DiscoverThe FND PodcastThe FND Podcast| Inform the Doctors Campaign
The FND Podcast| Inform the Doctors Campaign

The FND Podcast| Inform the Doctors Campaign

Update: 2023-03-25
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Following on the episode "Hello Mr. Tom Plender" we talked about the Inform the Doctor campaign that FND ACTION has. With Toms permission we were able to record his explanation he had on this campaign and encourage you wherever you are in the world to utilise this campaign/information. It is a worldwide campaign and it's to help spread the awareness of the advancements of FND. To find out more head to FND ACTION website: www.fndaction.org.uk , follow Tom on his instagram : @tplender and have a look at his website at www.tomplender.com 

FND ACTION UK : FND AWARENESS DAY

https://www.fndaction.org.uk/fnd-awareness-day-uk/

Click on the link to participate

Including two paediatric consultants in FND:  if you are a parent and would like to participate especially you're more than welcome to join and ask questions. 

Inform the doctor:

https://www.fndaction.org.uk/fnd-action-campaign-informthedoctor-functional-neurological-disorder/

INTERVIEWS AND ARTICLES:
Sky News interviews Tom Plender: https://youtu.be/65ZR3E4dqko

GB News https://youtu.be/8EMspXvKWd8

I Newspaper article: https://inews.co.uk/inews-lifestyle/brain-disorder-stopped-walking-medics-often-miss-2200655

FND : Tiktok

https://www.tiktok.com/tag/fnd?lang=en

FNDPORTAL: follow him on twitterhttps://twitter.com/FndPortal?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor

Music: 

Winter at east darby by TAYME

Europian Sunrise by Anthony Catacoli

The FND Podcast with Detty acknowledges the traditional custodians of the land in which we stand, the Bundjalung, Awakabal, Djinduburi , Arawak, Boon wurrang & Wurundjeri People. The FND Podcast pays respect to their Elders past, present and emerging.

The FND Podcast with detty : song resonating at the moment maybe our song :

The new normal by Kahlid to hear it it is on our playlist or click below to view lyrics and listen on YouTube.

https://youtu.be/o3sXlxg4d5c

Here re two essential reads on FND that are highly recommended by Chrissie and now myself Click on the titles to gain access on the articles.

The Cadenza for fractured consciousness   From Medium.com on the fnd portal 

The Road to Functional Neurological Disorder by Gabriel Brownstein 

Also anything covid related and fnd here on neuro symptoms :

https://www.neurosymptoms.org/en/faq/covid-19-the-covid-19-vaccine-and-fnd-what-do-we-know/

A recent article written June this year what do you think ? From MJA 

https://www.mja.com.au/journal/2022/216/10/functional-neurological-disorders-australian-interdisciplinary-perspectiveWhat has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :) we have recently updated the list which features an eclectic list; itunes playlist : the fnd podcast with detty playlist or click on the link below for the playlist 

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

FND TSHIRTS BAGS MASKS AND MORE ; FND PODCAST MERCHANDISE-CLICK BELOW

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts featuring Friends of FND and FND will not hold me back : all proceeds going to FND Australia Support Services also FND Podcast merchanise check them out!

HELPFUL RESOURCES:

A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.

https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

Dr Mohsin Butt is an excellent doctor who explained what FND is perfectly click here to watch his explanation

https://www.tiktok.com/@drbuttgastro/video/7020472244954549510

https://www.neurokid.co.uk/\

A website for young people and families living with NEAD and neurological symptom

https://fndportal.org/

Amazing website with information and links to fnd

Information on Non Epileptic Seizures or NEAD

https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

FND Australia Support services App:

Android

https://apksos.com/app/fndaustralia.com

Apple

https://apps.apple.com/au/app/fnd-australia-support-services/id1613121706

Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is

https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: '

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
 

FND TOGETHER:

https://fndtogether.com/en


 

itsmeitsmeitsfnd

by none other than our Jake! 
https://www.tomplender.com/

Tom Plender : follow this amazing creative human his art, music and writing on fnd 

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer

https://pandoralocksmith.wordpress.com/about/

John McLeans Fnd Journey

https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

Lmtd Life with FND

https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

FNDer amplified: Meg Jacks follow on Instagram @ Meg.jacks_ TicTok: @megjacks

Instagram follow Emma’s journey :@emmas_fnd_fun

People Amplified on the FND Podcast by Maggies Corner ,brilliant incredible humans who you should look up / check out

Dylan Alcott

Athelete , paraolympics , podcaster , raising awareness and voices of the disabled

Instagram :@ listenable_podcast @dylanalcott

Website: www.abilityfest.com.au

 

Elle Stella</str

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The FND Podcast| Inform the Doctors Campaign

The FND Podcast| Inform the Doctors Campaign

Tom plender, odettecreates