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© 2024 My Spoonie Sisters
Description
My Spoonie Sisters features stories from special guests dedicated to empowering those with chronic illnesses. We share stories, discussing everything from Rheumatoid Arthritis to anxiety and sex therapy. Our goal? To connect people and provide the support and tools they need to live a better life.
For those with a chronic illness, our energy levels fade faster. We must be more purposeful with the "spoons" allotted to us. Grab your coffee, sister, and tune in as my Spoonie Sisters share stories of living with chronic illness.
All guests on or mentioned in this podcast will also be listed for your benefit. Be sure to rate and subscribe to My Spoonie Sisters and follow @MySpoonieSisters on Instagram for new episodes and more. If you would like to be featured on My Spoonie Sisters, please email me at MySpoonieSisters@gmail.com. We look forward to speaking and hearing from all our Sisters!
*Disclaimer* I am not a doctor or a Health Care Practitioner. This is my and my guests' personal story and the things we have done for ourselves. Everybody is different when it comes to medications and remedies. If you have any questions regarding your health, please speak to and ask your Primary Doctor or Rheumatologist.
You can also visit our website at https://myspooniesisters.chewack.com
93 Episodes
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Navigating life with an autoimmune condition can feel like a solo journey, but it doesn't have to be. I had the pleasure of bringing in Annie, my health and wellness coach, who's an expert in turning living with autoimmune diseases into thriving despite them. Together, we unpack the art of crafting wellness plans that are as unique as your fingerprint, offering hope and actionable advice for anyone aiming to steer their health in a positive direction. Through our candid conversation, I open u...
As your host, Jen, I've witnessed firsthand the transformative power of getting the right diagnosis - it's a journey that can be as tumultuous as it is enlightening. That's why I invited Olivia Dennis to the show, where she bravely recounts her quest through the tangled healthcare system, grappling with the often invisible web of IBS, anxiety, OCD, and autism. Olivia's candid narrative strikes a chord, revealing the emotional toll of being misunderstood and the subsequent liberation of unders...
When your world is turned upside down by chronic illness, finding humor and connection can be your lifeline. That's exactly what happened when Jewel, the effervescent @thelipedemacushie, joined me for a chat that'll make you laugh, and nod along with understanding. We dove into Jewel's experiences with Cushing's disease, her surgeries, and the daily dance with adrenal insufficiency. There's something incredibly powerful about sharing stories of resilience, and Jewel's candidness about her spi...
Leila's voice crackles with emotion as she recounts the moment her life took an unexpected turn with the diagnosis of Lupus and Sjogren's disease. Her candid narrative details the trials and triumphs of living with these stealthy autoimmune diseases, from the early signs that something was amiss to the latest treatment that's been her saving grace. We're honored to have her on our show, sharing invaluable insights into the world of chronic illness, emphasizing the importance of self-advocacy,...
Struggle and healing often go hand in hand, as Delicia's gripping tale of resilience unfolds in our latest conversation. Facing a health odyssey that begins with severe allergies and the emotional scars of childhood trauma, she takes us through her diagnosis and the powerful connection between emotional distress and physical health. Her story is a beacon of hope for anyone facing similar battles as she recounts her experiences with hay made from barley on a Swiss farm, propelling a discussion...
When Lisa Norris, a part-time paramedic and former clinical trials researcher, recounts her 20-year struggle with lupus and polymyositis, it's not just a story of illness but of extraordinary perseverance. Our latest episode invites you into Lisa's world, where she navigates the complexities of her autoimmune diseases with the same precision and focus she once brought to emergency scenes and research labs. Her candid discussion of the sudden emergence of her symptoms, the winding path to a co...
There's nothing more humbling than hearing the story of someone who's faced the gauntlet of health challenges and emerged with wisdom to share. That's precisely what you'll get as Suzanne Casamento joins us to recount her battles with chronic Lyme disease, medical gaslighting, and a complexity of health issues that would test anyone's resolve. Her story isn't just a sequence of struggles; it's a beacon for anyone who's felt unheard or misunderstood by the medical system, and it's packed with ...
Have you ever wondered why we carry certain beliefs about sexuality, or how those beliefs impact our intimate relationships? In a riveting discussion with Dr. Fanny the Baker, an acclaimed sex coach, we unravel the intricate web of sexuality myths and the profound influence of sex education on our perceptions. As we examine the delicate interplay between intimacy and expectations, Dr. Fanny and I illuminate the significance of pleasure, safety, and communication in sexual relationships. You'l...
