This episode explores a mother whose child has been diagnosed with Sturge-Weber Syndrome, a rare neurological and skin disorder characterized by a facial birthmark and can also include, neurological abnormalities.

In this episode, Mallory Kilgore will take us through her family’s journey, from the initial signs and diagnosis to the everyday challenges and triumphs they encounter. She’ll share her insights on navigating the healthcare system, managing treatments and therapies, and finding the right support. We’ll also explore the emotional and social aspects of living with Sturge-Weber Syndrome and how it has impacted their family dynamics.

FOLLOW MALLORY KILGORE

https://www.instagram.com/mallory_rosol_kilgore/

https://sturge-weber.org/ The Sturge-Weber Foundation)

https://birthmark.org/

(The Vascular Birthmark Foundation)

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DISCLAIMER

This podcast has mature language and content. Moms ears only — don’t have this one on with your kids in the room. These are our opinions and experiences as moms, take what you like, or leave it. Don’t be thinking we’re telling you what to do. Seek professionals, do your research, and call the experts for help.

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