Trigger Warning This episode discusses medical trauma chronic sorrow seizure activity and the emotional realities of caring for a medically complex child. Please take care while listening.

Today’s episode of For The Hayters shares Misty’s story of raising her seven year old son, Jackson, who lives with IQSEC2, a rare and severely debilitating genetic disorder. Misty opens up about the shock of a normal pregnancy, the sudden onset of seizures, the search for answers, and the moment she learned that her child’s diagnosis had no clear roadmap or cure.

She talks about the weight of being a full time caregiver, the grief of milestones that may never come, navigating a medical system that often makes survival feel like a fight, and the deeper purpose she has found in advocating for other families of medically complex kids.

This episode is a look into a kind of motherhood many people never see. The love. The fear. The strength. The chronic sorrow. And the small moments of joy that make everything worth it.

To connect with this week’s guest, you can reach her at: mistyroberts621@outlook.com

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If you or someone you know needs support, please visit:

IQSEC2 Research Foundation iqsec2.org

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