In today’s episode, I had the privilege of speaking with Pat Furlong, the founder of Parent Project Muscular Dystrophy (PPMD). Pat’s journey from adversity to powerful global leadership is truly inspiring.

Following the devastating loss of her two sons to Duchenne muscular dystrophy, Pat channeled her grief into a powerful global movement. This movement has reshaped the landscape of rare disease advocacy and research.

What began as a mother’s quest for answers blossomed into a pioneering organisation that empowers families and accelerates treatments. Pat’s story is a testament to vision and persistence, showcasing how a single voice, driven by purpose, can mobilise a global community and inspire transformative change in the healthcare world.

Rare Mind Talks podcast explores how rare diseases and healthcare is transformed by AI, data, and innovation. Hosted by André Correia, a rare disease advocate and digital transformation leader, this Podcast aims to simplify complex topics, inspire research, and connect experts to improve lives.

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