My Spoonie Sisters

Struggle and healing often go hand in hand, as Delicia's gripping tale of resilience unfolds in our latest conversation. Facing a health odyssey that begins with severe allergies and the emotional scars of childhood trauma, she takes us through her diagnosis and the powerful connection between emotional distress and physical health. Her story is a beacon of hope for anyone facing similar battles as she recounts her experiences with hay made from barley on a Swiss farm, propelling a discussion on the intertwining of past traumas and present health conditions. Delicia doesn't shy away from the raw realities of living with chronic pain, sharing the complexities of managing Crohn's disease with treatments ranging from Biologics to a holistic approach. Her journey is punctuated by surgeries and the acceptance of a permanent colostomy bag, yet it's her gratitude and unyielding spirit that captivates us. As she navigates the daily confines of the "Spoon Theory," we're reminded of the power of community, meditation, and a mindset geared towards positivity. Tune in to hear Delicia's insights on the double-edged sword of medical treatments, the risks of immunosuppressive drugs, and the essential role of therapy in her well-being. The conversation also reveals her passion for advocacy against child molestation, highlighting her determination to turn personal adversity into a source of support and awareness for others. Her trilogy memoir stands as a testament to her courage and the transformative power of storytelling, offering a raw and authentic perspective on trauma, resilience, and the relentless pursuit of purpose.Website - www.kissingasphalt.comFacebook Page - kissingasphaltmemoirInstagram - delicianiami_authorNew Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

When Lisa Norris, a part-time paramedic and former clinical trials researcher, recounts her 20-year struggle with lupus and polymyositis, it's not just a story of illness but of extraordinary perseverance. Our latest episode invites you into Lisa's world, where she navigates the complexities of her autoimmune diseases with the same precision and focus she once brought to emergency scenes and research labs. Her candid discussion of the sudden emergence of her symptoms, the winding path to a correct diagnosis, and her evolving treatment plan, including the strategic use of steroids, is both educational and deeply moving.Living with an autoimmune disease like lupus can feel like sailing in unpredictable weather, but Lisa's experience teaches us the art of charting a course through the choppiest of waters. She shares valuable insights into managing the condition's daily challenges, from deciphering lab results to planning around environmental triggers that aggravate symptoms. Together, we explore the importance of a strong support network and the determination to live fully. The episode serves as a testament to the power of self-advocacy, the benefit of informed healthcare partnerships, and the unspoken bond shared by those who face similar battles.This heartfelt exchange culminates in an unexpected twist - guidance from a veterinarian with an autoimmune disease that enriched Lisa’s approach to managing her health. The discussion transcends professional boundaries and underscores the profound comfort found in shared experiences. Whether it's through hobbies like jewelry making that double as therapeutic outlets or the inspiring resilience of public figures with autoimmune conditions, the stories shared in this episode are a beacon of hope and camaraderie. If you're on a quest for understanding, community, or just a sign that you're not alone on this journey, Lisa extends a warm invitation to connect and find solace in the shared paths we tread.Instagram: @autoimmunewarriorinfoNew Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

 There's nothing more humbling than hearing the story of someone who's faced the gauntlet of health challenges and emerged with wisdom to share. That's precisely what you'll get as Suzanne Casamento joins us to recount her battles with chronic Lyme disease, medical gaslighting, and a complexity of health issues that would test anyone's resolve. Her story isn't just a sequence of struggles; it's a beacon for anyone who's felt unheard or misunderstood by the medical system, and it's packed with insights into the importance of advocating for your own health.As we unravel Suzanne's narrative, we venture into the lesser-traveled paths of healing, discussing the profound effects of alternative therapies. From the muscle testing and Chinese herbs that brought Suzanne relief to my transformative encounters with acupuncture and Ayurvedic medicine, this conversation deeply explores the body's capacity to heal in non-traditional ways. It's a chapter for the curious and the seekers who believe that recovery goes beyond prescriptions and that our bodies sometimes whisper the solutions we need.In our journey with Suzanne, we unmask the power of detoxing both emotionally and physically through modalities such as AmpCoil therapy, breathwork, and energy work. This episode examines the interconnectedness of our emotional states and physical health, a lesson in how our unresolved traumas manifest as persistent pain. As a Lyme survivor and now a practitioner, she offers a glimpse into my practice and how to help clients find balance and peace. It's a testament to the strength of vulnerability and an invitation to open your mind to the healing potential that may lie just outside the bounds of conventional medicine.Website:https://www.suzannecasamento.com/To book an AmpCoil Session: https://www.suzannecasamento.com/ampcoil-PEMF-sessions-los-angelesMy Instagram: https://www.instagram.com/suzanne.casamento?igsh=OGQ5ZDc2ODk2ZA%3D%3D&utm_source=qrNew Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

