What would you do if your newborn was diagnosed with a fatal rare disease at just 7 days old?
In this powerful episode of Rising Up Rare, host Allie Ladd, Executive Director of the Kennedy Ladd Foundation, speaks with Emma Mizer, mom to 18-month-old Lincoln, about their raw and emotional journey through diagnosis, treatment, and hope.
Together, they share the launch of the "Cure MPS 1 Project," how early diagnosis changed everything, and why community and advocacy matter now more than ever.

💜 Learn More: KennedyLadd.org
💜 Support the Cure: Lincoln.CureMPS1.org

Timestamps:
0:00 – Introduction and Emma's Story
6:45 – The Life-Changing Diagnosis Call
15:10 – Bone Marrow Transplant Journey
30:00 – Emotional Resilience and Finding Hope
45:00 – The Cure MPS 1 Project and Next Steps

#CureMPS1 #KennedyLaddFoundation #RareDiseaseAwareness #HopeForLincoln #FamilyStories