(Audio)Bladder Exstrophy: Living, Thriving & Advocating | Thomas Exler Shares His Journey
Description
In this powerful and insightful episode of UroNurse News, host Vic Senese, RN, BSN, FAUNA, sits down with Thomas Exler, Vice-President of The Association for the Bladder Exstrophy Community (A-BE-C) and a patient living with bladder exstrophy, to discuss life with this rare congenital condition.
Thomas opens up about his personal journey, challenges, and triumphs living with bladder exstrophy — from childhood through adulthood — and how advocacy, education, and community support play a vital role for patients and families affected by this condition.
You’ll learn about:
✅ What bladder exstrophy is and how it impacts patients
✅ Advances in surgical management and patient care
✅ The importance of building a strong community for patients and caregivers
✅ How advocacy organizations like A-BE-C are improving outcomes worldwide
Whether you’re a patient, caregiver, clinician, or simply someone interested in rare urologic conditions, this conversation sheds light on the realities and the hope for those living with bladder exstrophy.
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The expert's opinions in this communication are personal and not representative of any organization. They are for informational purposes only, not official guidance. Viewers are advised to use their judgment, seek additional advice, and take responsibility for any actions based on these opinions.
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