Have you ever wondered why we carry certain beliefs about sexuality, or how those beliefs impact our intimate relationships? In a riveting discussion with Dr. Fanny the Baker, an acclaimed sex coach, we unravel the intricate web of sexuality myths and the profound influence of sex education on our perceptions. As we examine the delicate interplay between intimacy and expectations, Dr. Fanny and I illuminate the significance of pleasure, safety, and communication in sexual relationships. You'll discover the importance of pacing and self-awareness in finding satisfaction, especially when chronic illness adds another layer of complexity to the mix.This episode takes an enlightening turn as we venture into the transformative realm of self-consent, unpacking how recognizing your personal boundaries and desires can lead to a richer sexual life. Through the lens of conditions like vulvodynia, we discuss the perils of ignoring discomfort and the pivotal role of internal dialogue in honoring one's physical and emotional needs. We further delve into strategies for fostering trust and safety in conversations with partners, ensuring that the connection remains strong and sincere. When an audience member's question brings the topic of medication and libido to the table, we explore how to balance one's medicinal needs with the pursuit of a fulfilling sex life, challenging societal norms and redefining personal pleasure. Join us for this empowering journey toward a deeper, more joyous connection with one's own sexuality.Links : Your Sexyfied Life on your favorite podcast platform (or https://feeds.captivate.fm/your-sexyfied-life/ )Get the Essence free ebook https://view.flodesk.com/pages/63762fafc6d1c43fb3bac1bf**Get on my email list : https://view.flodesk.com/pages/649da546a6be29330ccbaa59**www.fannyleboulanger.comIG : @withdoctorfanny (but for real, get on my email list if you want to stay in touch, I have a love-hate relationship with Instagram )New Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

When resilience meets wisdom, stories like that of Carrie Shepperson unfold. Her journey through the labyrinth of Still's disease, narrative rich with city savvy and mountain wisdom, is one I had the privilege to uncover. Carrie, hailing from Kentucky and a steadfast volunteer at AiArthritis, shares her personal odyssey from bewildering symptoms to a fierce advocacy for those entangled in the complexities of autoimmune disorders. Her analytical nurse's mind, coupled with an unwavering spirit, sheds light on the nuances of navigating a life altered by a rare medical condition.Grasping the intricacies of Still's disease can feel like piecing together a puzzle in the dark, but Carrie's dialogue with me illuminates the path. She walks us through the rigors of symptom recognition, the significance of lab results that wax and wane, and the importance of understanding even the most enigmatic medical criteria. Our conversation explores both the scientific and the profoundly personal, offering solace to those embroiled in similar battles and providing a gateway to a community that supports and uplifts even in the grittiest times.Beyond the diagnosis, we traverse the landscape of self-care, where Carrie imparts her wisdom on maintaining joint health and overall well-being amidst the storms of chronic illness. With simple yet potent strategies — a leisurely walk, the right balance of heat, ice, and nutrition, and the embrace of a gratitude practice — she paints a picture of a life embraced with joy despite its trials. Her story is a beacon, guiding listeners through the fog of their own health journeys with the assurance that every small step is a victory in the quest to live fully and vibrantly.https://www.aiarthritis.org/https://www.nomidalliance.org/https://stillsnow.com/New Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

Have you ever found a friend in the most unexpected of places? On our latest episode, we're joined by Geri, a beacon of hope from the chronic illness community on Instagram, who opens up about her life with Lupus and Sjogren's syndrome. Her story is a testament to the strength and solace that virtual friendships can provide, especially when real-life connections to those who truly understand are few and far between. We navigate the all-too-common experience of medical gaslighting and the sheer determination needed to pursue a diagnosis, offering a powerful reminder of the resilience within us all.Imagine conquering not just lupus but also staring down non-Hodgkin's lymphoma without the need for chemotherapy. That's the reality for one incredible New Yorker who shares her experience on our show. She delves into the perks of her healthcare network in the bustling city. She recounts how her robust support system became her lifeline through both her health triumphs and the turbulence of travel post-diagnosis. It's a raw look at the unpredictable nature of chronic illnesses and the immeasurable value of having a solid circle of medical and personal care.Our closing chapter is packed with practicality and wisdom from our 'Spoonie Toolkit' straight to your ears. We discuss the small yet significant things that make a big difference in managing day-to-day life with a chronic illness, as well as the bigger picture of finding joy and setting goals amidst the challenges. We also shine a light on the support networks that buoy us, like the constant care from loved ones such as Lawrence and organizations like the Lupus Foundation of America. Join us for a heartfelt conversation with a fellow advocate and writer who's on a mission to uplift the lupus community with every word she types and every story she shares.New Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

