Lucy from Instagram's Parenting_PANDAS talks about her family's journey
Description
In the last episode of the year, we talked to Lucy from Parenting_PANDAS on Instagram. Lucy shares her story with her 10,000-strong community, charting the hope and despair of life as a PANDAS parent. Originally posting about Pathological Demand Avoidance, she did not consider the diagnosis until one of her followers suggested PANDAS. Sadly, this is not an uncommon route to diagnosis! Since then, her daughter has had antibiotic treatment and is bumpily recovering.
It is a testament to her passion for raising awareness that Lucy manages to post about her family's journey, offering support, parenting hacks (dopamine bag, anyone?!), and hope for PANS/PANDAS parents worldwide.
Her insights and commitment are a wonder, and we are thrilled she is on this week’s PANS/PANDAS Stories.
As always, please like and share the podcast to raise awareness.
Happy Christmas and 2025, everyone!
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