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Your Story Our Fight by Lupus LA
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Your Story Our Fight by Lupus LA

Author: LupusLA

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Lupus LA enters the fastest growing media market with the new Your Story Our Fight® podcast which will give a voice to lupus patients while continuing Lupus LA’s mission to raise lupus awareness worldwide. Hosted by the Chairman of Lupus LA and lupus patient himself, Adam Selkowitz, patients from all walks of life will share stories about their unique lupus journeys. With a focus on inspiration and hope, Lupus LA’s podcast will provide support and optimism to a patient community looking for assurance that they are not alone.

62 Episodes
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Season THREE Episode TWELVE of the Your Story Our Fight® podcast welcomes Seda Bryant.  Seda Bryant is an overcomer, mother, graphic designer, storyteller & influencer. She’s using her gifts to turn pain into purpose. She created the first digital stickers for all social media platforms for stories, video reels, Tik Toks & Snaps for Lupus Awareness Month, World Lupus Day and to spread lupus awareness every day. They have amassed 2 million uses and views in less than a year. On Instagram @OvercomeLupus, her insightful posts provoke conversation and community for Lupus Warriors, by sharing stories while elevating awareness and promoting self-advocacy & discovery to thrive and overcome lupus.
Season THREE Episode TEN of the Your Story Our Fight® podcast welcomes Genny Mack. Genny Mack’s mission is to empower women to redefine what ‘eating good’ means and to thrive by prioritizing the whole self. Genny transformed her overall well-being, after being diagnosed with lupus and kidney nephritis, by transitioning to eating whole nourishing foods from mother mature and by practicing mindfulness, and now has more mental clarity, energy and purpose than ever before. This led her to become a Certified Holistic Nutritionist, Autoimmune Nutrition Specialist, Fitness Coach and Forager and has changed many lives through clean eating, movement, and mindfulness. Genny's hope is to empower 10K+ BIPOC women and communities by 2024 to live healthier lives, reverse generational traumas and to thrive.
Season THREE Episode NINE of the Your Story Our Fight® podcast welcomes Samantha Gehrls. Samantha Gehrls is a Lupus fighter and advocate who resides in Phoenix, Arizona. Sam is 27 years old and was diagnosed with Lupus when she was 25, but has been sick since she was 20. Sam is passionate about helping others get through difficult times and diagnosis, as she wants to spread the word to not give up! Through eastern and western medicine, Sam has regained so much of her life back and now is on a journey of healing and helping. She has had numerous surgeries and treatments for her 4 autoimmune diseases, but she doesn’t let anything stop her. In her free time, you can find Sam cuddled up on the couch with her 4 dogs, kindle, and watching reality tv or traveling around the country!
Season THREE Episode EIGHT of the Your Story Our Fight® podcast welcomes Amanda and Ahnna Chay. Amanda Chay is a lupus warrior and author of “The Girlfriend’s Guide to Lupus”. Her book serves as a beacon of hope for women grappling with lupus, providing practical, health-focused steps that empower them to prioritize their well-being. Amanda's oldest daughter, Ahnna, also navigates life with lupus while working in professional sports management. Together, as this dynamic mother-daughter lupus duo, they prove that no battle is faced in isolation. Their shared medical journey not only offers strength but also has a remarkable way of bringing light to even the darkest of days.
Season THREE Episode SEVEN of the Your Story Our Fight® podcast welcomes Eve and Margi McAusland. Eve is a 15 year old sophomore at Notre Dame Academy who has had lupus sense she was 13. Her mom, Margi, is a CPA and has had Sjogrens since 2019. Eve has been working through her diagnosis by finding ways to take care of herself through her web of support including her family, friends, doctors and lupus LA. While her journey has been hard she looks forward to being able to share it with others to raise awareness and let people know they’re not alone in their fight.
