INTERVIEW: Mariah Gillaspie
We are back this week and we are chatting with Mariah. Mariah is the mother of Emma & Abby, two adorable little girls that are the only two known people in the world with their rare disease. The Gillaspie sisters share a mutation on one of their genes that causes seizures and severe developmental delays. Mariah started the non-profit Lightening and Love Foundation to raise awareness, advance scientific research, a find a cure for diseases caused from a mutation in the THAP12 gene.
Support THAP12 >> https://findyourrare.com/collections/rare-aware-apparel/products/copy-of-greater-than-chronic-pain-t-shirt
Connect with Mariah and Lighting & Love Foundation
Foundation Website: www.lightningandlove.org
Foundation Instagram: https://www.instagram.com/lightningandlove/
Introduction Video: https://www.youtube.com/watch?v=5WyVp2dTR9c
Support the show (https://www.patron.com/findyourrare)