DiscoverTransformation Code with Sam ChurchRaising a Child With a Rare Disease | A Mother’s Journey of Faith and Overcoming Adversity
Raising a Child With a Rare Disease | A Mother’s Journey of Faith and Overcoming Adversity

Raising a Child With a Rare Disease | A Mother’s Journey of Faith and Overcoming Adversity

Update: 2025-11-06
Share

Description

What do you do when life doesn’t look anything like the picture you planned, when the dream you built suddenly collapses, and the only thing left to hold onto is faith?


In today’s episode of The Transformation Code, we sit down with Savannah Van Der Walt, a Cape Town mother whose journey of faith, resilience, and motherhood will redefine what true strength means.


When Savannah’s daughter Luna was born with Prader-Willi Syndrome, a rare genetic disease, doctors said she might never walk. What followed was a powerful story of heartbreak, perseverance, and unconditional love that pushed Savannah far beyond her limits.


This episode explores what it means to find peace when life doesn’t look the way you planned. You’ll hear how one mother turned pain into purpose, how faith carried her through nights in the NICU, and how emotional regulation became her anchor through chaos and uncertainty.


If you’re a parent, caregiver, or anyone navigating adversity, this conversation will help you rediscover hope, healing, and the courage to keep going when life feels impossible.


This episode dives deep into:

• What happens when life doesn’t look the way you planned

• The hidden strength of mothers raising children with special needs

• How trauma, faith, and resilience can exist in the same story

• The power of emotional regulation during crisis

• What it means to rebuild your identity when your dreams change


Watch this if you want to learn:


• How to find peace when life doesn’t match your expectations

• Tools for emotional regulation and mindset resilience

• The strength behind every mother’s invisible battles

• How faith and perspective can turn pain into purpose

• What true transformation looks like when love leads the way


00:00 Intro

00:42 The Call That Changed Everything

01:30 When Life Doesn’t Go the Way You Planned

02:18 The Diagnosis That Shattered a Dream

03:45 Surviving 31 Days in the NICU

05:12 The Moment Everything Fell Apart

06:30 When You Lose the Life You Imagined

08:02 “The Dream Isn’t Dead, It’s Just Changed”

09:44 Learning to Live in Survival Mode

11:16 The Hidden Grief of Motherhood

12:40 When Trauma From Your Past Reappears

14:03 How to Stay Grounded Through Chaos

15:25 Rebuilding Purpose After Pain

17:10 Why Perspective Changes Everything

18:36 The Power of Faith When Nothing Makes Sense

20:02 Emotional Regulation in Real Life

21:34 Finding Strength When You Have No Control

23:06 From Grief to Gratitude, The Turning Point

24:44 The Gift Hidden Inside Pain

26:18 What True Resilience Looks Like

27:59 Infinite Versions of You, The Courage to Begin Again


With gratitude,

Sam Church

Host, The Transformation Code Podcast


Support Luna’s Journey

If this story moved you, you can be part of Luna’s journey too.

Luna Rose was born with a rare genetic condition called Prader-Willi Syndrome, and her fight has inspired thousands across South Africa.


Her family continues to raise funds for her ongoing medical care, therapy, and support through “Luna Rose’s Fight to Inspire”, a verified campaign on BackaBuddy.


Donate here: https://backabuddy.co.za/campaign/luna-roses-fight-to-inspire~10



Every contribution, share, or prayer helps give Luna the care and opportunities she deserves.



Follow Savannah Van Der Walt

IG: https://www.instagram.com/ourloveatfirstlight/



Follow Sam Church

YouTube: @SamChurchOfficial

Instagram: @transformationcodepodcast

Facebook: facebook.com/samchurchuk

Comments 
In Channel
loading
00:00
00:00
x

0.5x

0.8x

1.0x

1.25x

1.5x

2.0x

3.0x

Sleep Timer

Off

End of Episode

5 Minutes

10 Minutes

15 Minutes

30 Minutes

45 Minutes

60 Minutes

120 Minutes

Raising a Child With a Rare Disease | A Mother’s Journey of Faith and Overcoming Adversity

Raising a Child With a Rare Disease | A Mother’s Journey of Faith and Overcoming Adversity

Sam Church