DiscoverGenomics GupshupDhanya Ravi : Rare but Real - Living with a rare disease | Genomics Gupshup Episode - 30
Dhanya Ravi : Rare but Real - Living with a rare disease | Genomics Gupshup Episode - 30

Dhanya Ravi : Rare but Real - Living with a rare disease | Genomics Gupshup Episode - 30

Update: 2023-03-29
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👉A rare genetic disorder called Osteogenesis imperfecta (OI) from birth gave Dhanya Ravi (Disability Evangelist)more than 200 broken bones, but it didnt cursh her spirit or shatter her dreams. In this Rare Disease Day special episode(Episode# 30), listen to Dhanya Ravi’s inspiring life story and how she became an advocate for those living with rare diseases.

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▬ Contents of this video ▬▬▬▬▬▬▬▬▬▬
00:00 - Intro
02:01 - Dhanya Ravi's journey.
04:20 - How the disease was diagnosed by the doctors?
06:29 - How communities have contributed.
09:30 - Was homeschooling simple?
13:47 - Should the physical infrastructure be changed?
20:24 - How did you discover the positive aspects of life?
23:35 - Some of Dhanya Ravi's best moments
25:10 - Information on Rare Disease Day
28:19 - Do you believe that awareness and acceptance are important?
33:36 - Was it difficult to make friends, and how can we make a difference?
39:09 - Why genetic testing is important?
42:44 - Are people afraid and unaware of Rare Disease Conditions?
49:10 - Guidance for those with Rare Disease Conditions.
50:48 - How did you start out as a writer?
52:25 - A prose by Dhanya Ravi
54:35 - Rapid Fire

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Dhanya Ravi : Rare but Real - Living with a rare disease | Genomics Gupshup Episode - 30

Dhanya Ravi : Rare but Real - Living with a rare disease | Genomics Gupshup Episode - 30

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