#122: Living with MS in South Africa. Insights from Advocate & MSSA Vice-Chair Christelle Taute
Description
In this powerful and heartfelt episode, I speak with Christelle Taute, Vice-Chair and Treasurer of the Multiple Sclerosis Society of South Africa (MSSA). Christelle shares her personal MS journey spanning over two decades, including her experience with a stem cell transplant, how she built resilience, and her passionate advocacy work in South Africa.
💚 Whether you're newly diagnosed, living with MS for years, or supporting someone with MS, Christelle's story offers hope, honesty, and practical insight.
👉 Full blog post with transcript:
https://ms-perspektive.com/122-christelle-taute
🔑 Topics covered
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Christelle's MS diagnosis story and early challenges
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Choosing (and delaying) treatment in the South African system
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Undergoing aHSCT in 2015: how, why, and what changed
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How gratitude and structure help her navigate daily symptoms
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Her advocacy work with MSSA and participation in the May 50K
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Thoughts on what needs to change in MS care in the future
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Her wishes, goals, and advice to her younger self
🔗 Resources & Links mentioned
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MSSA – Multiple Sclerosis Society of South Africa:
https://multiplesclerosis.co.za -
Christelle's blog on her stem cell journey (archived):
https://christelletaute.wordpress.com/ -
MSIF – Multiple Sclerosis International Federation:
https://www.msif.org -
The May 50K Campaign:
https://www.themay50k.com - Interview with Prof. Roland Martin on aHSCT:
https://ms-perspektive.com/40-ahsct-roland-martin/ - Interview with Prof. Christoph Heesen on aHSCT:
https://ms-perspektive.com/115-ahsct-heesen/ - Interview with Dr. Claudia Marck on smoking and MS:
https://ms-perspektive.com/014-smoking/
📬 Stay connected
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💌 For more inspiration, visit ms-perspektive.com
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See you soon and try to make the best out of your life,
Nele
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