Becky Quick's Daughter's Rare Disease Fight
Update: 2026-01-08
Description
Becky Quick, CNBC anchor, shares her daughter Kaylies journey with a rare genetic disease, SYNGAP1. Despite initial signs of normal development, Kaylies seizures, developmental delays, and intellectual disabilities became apparent. The family faces daily challenges, including apraxia and sensory overload, but finds hope in therapy and advancements in gene therapy, AI, and new treatments. CNBC Cures is advocating for faster cures, urging listeners to sign up for their newsletter or attend their first summit in March. Checkout Solipillow.com
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