Episode 6: Aliya's Journey to a Cure
Update: 2025-11-29
Description
As people living with thalassemia and those who live with chronic illness and rare disease, we are especially grateful for medical advances and scientific breakthroughs. Join us as we talk with guest, Aliya Rinaldi, about growing up with thalassemia and then her journey towards a cure as one of the pioneer patients undergoing bluebird bio’s gene therapy trial for Zynteglo, Aliya’s story is some about courage, determination and hope. Aliya has been transfusion free for a decade and is still an active and integral part of the thalassemia community. We are so grateful to Aliya for paving the way for other patients who want to undergo gene therapy, which is now an FDA approved treatment.
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