Season THREE Episode SIX of the Your Story Our Fight® podcast welcomes Sharan Singh. Sharan is a twenty-three year old UC Irvine graduate, a current healthcare worker, Content Creator on TikTok, Lupus Advocate/Warrior and a future Physician Assistant. Sharan is passionate about working in the field of Rheumatology in the future as a healthcare provider. She has implemented holistic healing into her own health journey and is an advocate for holistic healing for Lupus patients as it has helped her achieve optimal health despite her physical battles. She has perserveared through multiple joint replacements/surgeries and is passionate about giving back to the healthcare system that treated her. 
Season THREE Episode FOUR of the Your Story Our Fight® podcast welcomes Kay Daniels. Kay is a 25 year old independent model & actress, Lupus patient and advocate. At the age of 14, Kay was diagnosed with Lupus SLE. It has always been an aspiration of Kay's to have the opportunity of sharing my story with the world, to better relate with other young girls like herself. Kay wants to show them that all things are possible, and that Lupus does not define them, no matter how much it may feel that way.  
Season THREE Episode THREE of the Your Story Our Fight® podcast welcomes Victoria Gibbs. Victoria began practicing yoga ten years ago and from the first time that she stepped onto her mat, her passion was evident; shaping her into the woman she is today. Victoria is a Dartmouth College graduate, a former financier turned health and wellness entrepreneur, she is also a full time yoga athlete, instructor, model, influencer, digital content creator, and lupus warrior. Victoria genuinely believes in the mind-body benefits of yoga and has found that it has helped her to overcome mental and emotional struggles and supports her in maintaining optimal physical health while managing lupus. Today, she lives to share her journey through teaching, education, and content.
Season THREE Episode TWO of the Your Story Our Fight® podcast welcomes Ashley Greene. Ashley Greene is the Founder and CEO of Bare Bodhi.  Growing up in a salon with a hairdresser mother, Ashley developed a passion for beauty early on.  While assisting one of the biggest names in the industry, Ashley was diagnosed with lupus, which prompted her to embark on a mission to promote both internal and external wellness.  Her love for long nails and soft skin led her to create a patented flagship product, the fingerless exfoliating bath glove, designed specifically for women with long nails.  This product enables clients to achieve supple, smooth skin without compromising their manicures. Ashley believes that washing your body with your own hands has a spiritual approach, and her products enable users to connect with and awaken their light within.  With a focus on a holistic approach to beauty, Bare Bodhi is committed to promoting self-awareness and enabling individuals to serve their highest good.  Ashley continues to innovate and develop products that empower and uplift, all while inspiring individuals to embrace their inner beauty.
Season THREE Episode ONE of the Your Story Our Fight® podcast welcomes Shamekka Marty. In 2012, Shamekka was diagnosed with Lupus, Scleroderma, Mixed Connective Tissue Disease,Reynaud’s, and Sjogren’s Syndrome. Shamekka seeks to motivate others who are in the same boat as her. She speaks on various public platforms, has a blog, a vlog , provides career counseling, and more to help Lupus patients in their journey. She currently resides in the Bay Area in California with her husband and three children.
Season TWO Episode TWENTY-FOUR of the Your Story Our Fight® podcast welcomes Emmitt Henderson III. Emmitt Henderson III was diagnosed with Systemic Lupus and Lupus Nephritis in 1995 but had symptoms going back to 1980. Through the years, he has endured major complications from heart, liver, kidney and lung failures, avascular necrosis that led to a shoulder and knee replacement. He had a clinical trial, bone marrow stem cell transplant; he was on oxygen due to his lung failure and had a kidney transplant due to kidney failure. He was also diagnosed with Rheumatoid Arthritis, Sjogrens Syndrome, MTCD as well as he suffered from having a stroke, shingles, gout, chronic fevers, diabetes and hypertension. In 2019, Emmitt was diagnosed with a brain disease, that medically retired him from his career. He decided to advocate for the same disease that debilitated him since 1995 and to talk about how his mental health got him through it all. He created his organization called Male Lupus Warriors Corp to spread Lupus and Mental Health awareness. He holds a safe space for men to meet and talk about their hardships in life, he encourages everyone to not be a victim to their illness. Emmitt did an advocacy campaign in Tanzania Africa in 2022 which included climbing Mt. Kilimanjaro. During his climb, he suffered high altitude pulmonary edema and ended up going into kidney failure for the second time in his life. He is now currently doing dialysis and on the transplant list for another kidney. During this time, he still maintains his advocacy by being active on social media and facilitating support groups.
