DiscoverCoRDS CastEpisode 12 - The Alagille Syndrome Alliance
Episode 12 - The Alagille Syndrome Alliance

Episode 12 - The Alagille Syndrome Alliance

Update: 2019-06-01
Share

Description

In this episode, Austin and Alyssa speak with Roberta Smith, the President of the Alagille Syndrome Alliance, and Dr. Kamesh Surendran of Sanford Research.  Alagille Syndrome is a devastating rare genetic disorder that affects multiple organ systems.  Roberta is both a parent of a child affected by Alagille Syndrome, and a tireless advocate who brings a refreshing perspective on advocacy for rare disorders.  Dr. Surendran leads a team of researchers at Sanford who study developmental biology.  One of the main projects of his laboratory is investigating the genetics behind Alagille Syndrome, and they seek to learn more about the kidney phenotype of the disorder.  There is a ton of information in this installment of CoRDS Cast - enjoy!

Comments 
loading
00:00
00:00
1.0x

0.5x

0.8x

1.0x

1.25x

1.5x

2.0x

3.0x

Episode 12 - The Alagille Syndrome Alliance

Episode 12 - The Alagille Syndrome Alliance

Benjamin Forred