DiscoverBecause We Are StrongINTERVIEW: Nikki McIntosh & Rare Mamas
INTERVIEW: Nikki McIntosh & Rare Mamas

INTERVIEW: Nikki McIntosh & Rare Mamas

Update: 2021-02-23
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Nikki is immersed in the world of spinal muscular atrophy, rare disease, and special needs and has become a fierce advocate for these communities. Nikki has spearheaded various charitable events reaching families, sponsors, and donors, to raise funds for medical research. She has spoken in front of live groups of hundreds of people to share her family’s story and promote the need for further medical research and funding.

Nikki, her son Miles, and the McIntosh family have been interviewed and featured in various newspapers and magazines, and their rare-disease journey has been highlighted in several documentary films.

Nikki has represented the rare-disease parent voice to various biotech companies. Through interviews, podcasts, speaking, and writing, she sheds light on the challenges parents face while raising children with a rare disease. 

Nikki is the founder and creator of Rare Mamas, a resource and community to support rare disease mothers.

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Connect with Nikki:


E-Mail: nikki@raremamas.com
@rare_mamas
Rare Mamas

For speaking, press, or partnerships contact: media@raremamas.com


Support the show (https://www.patron.com/findyourrare)

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INTERVIEW: Nikki McIntosh & Rare Mamas

INTERVIEW: Nikki McIntosh & Rare Mamas

Theresa Thomas & Kristine Hoestermann / Guest: Nikki