Rarebase explained and who is going to win the race, we don‘t care, we just need it fast.
Update: 2021-09-17
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- Rarebase (explained) and also, they helped us find another another family. Here is the press release: https://www.rarebase.org/post/rarebase-launches-a-neuroscience-drug-discovery-platform-collaborating-with-15-rare-disease-patient-organizations #FUNCTION #RareBase
- Cannonball 18 DAYS did you see this article? https://thealmanac.net/news/upper-st-clair-resident-plans-to-livestream-cross-country-ride-for-charity/article_09570da8-119f-11ec-b1a1-fbe2d9f2526a.html 3 dads driving across :us: and focusing on endurance, can you sponsor? https://www.syngapresearchfund.org/cannonball #UFDcure
- Billy shoes: 10% off with https://Syngap.Fund/Billy watch our interview at https://youtu.be/mAz1PT_JziE
- Company conversations: Q-State Pipeline
- Reminder, we are here to clear the path for whomever wins, we don't care who wins we want this race to be won.
- Have you bought your tickets to the Gala yet? 35 DAYS! https://www.syngapresearchfund.org/gala
- San Filippo has a 10 min podcast and we love it. Honestly, it's been a great way to connect and I urge everyone to try it out.
This was episode 27 of #Syngap10 - September 17th, 2021
#SYNGAP1 #epilepsyawareness #autismawareness #rarediseaseresearch #SynGAP #SynGAPResearchFund #CareAboutRare #PatientAdvocacy #GCchat #Neurology #Genetics #Pediatrics #epilepsy #autism #geneticcounseling #raredisease #Podcast #SYNGAP10
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