What it's like living with Duchenne muscular dystrophy with Jared Pohle
Description
Elijah Stacy and Jared Pohle talk about what it’s like living with Duchenne muscular dystrophy and their plans for their futures. Get to know Jared and his experience with Duchenne on this latest episode of the Destroy Duchenne Podcast.
ABOUT DESTROY DUCHENNE PODCAST:
A podcast telling the stories of those affected by a fatal muscle wasting disease, Duchenne muscular dystrophy (DMD), that robs children of their ability to walk by the age of 11, the ability to raise their arms by their teenage years, and eventually their lives in their early 20s.
Hosted by 19 year old founder and CEO of the 501 (c)3 nonprofit organization Destroy Duchenne, Elijah Stacy, who also suffers from Duchenne muscular dystrophy.
The goal of the Destroy Duchenne podcast is very simple, yet ambitious: interview every person that has a relationship to Duchenne - people with Duchenne, parents, family members, friends, teachers, doctors - and tell their story to the world.
Destroy Duchenne is a registered 501 (c)3 nonprofit organization with the mission: to Complete the Cure™ for Duchenne muscular dystrophy by advancing gene-editing and gene therapy technologies, the future of medicine, into human practice.
Federal Tax ID: #82-3268952
United States