When Emmanuel's life was touched by the invisible struggles of autoimmune disease within his family, it ignited a fire within him to champion the rights of workers grappling with similar battles. As the founder of the Workers with Autoimmune Aliments Alliance, his story—shared on our latest podcast—encapsulates the drive behind a movement that's not just personal but pivotal for countless individuals. Together, we unravel the complexities of autoimmune diseases in the workplace and the essential legislative strides being made to ensure those affected are no longer unseen or unprotected.Peek behind the curtain of the "Invisible No More" documentary project with us, where the realities of those living with autoimmune diseases are brought to light. Emmanuel's insight into the stigma and challenges faced by employees with these invisible ailments underscores a pressing need for societal empathy and change. We cover the groundbreaking progress in Maryland with the Employee Autoimmune Disorder Protection Act, and how advocacy efforts are far from over. Lend us your ears and, perhaps, your voice to this cause, as we discuss ways to amplify the mission and ensure no one is forced to choose between their health and their livelihood again.New Intro 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

Imagine shouldering the weight of chronic illness while your partner is deployed, leaving you to single-handedly care for children who also navigate their own health complexities. Welcome back Kenzie, the Rare Mom, as we delve into her raw and hopeful narrative of managing mixed connective tissue disease and a blood coagulation defect. As she courageously steps into the role of both mother and medical student, Kenzie unveils the intense reality of parenthood under such unique pressures—chronicling migraines, prolonged bleeding, and the emotional toll it takes. Her journey is a stark reminder of the resilience required to face each day with grace and strength.Kenzie's love for her son Josiah is a powerful force that shines through the darkest challenges. She opens up about his battle with Familial Cold Autoinflammatory Syndrome and the strikingly sweet yet fiercely independent nature that defines his young spirit. The candid reflections on the paradoxical joys and trials of raising a child with a rare genetic condition, paired with the weighty decisions around family expansion, captivate us with their depth and honesty. Witness the profound growth and resilience Kenzie has fostered throughout her odyssey, a journey marked by love, adversity, and the fierce determination to provide the best for her family.The heart of this episode beats to the rhythm of advocacy, as Kenzie transitions from law and order aspirations to her pursuit of a nursing career specialized in rheumatology. Her son's health crises and the arduous path to diagnosis illuminate the crucial need for competent and compassionate healthcare providers. We also venture into the broader societal landscape, discussing the judgments and misunderstandings many parents of children with rare diseases and autism encounter. Kenzie's story is an open invitation for connection, support, and resource-sharing, echoing the sentiment that no one facing these trials should walk alone. Join us in a conversation that not only touches the heart but also calls for action and empathy.https://www.gofundme.com/f/cabrera-family-medical-funds?utm_campaign=p_cp+share-sheet&utm_medium=copy_link_all&utm_source=customerMakenzie Cabrera (@kenzi.c_) • Instagram photos and videoshttps://westchester.news12.com/orange-county-native-raises-awareness-of-familial-cold-autoinflammatory-syndrome-after-toddlers-diagnosishttps://www.tiktok.com/@cabrerafam1?is_from_webapp=1&sender_device=pcNew Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

