DiscoverWhen Life Gives You Parkinson'sWhen You Know It’s Time to Fire Your Neurologist
When You Know It’s Time to Fire Your Neurologist

When You Know It’s Time to Fire Your Neurologist

Update: 2020-10-07
Share

Description

In this episode of When Life Gives You Parkinson’s, you will learn when and how to switch neurologists and what doctor’s find annoying about you.


It may be hard to believe, but doctors do not know everything about treating Parkinson’s disease. From ridiculous diagnosis stories, tragic treatment options, lack of empathy, the God complex and life altering misdiagnosis, many people with Parkinson’s have been through wringer and ultimately fired their neurologist.  


The doctor-patient relationship is critical for treating Parkinson’s. “It’s really important to have someone you can talk to openly and honestly and who listens to you,” says Dr. Rachel Dolhun, a board certified movement disorder specialist and Vice President of Medical Communications for the Michael J. Fox Foundation. “Parkinson's is really all about expressing how things are going on a daily basis, how your medicines are or aren't working, and how new symptoms are coming up or how symptoms are changing.”


In addition to Dr. Dolhun, this episode features conversations with a number of people with Parkinson’s including Dave Clark, Gil Thelan, and Jeanette Fisher-Pynn.


Thank you for listening. Add your voice to the show and leave a message for us here; https://www.speakpipe.com/WhenLifeGivesYouParkinsons


Follow us, Larry & Rebecca Gifford 


Twitter: @ParkinsonsPod


Facebook: Facebook.com/ParkinsonsPod


Instagram: @parkinsonspod


Follow Co-host and Producer Niki Reitmeyer


Twitter: @Niki_Reitmayer


Thank you to the following people featured in this episode…


Dr. Rachel Dolhun – Board Certified Movement Disorder Specialist and Vice President of Medical Communications for the Michael J. Fox Foundation. Hosts “Ask the MD” Blog and Videos.


 


Dave Clark – PwP, former Sky Sports television announcer, Parkinson’s advocate and fundraiser.


Gil Thelen – PwP, former President and Publisher of The Tampa Tribune, and author of “Counterpunch: Duking It Out With Parkinson’s.


Jeanette Fisher-Pynn – PwP, and featured in our “Misdiagnosis” episode


Also appearing…


Ellen Bookman – www.pdboxing.org and on Twitter @luvlivin3


David Ashford Jones – Former Pharmaceutical Executive turned Parkinson’s advocate


Jill Carson – PwP, founder of Parkinson’s Wellness Project in Victoria, BC


Kitty Fitton – PwP, www.kittyfitton.com     


Michael S. Fitts – Michael J. Fox Patient Council


Heather Kennedy – PwP, a.k.a. Kathleen Kiddo, featured in this previous episode on the darkness of depression.


Dr. Stuart Factor - Professor of Neurology, Director of the Movement Disorders Program and Vance Lanier Chair of Neurology at Emory University School of Medicine


Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call toll free hotline 1-800-565-3000, on Twitter @ParkinsonCanada


Thanks also to our content and promotional partners


Parkinson’s IQ + You– A free, series of Parkinson’s events from the Michael J. Fox Foundation


Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust. 


PD Avengers - We want to help end Parkinson’s disease. Join us.


World Parkinson Congress 2022 –Make plans to join us for #WPC2022 in Barcelona, Spain.

See omnystudio.com/listener for privacy information.

Comments 
00:00
00:00
x

0.5x

0.8x

1.0x

1.25x

1.5x

2.0x

3.0x

Sleep Timer

Off

End of Episode

5 Minutes

10 Minutes

15 Minutes

30 Minutes

45 Minutes

60 Minutes

120 Minutes

When You Know It’s Time to Fire Your Neurologist

When You Know It’s Time to Fire Your Neurologist

Curiouscast