DiscoverSCN2A InsightsExploring Families' Needs
Exploring Families' Needs

Exploring Families' Needs

Update: 2020-02-16
Share

Description

Families can find it challenging dealing with the healthcare system when children with genetic epilepsy and developmental epileptic encephalopathies are unwell. To help identify needs and plan towards improving services, Genetic Epilepsy Team Australia convened a roundtable including families, clinicians and researchers. In this episode Kris Pierce discusses the outcomes of the roundtable and plans for the future.


Hosted by Kris Pierce and David Cunnington, parents of Will, who has SCN2A.


Leave a review and subscribe via Apple Podcasts


You can also find SCN2A Insights on Spotify, and Google Podcasts or in your podcast app.


Links


See omnystudio.com/listener for privacy information.

Comments 
In Channel
Transition

Transition

2022-02-2021:42

Living With Epilepsy

Living With Epilepsy

2022-01-2935:16

Ciitizen

Ciitizen

2021-03-0914:50

Sleep in Autism

Sleep in Autism

2020-08-2213:58

Simons Searchlight

Simons Searchlight

2020-07-1722:20

SFARI

SFARI

2020-07-1725:16

Angel Aid

Angel Aid

2020-07-1325:45

Supporting Children

Supporting Children

2020-04-1816:58

Strategies for Carers

Strategies for Carers

2020-04-1814:57

COVID-19

COVID-19

2020-03-1709:37

Global Genes

Global Genes

2020-02-2816:24

Family Stories

Family Stories

2020-02-2348:30

Genetic Testing

Genetic Testing

2019-11-0929:59

loading
00:00
00:00
x

0.5x

0.8x

1.0x

1.25x

1.5x

2.0x

3.0x

Sleep Timer

Off

End of Episode

5 Minutes

10 Minutes

15 Minutes

30 Minutes

45 Minutes

60 Minutes

120 Minutes

Exploring Families' Needs

Exploring Families' Needs

SCN2A Australia