In today’s episode, we chat with Taylor and Joey about their daughter Lily, who was born on February 25th, 2018. Two days after Lily was born, she was diagnosed with Zellweger syndrome.

During this episode, the couple talks about the ups and downs of the transition bringing Lily home and the grief of Lily passing away six months after she was born. Taylor and Joey discuss how their organization Lily’s List is helping other families in need and they also share details about how our listeners can get involved.

The couple mentions how grateful they are to many people who have helped during their journey, including family, friends, GFPD, along with the geneticist and hospital staff that took care of Lily.

You can follow the couple on Instagram @lilyslist2018! You can also access the Lily's List website at lilyslist.org.