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Real life experiences, practical advice and everything in between. Whether you are diagnosed with Neuroendocrine Cancer or another rare or less common cancer, our podcast series cover topics from initial diagnosis, treatments and follow up, looking after your mental health and the professional perspectives from those involved in your care. Hosted by Catherine Bouvier and produced by Neuroendocrine Cancer UK. We hope this series answers some of your questions or provides a source of support - or both, after all, this is not just NE cancer.
36 Episodes
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In this episode of the "Not Just NE Cancer" podcast, host Cathy sits down with Porfessor Martyn Caplin, Gastroenterologist, Neuroendocrinologist and Neuroendocrine Cancer UK Patron, for an insightful conversation about the development of understanding and care for neuroendocrine cancer.Prof. Caplin discusses how artificial intelligence (AI) could revolutionise medicine and improve the early diagnosis of rare diseases. He shares his journey into the field of neuroendocrinology, recalling the b...
Delve into the complexities of clinical trials within the rare disease landscape in this podcast episode. Explore firsthand the journey of a patient participating in a pharmaceutical trial and gain valuable insights into initiating conversations about accessing clinical trials. Discover the significance of patient registries and the genesis of the Rarecan organisation, dedicated to supporting individuals with rare diseases. Intrigued? You too can contribute to RareCan's impactful work. Select...
In this insightful podcast episode, Catherine Bouvier, CEO of Neuroendocrine Cancer UK, engages in a heartwarming conversation with Rachael, a resilient mother who navigated the challenges of work, pregnancy, and motherhood following a diagnosis of neuroendocrine cancer at the young age of 32. Rachael shares her journey, which began shortly after moving into a new home with her fiancé, as she dealt with persisting symptoms eventually diagnosed as small bowel neuroendocrine tumours. Despi...
Join Nikie from Neuroendocrine Cancer UK as she sits down with Sarah Peart, a Sexuality Educator currently pursuing a master's degree in Clinical Psychosexology. Sarah's empirical dissertation delves into the often-overlooked realm of how cancer impacts sexual well-being, transcending the boundaries of cancer types traditionally associated with reproductive or sexual organs. In this enlightening conversation, Sarah and Nikie shed light on the profound effects cancer can have on an indivi...
This marks the first episode of the 2024 'Not Just NE Cancer' podcast series. Host Catherine Bouvier and guest Peter Gwilliam reflect on the last 21 years of Neuroendocrine Cancer UK. Peter, the Chair Trustee of Neuroendocrine Cancer UK and co-founder, shares insights into the organisation's evolution.In the late '90s, after Peter's wife Liddy received a diagnosis, their journey unfolded. Liddy, a Comedy Director known from 'Drop the Dead Donkey,' faced a turbulent diagnosis of neuroendocrine...
In this special one-off podcast, join us for a heartfelt narrative, narrated by Neuroendocrine Cancer UK's, Specialist Nurse, Nikie, as we remember and celebrate the life of Andrew Cheetham. This poignant story, written by his wife, Faye, reflects their journey filled with love, dreams, and the challenges of facing neuroendocrine cancer.Discover how they navigated life's ups and downs, cherished family moments, and the profound impact of Andrew's legacy. We invite you to listen to this touchi...
In this week's podcast, we delve into genomics research with Professor Chrissie Thirlwell, a cancer genomics and Head of the Medical School at the University of Bristol. She is also a Consultant Medical Oncologist, Secretary of UKINETs, and Co-Chair of the NET Research Foundation USA Board of Scientific Advisors.Professor Thirlwell emphasises the pivotal role of research in enhancing our understanding of medical science and shaping comprehensive patient care across various medical disciplines...
In this episode of our 'Not Just NE Cancer Takeover Series,' we are honoured to welcome Mr Samuel Ford, a consultant surgeon specialising in NET surgery, general and upper gastrointestinal surgery, and sarcoma surgery. Additionally, he serves as the Research Committee Chair of the UK & Ireland Neuroendocrine Tumour Society (UKINETS).Join us for an insightful conversation with Mr. Ford as we delve into the world of surgical research in neuroendocrine cancer. Discover what surgical research...
In this episode of the 'Not Just One Cancer Takeover Series,' we had the privilege of speaking with Dr. Ben White, a specialist registrar in Gastroenterology and Hepatology. Dr. White's expertise centers on neuroendocrine cancer epidemiology. Epidemiology is the study of how diseases or health conditions spread and affects people in a population, as well as the factors that influence their occurrence. It helps us understand patterns and causes of health-related issues and is crucial in public...
