Getting Better

Getting Better

Update: 2018-09-2156
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Original broadcast date: February 10, 2017. We expect a lot of our doctors, but they don't always have the best tools to treat us. This episode, TED speakers explore new ways to think about disease, diagnosis, and the delicate art of healing. Guests include filmmaker Jennifer Brea, anesthesiologist Elliot Krane, law professor Dorothy Roberts, and cardiologist Paula Johnson.
Comments (6)

Krista Dawn

Jen's neurologist was wrong and failed to listen to her symptoms. He should have run a Lymes panel, tests for NMOSD, MS, Transverse Myelitis. He should have done MRI'S of the Brain and spinal cord along with a spinal tap. I had a similar situation happen to me. Was sick with a 48hour respiratory/ gastrointestinal virus. Two days afterwards I was dizzy all day long. I could not think straight and my words would mash together or I could not recall a word I needed to use. I was in terrible burning pain that ran down the base of my neck to the end of the rib cage and out along my back like angel wings. The first neurologist I saw did a brain MRI and a lumbar tap. He lied about the results of both. Said they were normal and sent me to PT which I failed. I became my own patient advocate as that I was an RN before all this hit me. I contacted the neurosurgeon who had done my lumbar laminectomy back in 2008. Fortunately, I had to get an MRI of my neck which showed lesions that ran from C2 to T4 on my spinal cord. I even got ahold of my brain MRI and my lumbar puncture which both had abnormal findings...lesions scattered throughout the brain and WBC's, along with a few RBC's and gram stained monoclonal cells. I went to another neurologist and he ran tons of blood work, looked at my MRI'S and by that time I had developed Optic Neuritis in my left eye causing partial color blindness in regards to shade differentiation. My legs were so weak I was using a walker. My arms were so weak that I could no longer lift more than 10 lbs. Turned out, I had Meniere's disease, Neuromyletis Optic Spectrum Disorder and later on developed MS as well. Later on I developed a subarachnoid cyst which had to be surgically removed and during the procedure it showed my spinal cord had atrophied. It was also twisted anteriorly to the left and nothing further can be done to correct it. So I stay in constant pain but post a drug called Lemtrada, my symptoms, especially the banding which would keep me from breathing.

Jan 20th
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Kristin Prior

Oh thank goodness. I thought I was going to go through a whole NPR podcast without hearing how horrible and racist white people are. Thank you NPR Radio Hour for the reminder!

Jan 10th
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Kali Huber

I'm 2 min in. welcome to the hell of lyme disease ( tick borne illness). your story here is one of many. the healthcare system denies us, and has no cure. bee venom therapy has saved my life and many others. many blessings to this woman. she is not alone. 300000 new cases a yr. test are less than 40% accurate. save your own life. check out bee venom therapy. melitin in honey bees has incredible properties.

Sep 25th
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Kali Huber

Kali Huber yup lyme disease. I'd bet my life if she treated for lyme instead of fibro shed have a new awakening.

Sep 25th
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Michelle Ma Belle

amazing podcast!

Sep 22nd
Reply

Becca Hall

while I agree with what she is conveying, it costs exponentially less to ask patients their race in order to find out clues about their ancestry and lifestyle than to do a genetic test on them to find out. I think racially biased doctors are likely mistreating patients based on the race they see in front of them than what's recorded on the chart so recording it or not probably doesn't make a huge difference to quality of care unfortunately :/

Sep 21st
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