When resilience meets wisdom, stories like that of Carrie Shepperson unfold. Her journey through the labyrinth of Still's disease, narrative rich with city savvy and mountain wisdom, is one I had the privilege to uncover. Carrie, hailing from Kentucky and a steadfast volunteer at AiArthritis, shares her personal odyssey from bewildering symptoms to a fierce advocacy for those entangled in the complexities of autoimmune disorders. Her analytical nurse's mind, coupled with an unwavering spirit,...
Have you ever found a friend in the most unexpected of places? On our latest episode, we're joined by Geri, a beacon of hope from the chronic illness community on Instagram, who opens up about her life with Lupus and Sjogren's syndrome. Her story is a testament to the strength and solace that virtual friendships can provide, especially when real-life connections to those who truly understand are few and far between. We navigate the all-too-common experience of medical gaslighting and the shee...
When Emmanuel's life was touched by the invisible struggles of autoimmune disease within his family, it ignited a fire within him to champion the rights of workers grappling with similar battles. As the founder of the Workers with Autoimmune Aliments Alliance, his story—shared on our latest podcast—encapsulates the drive behind a movement that's not just personal but pivotal for countless individuals. Together, we unravel the complexities of autoimmune diseases in the workplace and the essent...
Imagine shouldering the weight of chronic illness while your partner is deployed, leaving you to single-handedly care for children who also navigate their own health complexities. Welcome back Kenzie, the Rare Mom, as we delve into her raw and hopeful narrative of managing mixed connective tissue disease and a blood coagulation defect. As she courageously steps into the role of both mother and medical student, Kenzie unveils the intense reality of parenthood under such unique pressures—chroni...
As the sun sets on another day of managing the delicate balance of chronic illness, I sat down with Jess Hay, a resilient "Spoonie Sister" who graciously opened up about her life woven with challenges and triumphs. Our intimate conversation traverses Jess's early health struggles to her current dance with multiple conditions, including celiac disease and POTS. She candidly discusses the tapestry of treatments, both conventional and holistic, that color her daily life and offers an honest look...
Have you ever felt the weight of the day before it even begins, knowing that each task demands a piece of your already dwindling energy? Embrace the power of the girl with spoons as I, Gracefully Jen, recite a moving poem that captures the essence of living with chronic illness. Through spoken word, we explore the tender narrative of conserving energy, where each spoon symbolizes a precious resource, a unit of strength that must be carefully allocated to overcome the day's hurdles. This episo...
Have you ever met someone whose sheer presence, both physical and metaphorical, can fill a room with inspiration? Terry Tucker, a former NCAA Division I basketball player turned SWAT hostage negotiator, embodies just that. Balancing on the towering height of six-foot-eight, Terry walks us through the valleys of his life, including his battle with a rare form of cancer, and how these experiences have fueled his mission to inspire others through Motivational Check LLC and his book "Sustainable ...
When Tiffany Kairos was just 16, her life took an unexpected turn with the onset of epilepsy, a journey that taught her how to find humor in the face of adversity. Join us as Tiffany, founder of the Epilepsy Network, shares her transformative tale from confusion to advocacy, infusing each challenge with a dose of laughter. In our heartfelt conversation, we uncover the realities of living with epilepsy, from addressing the stigmas to embracing the power of a united community. Tiffany's inspiri...
Discover the unmasked realities of lupus with Amanda Chay, the brave voice behind the Girlfriend's Guide to Lupus, in an episode that's as heartfelt as it is insightful. Amanda doesn't just share her story; she opens the door to a world where autoimmune challenges are the norm, not the exception. From her own two-decade struggle to a diagnosis and the emotional rollercoaster that ensued to practical advice wrapped in humor, this conversation is an intimate exploration of resilience and self-a...
What if you could transform your life's greatest struggles into sources of strength and self-love? This episode brings you an inspiring conversation with Dr. Fanny Le Boulanger, a French doctor and sex coach who did exactly that, following her epilepsy diagnosis at the age of 26. Dr. Fanny opens her heart about how she navigated the challenges of seizures, medication, and their impact on her relationships, eventually finding peace and self-acceptance. She reminds us of the transformative powe...
Ever wondered how you can take control of your health while living with an autoimmune disease? Our special guest, Amy Behimer, is a Doctor of Pharmacy and Nationally Board-Certified Health and Wellness Coach who lives with multiple sclerosis. She uses her education, training, and first-hand experience navigating life with autoimmune disease to help people make changes to start creating autoimmune health. Changes to lifestyle habits are proven to help you feel better today and also help you wo...
Navigating a chronic disease like rheumatoid arthritis can feel like trekking through a dense forest with no map. But what if we told you that there's a way to cut through the thickets, make sense of the path, and move forward with purpose and optimism? Join us for an enlightening conversation with Stefanie, a family nurse practitioner, and rheumatoid arthritis coach who helps her clients do just that. With her guidance, we explore the complex impact of this inflammatory disease on the body a...
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