Youngest UK MND Victim's Family Urges Awareness
Update: 2025-12-04
Description
The family of a 14-year-old boy, Kyle Sieniawski, who recently passed away from motor neurone disease (MND), is urging awareness and fundraising for research. Kyle, believed to be the youngest UK MND victim, was diagnosed at 13 and spent months at Noahs Ark Childrens Hospital. His father described their experience as horrific. Former rugby league star Kevin Sinfield met with the family, hoping to raise over £777,000 for MND research. Kyles family described him as a brilliant fighter with a vibrant personality, highlighting the urgent need for more research and understanding of MND.
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