158: Always a Work in Progress: Growth through Movement, Connection, and Adapation with Elissa
Update: 2025-10-28
Description
Join Tim and special guest Elissa for a deep conversation covering topics including:
- How FSHD can affect post-partum healing
- Finding a physical therapist who explains exercise in your “language,”
- Caring for your body and mind, and
- Learning to own your FSHD and it’s progression
Despite living with FSHD for over two decades, this was Elissa’s first conversation with another person living with FSHD. Her conversation with Tim is evocative, meditative, and a true testament to how living with FSHD is a complicated mixture of connection, movement, growth, and adaptation.
No one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone.
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD.
If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media.
Email: FSHDRadio@FSHDSociety.Org
You can find new episodes on YouTube and Facebook. You can also listen to the episode on your favorite podcast app. Subscribe on YouTube or your podcast app to make sure you never miss an episode!
No one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you’ll find yourself in these episodes and know you are not alone.
On the second and fourth Tuesday of every month, listen for a new episode of FSHD Straight Talk with Tim Hollenback! These episodes highlight members of the FSHD Community who are living rich, full lives and diving into their experiences with FSHD.
If you would like to share your experiences living with FSHD, please reach out via email or send us a message on social media.
Email: FSHDRadio@FSHDSociety.Org
You can find new episodes on YouTube and Facebook. You can also listen to the episode on your favorite podcast app. Subscribe on YouTube or your podcast app to make sure you never miss an episode!
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