As the sun sets on another day of managing the delicate balance of chronic illness, I sat down with Jess Hay, a resilient "Spoonie Sister" who graciously opened up about her life woven with challenges and triumphs. Our intimate conversation traverses Jess's early health struggles to her current dance with multiple conditions, including celiac disease and POTS. She candidly discusses the tapestry of treatments, both conventional and holistic, that color her daily life and offers an honest look into the complexities of navigating the Canadian healthcare system, where she often plays the role of her own advocate amidst a sea of specialists.Navigating life with chronic illness is like sailing on unpredictable seas, and Jess shares her strategies for staying afloat, including her reliance on the unsung hero Gravol, and how she balances medications with the rhythms of her body's needs. She extends a hand to those on similar journeys, imparting wisdom on self-compassion and the delicate art of living within the bounds of one’s fluctuating health. Jess's reflections on her journey toward trusting the medical process, despite the jarring realities of nerve tests and other procedures, highlight the courage found in vulnerability and the strength in seeking help.In the spirit of finding joy amidst the storms, we wrap up with an exploration of the evening rituals and the daily doses of happiness that Jess cherishes—a reminder that life's simple pleasures often hold the greatest comfort. Whether it's the warmth of a crochet needle in hand or the affectionate nuzzle from her service dog in training, Elda, Jess reminds us that support comes in many forms. Listeners will undoubtedly find solace in her story and perhaps recognize a piece of their own journey reflected in her words. Join us for this episode, not just for the resilience on display, but for the celebration of every spoonful of joy that makes the challenging days worth enduring.https://www.instagram.com/jess_and_elda?igsh=aHRsZGV3a3h5bHE4https://open.spotify.com/show/2jONwolC02aoGQOxJcTOc5?si=8BMizFi4Tq62E0vLW2jVdANew Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

Have you ever felt the weight of the day before it even begins, knowing that each task demands a piece of your already dwindling energy? Embrace the power of the girl with spoons as I, Gracefully Jen, recite a moving poem that captures the essence of living with chronic illness. Through spoken word, we explore the tender narrative of conserving energy, where each spoon symbolizes a precious resource, a unit of strength that must be carefully allocated to overcome the day's hurdles. This episode isn't just a poem—it's an ode to the silent warriors who navigate life's labyrinth with grace and unwavering resilience.As we journey together, I extend a hand to my spoonie sisters and anyone who understands the intricate dance of managing one's energy against the ever-growing demands of life. My voice is your voice, and as we listen, we find solace in shared experiences and the unspoken understanding that echoes in every line. We celebrate the indomitable spirit that, despite the challenges, rises to meet each dawn with determination. So, gather your spoons, my friends, and let's honor the courage that fuels our every move and remember that we are never alone in this fight.New Intro 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

Have you ever met someone whose sheer presence, both physical and metaphorical, can fill a room with inspiration? Terry Tucker, a former NCAA Division I basketball player turned SWAT hostage negotiator, embodies just that. Balancing on the towering height of six-foot-eight, Terry walks us through the valleys of his life, including his battle with a rare form of cancer, and how these experiences have fueled his mission to inspire others through Motivational Check LLC and his book "Sustainable Excellence." As you tune in, prepare to be awed by his resilience and the infectious optimism that he maintains in the face of adversity.Throughout our conversation, Terry introduces us to the four pillars that have been the bedrock of his extraordinary journey. Each one, from mastering the mind to understanding the paradoxical gift of pain, is a chapter in his playbook for life. His philosophies aren't just theories; they're born from the trenches of real-world challenges and the relentless pursuit of excellence, despite the odds. Terry’s unwavering spirit not only captivates but also grounds us in the reality that our legacies are carved by the perseverance and hope we hold onto during our toughest battles.The power of a support network cannot be overstated, and Terry is a testament to that. With his three Fs—faith, family, and friends—as his backbone, he shares heart-wrenching moments, like the decision to undergo chemotherapy and the warmth of human connection that carried him through. His insights into the role of character, the essence of teamwork learned through sports, and the profound lessons from his commitment to clinical trials offer a raw take on what it means to contribute to something larger than oneself. Through his stories, Terry's voice becomes a beacon for all who seek to nurture the eternal parts of themselves—their heart, mind, and soul. Join us as we share in the remarkable resilience of a man who finds an unwavering strength even in moments of vulnerability.Motivational Check: https://www.motivationalcheck.com/ LinkedIn:  https://www.linkedin.com/in/terry-tucker-9b5605179/Facebook:  https://www.facebook.com/motivationalcheckX (Twitter):  https://mobile.twitter.com/terrytucker201Instagram:  https://www.instagram.com/sustainableexcellenceauthor/Sustainable Excellence, Ten Principles to Leading Your Uncommon and Extraordinary Life - AmazonLink: https://www.amazon.com/dp/B08GLGVTVSNew Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

