DiscoverCoRDS CastEpisode 36 - Cystinosis Research Foundation
Episode 36 - Cystinosis Research Foundation

Episode 36 - Cystinosis Research Foundation

Update: 2021-09-01
Share

Description

We are starting off September with a very inspiring story of two fathers who have children with Cystinosis. On this episode of CoRDS cast, Alyssa sits down with  Clay Emerson and Stephen Jenkins. Clay is a father to 6 year old Brooke who was diagnosed with Cystinosis at just 16 months. Stephen is a father of two sons diagnosed with Cystinosis, Sam and Lars. Cystinosis is a rare genetic metabolic disease that causes the amino acid, cysteine, to accumulate within the body’s cells. The build-up can cause damage to the tissues and organs including the kidney, eyes, muscles, liver and brain. Tune in to hear about the journey that Clay and Stephen took to become strong advocates for their children and for the community.

Comments 
00:00
00:00
x

0.5x

0.8x

1.0x

1.25x

1.5x

2.0x

3.0x

Sleep Timer

Off

End of Episode

5 Minutes

10 Minutes

15 Minutes

30 Minutes

45 Minutes

60 Minutes

120 Minutes

Episode 36 - Cystinosis Research Foundation

Episode 36 - Cystinosis Research Foundation

Benjamin Forred