meaningful time with family and fr...
Send us Fan Mail "We have invented a molecule in Manitoba. We are friendly Manitobans. And we will extend this friendliness globally." Nitesh Sanghai became a friendly Manitoban in 2018 when he moved to Winnipeg from India to work under Dr. Geoffrey K. Tranmer as a post-doctoral candidate at University of Manitoba. Dr. Tranmer posed a tough challenge: synthesize a new molecule to help treat ALS. Nitesh hadn't heard of ALS, but inspired by his late father's words to "do somet...
Send us Fan Mail "...even if my voice waivers, I'm still going to speak out and I'm speaking out because Greg can't speak." There are many words one could use to describe Jodee Karlowsky - creative mind, passionate leader, persistent advocate, dedicated caregiver, CALI grad, animal lover, instant grandma - the list goes on. But if you ask Jodee what brings the most joy to her colourful life, she'll tell you it's her husband, Greg. After 15 years of marriage and 9 months of m...
Send us Fan Mail “I am now proving this disease is treatable.” 75% of Paula's extended family on her father's side is affected by familial ALS. Diagnosed in 2016, Paula has found life-saving treatment in the form of Tofersen, the first gene specific ALS therapy. She now works in advocacy at provincial, national, and global levels to develop expedited pathways in the drug approval process, striving for a future where ALS patients can access treatment before their lives are taken. Join us as we...
Send us Fan Mail "I want to do it. Give me a minute. I’m looking disabled, it might not be graceful, but I want to do it. Or at least try to do it.” Shawn Penno is a bright light of positivity in the ALS community. After his diagnosis in 2023, Shawn has become an active participant in ALS advocacy and research, determined to move the needle towards a cure in any way he can. Guided by his mantra, "Do what you can, while you can," Shawn is a beacon of hope for his fellow PALS. Join us as we dis...
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