When Tiffany Kairos was just 16, her life took an unexpected turn with the onset of epilepsy, a journey that taught her how to find humor in the face of adversity. Join us as Tiffany, founder of the Epilepsy Network, shares her transformative tale from confusion to advocacy, infusing each challenge with a dose of laughter. In our heartfelt conversation, we uncover the realities of living with epilepsy, from addressing the stigmas to embracing the power of a united community. Tiffany's inspiring outlook isn't just a personal triumph; it lights the path for others navigating the complexities of this condition, proving that a little humor can go a long way.This episode is more than just a story; it's a guidebook filled with nuggets of wisdom for anyone touched by chronic illness. We unpack the 'spoonie' toolkit essentials, highlighting the significance of rest and the simple pleasures that uplift the spirit, like indulging in dark chocolate. Tiffany also shares her aspirations for the future, from continuing  advocacy through speaking events to possibly venturing into comedy, always with the aim of contributing positively to the epilepsy community. Tune in for an episode brimming with resources, resilience, and reminders of how we can all make a difference.New Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

Discover the unmasked realities of lupus with Amanda Chay, the brave voice behind the Girlfriend's Guide to Lupus, in an episode that's as heartfelt as it is insightful. Amanda doesn't just share her story; she opens the door to a world where autoimmune challenges are the norm, not the exception. From her own two-decade struggle to a diagnosis and the emotional rollercoaster that ensued to practical advice wrapped in humor, this conversation is an intimate exploration of resilience and self-advocacy.Navigating life with lupus is no stroll in the park, and Amanda's candid accounts of managing energy, handling flare-ups, and the complexities of the healthcare system underscore the daily battles faced by those with chronic illnesses. Yet, amid the trials, we find moments of levity and a treasure trove of strategies for anyone walking a similar path. The power of a supportive community emerges as a beacon of hope, with pragmatic tips on building your own "squad" and facing those inadvertently insensitive comments with a touch of witty repartee.Wrapping up with a stirring message of empowerment, Amanda illuminates the journey from identifying with an illness to embracing the full spectrum of self. We unpack the myth of 'hidden secrets' to managing lupus, advocating instead for the potency of small, consistent daily choices. This is not just an episode for those with lupus but a call to all who seek the courage found in self-acceptance and the transformative impact of understanding one's true identity. Join us for this enlightening dialogue and find out how to connect with Amanda and her powerful guide for navigating the turbulent waters of life with lupus.Amazon: https://www.amazon.com/Girlfriends-Guide-Lupus-Control-Diagnosis/dp/B0CK3M4VVZInstagram:  @amandaechayWebsite:  amandachay.comNew Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

What if you could transform your life's greatest struggles into sources of strength and self-love? This episode brings you an inspiring conversation with Dr. Fanny Le Boulanger, a French doctor and sex coach who did exactly that, following her epilepsy diagnosis at the age of 26. Dr. Fanny opens her heart about how she navigated the challenges of seizures, medication, and their impact on her relationships, eventually finding peace and self-acceptance. She reminds us of the transformative power of nurturing oneself, stepping away from the hustle, and embracing the beauty of self-love.Ever wondered how you could find pleasure and comfort amidst chronic pain or illness? Dr. Fanny is back with more enlightening insights, sharing how she discovered joy in the simplest of things. Together, we explore the art of self-soothing, connecting to our senses, and the therapeutic power of a silly song. Dr. Fanny even shares her top three coping tools - skin-friendly oils, positive affirmations, and, of course, that mood-lifting melody. We end the episode on a hopeful note, making sure you remember that it's okay not to be okay and that you're never alone in your journey. So, join us, and let's embrace the healing power of self-care and acceptance together.Bio : Lifegasm Fairy Godmother and creatrix of Your Sexyfied Life podcast  After years of working as a doctor helping women, she noticed something was missing… She decided to use her skills to help people fall in love again with their sexuality, stop their inner-war and come home to themselves. With a coaching methodology combining ancient wisdom and up-to-date scientific tools, a bilingual podcast and a French sense of humor, she dedicates her life to helping people build their own Sexyfied life. To reclaim the Lifegasm they deserve.Links : Your Sexyfied Life on your favorite podcast platform (or https://feeds.captivate.fm/your-sexyfied-life/ )Get the Essence free ebook https://view.flodesk.com/pages/63762fafc6d1c43fb3bac1bf**Get on my email list : https://view.flodesk.com/pages/649da546a6be29330ccbaa59**www.fannyleboulanger.comIG : @withdoctorfanny (but for real, get on my email list if you want to stay in touch, I have a love-hate relationship with Instagram )New Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