Season TWO Episode TWENTY-TWO of the Your Story Our Fight® podcast welcomes Olga Lucia Torres. A few years after law school, Olga was diagnosed with lupus and eventually the doctors found she had 4 other autoimmune diseases. Olga's health has never stopped her from following her dreams and attending Cornell University and Georgetown University Law School on scholarships. In August of 2000, Olga went to the hospital for routine medical care. She was supposed to be discharged in 2 to 3 days. Instead Olga ended up in a coma and with an iatrogenic brain injury. It took six years of inpatient and outpatient rehabilitation, but Olga managed to volunteer again doing health care law. Olga was inspired to return to school in 2012 where she found the Narrative Medicine program at Columbia University and in 2014,  received a Master’s in Science. She now teaches narrative medicine at the CUNY School of Medicine.
Season TWO Episode TWENTY-ONE of the Your Story Our Fight® podcast welcomes Melissa Walker. Melissa is a Medical Writer, with a biomedical research background focusing on traumatic spinal cord injury and traumatic brain injury. She earned her Ph.D. in Medical Neuroscience from Indiana University School of Medicine before returning to UCLA department of Neurosurgery, for postdoctoral research. She was diagnosed with Graves’ thyroid disease in 2002, and has had Hashimoto’s since 2003, after radioiodine ablation therapy. She was diagnosed with Systemic Lupus and Rheumatoid Arthritis in 2005, and Sjogren’s in 2016.
Season TWO Episode NINETEEN of the Your Story Our Fight® podcast welcomes Kellie Martin. Kellie began acting at the age of seven. She is most fondly remembered for playing Becca Thacher on the groundbreaking ABC family drama Life Goes On, for which she received an Emmy nomination. And, her portrayal of Lucy Knight, a precocious med student who met an untimely demise after two seasons on NBC’s ER, haunts viewers to this day. Kellie has been a been a regular on numerous series including, The Guest Book, Army Wives, Mystery Woman, and on Hallmark’s Hailey Dean, where she served as Executive Producer. Her television and feature film highlights include Troop Beverly Hills, A Goofy Movie, Malibu’s Most Wanted, Grey’s Anatomy, Private Practice, and Mad Men. She also served as leading lady for Hallmark’s beloved holiday movies, The Christmas Ornament and Christmas in Montana as well as rom-com favorites, Smooch, I Married Who?, and Hello It’s Me.In 1999, Kellie lost her nineteen year old sister, Heather, to lupus. So, Kellie took on a new role, one that she continues passionately to this day: national spokesperson for the Autoimmune Association. She works to raise awareness, lobbies Congress, speaks, and meets personally with patients and their families. Kellie is a Yale graduate with a degree in Art History. She co-authored a novel, Madam, which was published by Penguin in 2014. She’s currently writing on a new novel. Most recently, Kellie has been working with her Life Goes On co-star, Chad Lowe and All American show runner, Nkechi Okoro Carroll to reboot Life Goes On with Warner Brothers. She just directed Mistletoe in Montana for Lifetime and has been recording a new podcast with Chad Lowe entitled The Big Break. She lives on a suburban farm in California with her husband, Keith, daughters, Maggie (15), Olivia (5) and a bunch of goats, pigs, and horses. 
