Karen Johnson | Navigating an extended stay in the NICU to the PICU and beyond
Description
Some families move from the NICU (neonatal intensive care unit) to the PICU (pediatric intensive care unit) during an extended hospital stay. What is the Pediatric Intensive Care Unit? How do you manage an extended NICU and PICU journey? Today’s guest will share more about her family’s journey with their 26-weeker, Eli, navigating from an extended stay in the NICU to their journey in the PICU and beyond. Karen Johnson is a Nigerian born and raised, naturalized American with 20+ years of professional experience in the field of Information Technology. As she will share with you, though, none of her life’s experiences could have prepared her for the journey with her son, Eli.
On this episode you will hear:
• You will hear about Karen Johnson's pregnancy journey and how it affected her family;
• Karen experienced both the NICU and PICU, and she will tell you about the difference between the two;
• Karen's transition to the PICU;
• What helped Karen make it through each day;
• The importance of journaling and writing;
• How did Karen prepare to go home, after her extended stay in the NICU & PICU;
• What appointments you may need to schedule before discharge;
• What equipment you may need to learn about;
• How to navigate all of that;
• Karen's advice for other families coming home with equipment, from the NICU and PICU;
• What Karen's journey looked like the past several years, with her son Eli;
• Karen's biggest piece of advice for families navigating the NICU; and,
• How Eli is doing today.
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