DiscoverParkinson's Policy Podcast
Parkinson's Policy Podcast
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Parkinson's Policy Podcast

Author: Power Over Parkinson's and Together for Sharon

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From Washington, DC, at the U.S. Capitol and beyond, we bring together Senators, Representatives, researchers, and advocates to amplify the voices of people living with Parkinson’s disease. 


The Parkinson’s Policy Podcast brings two Parkinson’s advocates together, George Ackerman (TogetherForSharon) and Margaret Preston (Power Over Parkinson’s) to create a higher level of awareness about Parkinson’s Disease, the fastest rising neurological disorder. Both touched by the disease, George and Margaret are passionate about advocating for those with the disease, and for all those caring for someone with the disease by hosting lawmakers who can help form policies that aide this growing community.

25 Episodes
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In this episode of the Parkinson's Policy Podcast, we speak with Leah Barber of the Neuro Challenge Foundation for Parkinson's. Discover how community-led organizations provide essential local resources, continuous education, personalized care advising, and specialized support to empower individuals living with Parkinson's disease and their families.
In this episode of the Parkinson's Policy Podcast, we sit down with Peter Bauer from the Centers for Medicare & Medicaid Services (CMS). Join us for an informative conversation exploring how Medicare and Medicaid policies impact care coverage, access to specialized therapies, and policy support for individuals living with Parkinson's disease.
Patient engagement isn't just a checkbox, it's an essential component of impactful health policy and effective clinical research. In our latest episode of the Parkinson's Policy Podcast, we interviewed Israel Robledo, a prominent advocate and veteran clinical trial participant who has devoted years to bridging the gap between patient communities, research institutions, and policymakers. Key takeaways from our conversation: - How patient advisory boards improve trial recruitment and retentio...
What does the National Plan to End Parkinson’s Act mean for research, clinical care, and patient outcomes? We’re joined by Dr. Alice Chen-Plotkin, a leading physician-scientist and non-federal public member on the newly formed federal Advisory Council on Parkinson's Research, Care, and Services. Dr. Chen-Plotkin breaks down the Council's vital mission to advise the Secretary of Health and Human Services, the cutting-edge science behind Parkinson's biomarkers, and how national strategy can t...
Is the rising incidence of Parkinson’s disease connected to the chemicals in our environment? In this episode of the Parkinson’s Policy Podcast, we sit down with the renowned Dr. Deborah Cory-Slechta, Professor of Environmental Medicine, Pediatrics, and Neuroscience at the University of Rochester Medical Center. Dr. Cory-Slechta breaks down decades of pioneering research into how environmental exposures including agricultural pesticides like Paraquat, industrial solvents, heavy metals, and f...
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