Season TWO Episode EIGHTEEN of the Your Story Our Fight® podcast welcomes J. Christopher Reed. Christopher Reed was diagnosed with lupus in 1990 at the age of 16. Despite several serious attacks to his organ system, he earned a bachelor’s degree with honors from the Georgia State University and a law degree from Tulane University. He managed his first job out of law school juggling lupus nephritis and horrible chemotherapy treatments.  After an 18 year career in litigation, Christopher has devoted his life to public health and health policy. He is the Policy, Advocacy, and Mobilization Manager for SisterLove, Inc. an organization that is devoted to eradicating challenges to reproductive health and HIV/AIDS. He is a contractor for the American College of Rheumatology, the University of Alabama, and the Lupus Research Alliance on three separate projects devoted to increasing minority participation in clinical trials. He is also an advocate, moderator, and writer for Lupus.net. He now serves as a Support Group Facilitator, Advocacy Chair, and Project Manager for the Lupus Foundation of America-Georgia Chapter. His support group, designed specifically for men, is the first of its kind in the United States. He was appointment by the state and then chaired the Georgia Council on Lupus Education and Awareness (Council) an advisory council created and funded by the state of Georgia. As Chair he established the Georgia Lupus Collaborative, a 60 person multidisciplinary advisory group and think tank charged with improving the lives of people with lupus in Georgia. He was one of twelve panelists chosen to speak at the historical Lupus Patient Focused Drug Development meeting in 2017. 
Season TWO Episode SEVENTEEN of the Your Story Our Fight® podcast welcomes Alma Torres. Alma is in her twelfth year working in education. Alma was diagnosed with lupus in the summer of 2009. In 2014, her younger sister was diagnosed with lupus. She went from lupus patient to lupus patient/care giver. In 2020, Alma's sister lost her battle with lupus. Since her passing, Alma has struggled with staying healthy, but no matter how she physically feels, she is thankful she gets to experience another day.
Season TWO Episode SIXTEEN of the Your Story Our Fight® podcast welcomes Valerie Gilkey and Marcella Lewis. Valerie Gilkey is a 55 year old woman suffering with SLE. She was diagnosed at the early age of 19. Despite doctors advising her of the dangers to her life as well as her child’s, with faith she gave birth to one daughter,  Marcella Lewis. Even though it was a challenge, Marcella was trained from the early age of 4 in all disciplines of dance, and is now  a world renowned dancer. Today, Valerie still gets her strength to fight so that she can continue to see her daughter grace the stages around the world. 
Season TWO Episode FIFTEEN of the Your Story Our Fight® podcast welcomes Zuriel Gibson.  Zuriel received her Lupus diagnosis and was told that she wouldn’t live past the age of twenty-four. After many bouts with depression, pain, addictions and hospital stays, she became discontent and decided to use her pain to propel her into purpose. As a lupus survivor and advocate, she has become a much sought after speaker. Her message, “There is purpose in your pain”, has been shared on numerous media outlets such as The Kingdom Broadcast Network, Destiny Channel TV, Something Good is About to Happen, The Ladies Room Radio Broadcast and more. 
Season TWO Episode FOURTEEN of the Your Story Our Fight® podcast welcomes Cambria Francesca. Life plans were sidelined when she woke up one night to an excruciating pain. A constant pain that she has now grown so accustom to that she no longer remembers what it felt like to be painless. Having a sister with SLE and a father with Discoid, Cambria's mother knew that there’s 11 criteria for a Lupus diagnosis and that a low white blood cell count falls under one of them. They ran tests and confirmed, she has Systemic Lupus Erythematosus.While recovering in the ICU, after other illness had threatened her life, she used her trauma and pain as inspiration to pursue a career as a plus size model. Fast forward a little over a year and Cambria has become Plus Model Magazine’s Model of the Month for their March 2016 issue. That same year, she was chosen to walk for Full Figure Fashion Week. Now, 6 years later, Cambria gets to work with brands who are inspired by the diversity of the world we live in.
Season TWO Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Judith Mills. Judith Mills is a Biomedical scientist, a TEDx speaker, an adjunct professor, lupus & disability advocate. October 1999, Judith's Lupus diagnosis was a relief after 3 years of constant doctors visit with symptoms of fatigue, loss of appetite, body aches, and hair loss. It shattered her dreams of being a beauty pageant queen, a modern dancer, and the next Flo-Jo. Judith has been featured on online platforms such as Blackman Can, Rizzar, Scoop it, and others. She is the recipient of the 2012 Black Street "Black Celebration" Award winner for Non-Profit. K-hitz & affiliates for recognizing selfless dedication & contributions to the betterment of Ghanaians & immigrants in the USA award. She has also received Uptown Honors nomination and 2017 3rd Annual AEUSA winner of Best Community Award of the Year.
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