A fellow CdLS dad, Gary sits down with Edgar to hear a father's perspective on having a child with Cornelia de Lange Syndrome (CdLS). Edgar, originally from Mexico, is the father of Daniel, a young boy with CdLS. Edgar shares his story of meeting his wife Ulzi, starting a family, moving across continents from Mongolia, back to Mexico and to Switzerland. He shares his journey with receiving the diagnosis, his role as a father and the challenges on accepting the diagnosis, the impact on their marriage and how Daniel has brought hope, growth and strength to their relationship and family.

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