Episode 45 – Centering Black Caregivers: Dementia Awareness, Advocacy, and Emotional Resilience
Update: 2025-05-21
Description
Episode Notes
Guest: Dr. Florence Johnson, Clinical Scholar and Research Fellow, University of Michigan School of Nursing, Institute for Healthcare Policy and Innovation
Hosts: Kristie King & Antonia Harbin Lamb
Topics Covered:
- Dr. Johnson’s personal caregiving journey and inspiration for her research
- Early signs of dementia and what families should watch for
- Cultural stigma and caregiver isolation in Black communities
- How dementia impacts caregivers emotionally, physically, and socially
- The importance of routine, validation, and music therapy in dementia care
- Burnout, guilt, and the physical health risks for caregivers
- Challenges Black caregivers face in seeking and accepting help
- The need for caregiver inclusion in healthcare systems and discharge planning
- Creating safe spaces for caregivers to share and access resources
- The role of clinical trials and Black brain health research
- Encouragement for Black families to participate in caregiving research
- Dr. Johnson’s call to center caregivers’ voices in interventions
Resources Mentioned:
Dr. Florence Johnson
Email: fujohnso@umich.edu
LinkedIn: Florence Johnson
Caregiver Conversations Podcast: caregiverpodcast@miseniors.org
Senior Regional Collaborative:
Website: www.semisrc.org
Email: info@miseniors.org
Phone: 888-341-8593
Neighborhood Legal Services – Elder Law and Advocacy Center:
Website: www.nlsmichigan.org
Phone: 313-937-8291
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