DiscoverGlycoCast, a journey of families, sugars and rare disordersThe story of Alexa and PIGN-CDG
The story of Alexa and PIGN-CDG

The story of Alexa and PIGN-CDG

Update: 2023-09-06
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Hosts Karen Morici and Dr. Ivan Martinez will talk to CDG mom Ashleigh Linthicum and Dr. Andrew Edmondson from the Children's Hospital of Philadelphia about the story of Ashleigh's daughter Alexa and PIGN-CDG a rare disorder that is part of their family journey. For more information on congenital disorders of glycosylation please visit our sponsor at cdgcare.org.

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The story of Alexa and PIGN-CDG

The story of Alexa and PIGN-CDG

Ivan Martinez Duncker