Down Syndrome, Regression Disorder, and the Link to Alzheimer's 

Lori La Bey talks with Nancy Poland, who has been a guest on our show before. Through her company, Grace's Message, she is an author, speaker, and trainer. Nancy says, with grace and hope, she provides written and spoken communication on caregiving, loss, and other valuable topics.

Jodie Johson has supported her son Zachary's journey with Down Syndrome and Acute Myelogenous Leukemia at age 6 months. In honor of Zachary, in 1993, Jodie and her husband Scott started The Zachary Johnson Kids with Cancer Fund at Riverwood Healthcare Center, their local hospital foundation. They also give out monetary gifts to kids with cancer in their surrounding area. They have helped over 103 children. Jodie is here today to share about Zachary's diagnosis with Regression Disorder and the link to Alzheimer's. 

Learn:

1. Hear about Jodie’s son, Zachary, and her family's journey with Down Syndrome.
2. Jodie shares early signs of Down Syndrome Regressive Disorder, known as DSRD.
3. Find out how DSRD and Alzheimer's relate to one another.
4. Hear about studies for those diagnosed with Down Syndrome and dementia-related brain disorders, and what the current findings have been.
5. Jodie speaks about what it is like to be an aging caregiver, and what the future looks like knowing Alzheimer's is going to be part of her son's journey.

Alzheimer’s Speaks Blog

https://alzheimersspeaks.com/down-syndrome-regression-disorder-and-the-link-to-alzheimers/

Watch the Video Interview Below

https://youtu.be/6GgNPyNr0e8

Listen and Subscribe to Alzheimer’s Speaks on Apple Podcast

hhttps://podcasts.apple.com/us/podcast/down-syndrome-regression-disorder-and-the-link/id986940432?i=1000729678275

Listen and Subscribe to Alzheimer’s Speaks on Spotify

https://open.spotify.com/episode/2eWoJPQstmN8thLp3Ko222

Go to Podlink to find Your Favorite Podcast platform

https://pod.link/986940432

Dementia Map

https://dementiamap.com/events/#!event/2025/10/2/a-mom-apos-s-life-with-her-young-adult-with-down-syndrome-regression-disorder-and-the-link-to-alzheimer-apos-s

 

Contact Information

Nancy Poland

Website  www.gracesmessage.com

Email  nancy.pola02@gmail.com

 

Jodie Johnson

Email   jodiescottj@gmail.com

 

Contact Lori La Bey with questions or branding needs at www.AlzheimersSpeaks.com

Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sound news, not just sound bites, since 2011.

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