Living with Skeletal Dysplasia: Limb Lengthening, Language & Identity with Dr. David Feldman, Kristen DeAndrade, and Jennifer Edwards
Description
In this powerful episode, we dive into the lived experience and clinical realities of skeletal dysplasia—a rare condition that affects bone growth and body structure. Dr. David Feldman, world-renowned pediatric orthopedic surgeon at the Paley Institute, shares medical insight on treatment options, including limb lengthening and managing complex deformities.
Joining him are two extraordinary voices: Kristen DeAndrade, founder of the Little Legs Big Heart Foundation, and Jennifer Edwards, Family Liaison for Dr. Feldman. Together, they explore identity, advocacy, and the emotional journey behind the condition. Kristen shares her personal experience with limb lengthening, how it shaped her identity, and why she's fighting to create community and access for others.
This episode is a heartfelt look at what it means to live with skeletal dysplasia—blending clinical expertise with personal empowerment, representation, and community-building.
🎧 Tune in to learn, reflect, and grow—one step at a time.
#SkeletalDysplasia #LittlePeopleOfAmerica #LimbLengthening #DisabilityAdvocacy #OrthopedicCare #PaleyPodcast #DrDavidFeldman #LittleLegsBigHeart #RareDisease #PatientVoices #OrthopedicSurgery
United States