In this episode, we have a fascinating conversation with Professor John Ramage, consultant physician in gastroenterology and hepatology at Hampshire Hospitals NHS Trust and Deputy Lead Clinician at King’s Health Partners NET Centre. Prof Ramage's research expertise lies in neuroendocrine tumours, where he investigates risk factors, epidemiology, and the quality of life for patients.Our discussion revolves around epidemiology: what it is, why it's vital in recognising disease behaviour pattern...
In this episode, we delve into the world of oncology research with Dr. Rohini Sharma, a consultant medical oncologist and the oncology lead for Neuroendocrine Cancer and liver cancer at Imperial College London. Join us as we explore the pivotal role that research plays in advancing the realm of neuroendocrine cancer. Uncover the challenges that contribute to the scarcity of research dedicated to this less common form of cancer. Together, we'll examine the landscape of oncology rese...
In this episode, we talk to Professor John Ramage about quality-of-life research. Prof Ramage is a consultant physician in gastroenterology and hepatology at the Hampshire Hospitals NHS Trust and Deputy Lead Clinician at King’s Health Partner's NET centre. His research interests focus on the quality of life in neuroendocrine cancer as well as the risk factors and epidemiology of these tumours.The discussion focuses on what quality-of-life research is and how central the patient is to de...
In this episode, Neuroendocrine Cancer UK's Campaign Lead, Lisa interviews Andy Hall, Chief Scientific Officer at RareCan—an organisation dedicated to improving outcomes for individuals with rare forms of cancer. Join them in a thought-provoking discussion as Andy shares his journey from being a lab-based researcher, specialising in pediatric cancer biology. Delve into the world of basic research and gain a fascinating insight into the inner workings of the lab. Discover the crucial...
In this week's podcast episode, we feature Ancora.ai, a company connecting cancer patients with clinical trials and empowering them to understand ongoing trial options. Ancora.ai maintains a research database of all ongoing cancer trials, including neuroendocrine cancer, making it easier for patients to find personalised trial options. The podcast with CEO and founder, Danielle Ralic, explores the challenges of finding relevant clinical trials and how Ancora.ai helps overcome them. Liste...
Welcome to the latest episode of the "Not Just NE Cancer Takeover Series." Following our successful launch last week, this series continues to delve into the world of neuroendocrine cancer research, with a specific focus on our newly introduced 'Advancing Neuroendocrine Cancer Research' campaign. In this second episode, Campaigns Lead Lisa engages in a compelling discussion with Andy Hall, Co-founder & Chief Scientific Officer of RareCan. RareCan, a digital health company, has create...
NOT JUST NE CANCER TAKEOVER SERIES!Join Neuroendocrine Cancer UK CEO, Catherine, and Campaigns Lead, Lisa, in this informative and inspiring podcast episode. Neuroendocrine Cancer UK is proud to announce the launch of their Advancing Research campaign.Neuroendocrine cancer, a complex and less common form of cancer affecting multiple parts of the body, often leaves those living with the disease underrepresented in research studies. Recognising this critical gap, Neuroendocrine Cancer UK has ta...
In this episode of Neuroendocrine Cancer UK's 'Not Just NE Cancer' series, hosted by Catherine Bouvier, Julie courageously shares her journey through high-grade neuroendocrine cancer. She discusses her challenges with treatment and progression, her realistic approach to prognosis, and how she embraces positivity as a powerful coping tool, even on her toughest days.Further support:Neuroendocrine Cancer UKUnderstanding Neuroendocrine TumoursHigh-Grade Neuroendocrine CancerPatient StoriesHow We ...
In this episode, Neuroendocrine Cancer UK's CEO, Catherine Bouvier, talks to Dr Tahir Shah about his work in developing a new service for Neuroendocrine Cancer patients to improve outcomes and their quality of life through using surgery and liver transplantation.Dr Shah is a Consultant Liver Transplant Physician at Queen Elizabeth Hospital Birmingham. He is also Lead Clinician for the Neuroendocrine Tumour [NET] and Hepatocellular Cancer [HCC] Services at Birmingham. He developed special...
In this episode Neuroendocrine Cancer UK CEO, Catherine talks with Rareminds Mindfulness Programmes Lead, Steve about mindfulness and how it can help those with cancer to help manage pain and daily life. Steve is a core teacher trainer for Breathworks, and an ‘Living Well’ Trainer and Supervisor. He runs both ‘Mindfulness for Health’ and ‘Mindfulness for Stress’ programmes and is a qualified Mindfulness in Schools teacher for young people. Steve's has lived experience of mana...
In this episode, Catherine talks to Neuroendocrine Cancer Clinical Nurse Specialist, Debbie. In December 2021, Debbie's life took an unexpected turn when she was diagnosed with breast cancer. Debbie shares her experience of a cancer diagnosis from both sides.Further support:Just DiagnosedSupport the Show.
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