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BEING EMMA – Living My Best Life with Butterfly Skin

BEING EMMA – Living My Best Life with Butterfly Skin

Update: 2025-10-09
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Emma Fogarty, Ireland’s oldest living person with the rare skin condition Epidermolysis Bullosa (EB), has never let her diagnosis define her.

In her powerful new memoir Being Emma, with an introduction by Colin Farrell, she shares her remarkable story of courage, friendship and resilience, proving that even with “butterfly skin,” she can still live her best life.

Alan Morrissey spoke with Emma on Thursday's Morning Focus.

Photo (c) TheBookshop.ie
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BEING EMMA – Living My Best Life with Butterfly Skin

BEING EMMA – Living My Best Life with Butterfly Skin

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