Ever wondered how you can take control of your health while living with an autoimmune disease? Our special guest, Amy Behimer, is a Doctor of Pharmacy and Nationally Board-Certified Health and Wellness Coach who lives with multiple sclerosis. She uses her education, training, and first-hand experience navigating life with autoimmune disease to help people make changes to start creating autoimmune health. Changes to lifestyle habits are proven to help you feel better today and also help you worry less about tomorrow. She supports people through coaching, teaching, and cultivating community inside her membership CLUB Habit Hub.Amy discusses the power of mindset, how she evolved her treatment plan to incorporate medication and lifestyle changes, and the importance of understanding the science behind these decisions. Amy's story is a powerful testament to the tenacity of the human spirit and how knowledge mixed with self-care can lead to better chronic illness management.The mystery of what 'healthy eating' truly means, especially for those with autoimmune diseases, is a topic we dissect with Amy. We address the need to trust our bodies and the importance of shunning ultra-processed foods. Amy shares her unique four "S" approach: understanding the science, trusting oneself, having strategies, and seeking support. This episode will not just educate but inspire you to take small steps towards a healthier lifestyle; whether you're living with an autoimmune disease or know someone who is, Amy's insights and encouragement are not to be missed.Check out www.amybehimercoaching.com/join to see the details you need to decide if CLUB Habit Hub is your new home for making health a habit!And here’s a free gift - The 6 Key Habits for Feeling Better with Autoimmune Disease…Starting Today! https://amybehimercoaching.com/6-habits New Intro 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

Navigating a chronic disease like rheumatoid arthritis can feel like trekking through a dense forest with no map. But what if we told you that there's a way to cut through the thickets, make sense of the path, and move forward with purpose and optimism? Join us for an enlightening conversation with Stefanie, a family nurse practitioner, and rheumatoid arthritis coach who helps her clients do just that. With her guidance, we explore the complex impact of this inflammatory disease on the body and learn about her unique approach to coaching.Listen as we recount the transformative adventures of Stefanie's clients, like the brave soul who overcame her fear of injections and the career woman who successfully balanced her professional life with her chronic illness. We share stories of individuals who, with personalized support and the right strategies, have navigated the deep waters of rheumatoid arthritis. From reversing a misdiagnosis to transitioning to Medicare while managing their condition, these stories offer a beacon of hope and demonstrate the power of having a guide by your side.This journey may be challenging, but you don't have to go it alone. We share practical advice, tips, and resources to help you live a full and fulfilling life despite your arthritis. We also emphasize the importance of seeking and accepting help — from talk therapy and support groups to personalized coaching services like Stefanie's. Remember: the sun always rises, and there's always a way forward. So, join us, grab your metaphorical hiking boots, and let's chart your path through the forest together.Rheumatoid Arthritis Coach | RA Health Coaching & Life Coaching ServicesNew Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

Ever felt your heart race, hands shake and a sense of shame wash over you during an anxiety attack? Our guest, Brian, bravely takes us through his personal journey, beginning with his first encounter with a panic attack on a date at 17. Brian's story underscores the importance of sharing personal experiences and having an open discourse about mental health.As we journey further, we’ll discover how we can identify our own anxiety triggers and take control of these situations. From a holistic approach to life, to the transformative power of mantras and the practice of mindfulness, Brian offers an abundance of strategies to fit diverse individual needs. We'll also discuss the significant role of relaxation techniques and how something as simple as sipping chamomile tea can be a game changer.But, it’s not an easy or quick fix. Brian emphasizes realistic expectations when dealing with anxiety and depression. He reminds us that healing is a process, and it's okay if it doesn't happen overnight. So, join us for a conversation that's as compassionate as it is enlightening, filled with personal experiences, practical insights, and a strong message of hope for those grappling with mental health struggles. Let’s foster understanding, inspire change, and shatter the stigma surrounding mental health, one chat at a time.https://linktr.ee/getoutofyourhead?fbclid=PAAabA-Kcq7-rp0xMzclmCZeepn5U7awVNBo5qEzqZdC27KeQHfGTShwhesVM_aem_Aa5_67-aS-yp5Pb1d6y27tqfsh8ix9qhSwtqqkt95Clr_rkirJg58j6NzvOrWB-c2vshttps://www.amazon.com/Get-Out-Your-Head-Vol-ebook/dp/B09KQ4FLBW?nodl=1&dplnkId=f1c2c67c-4357-4904-8ae8-aaf960040bcdNew Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

How does one maintain an active lifestyle while battling osteoarthritis? Robin Robertson, a seasoned advocate for the Arthritis Foundation, shares her inspiring journey from a rare knee condition at birth, numerous surgeries, and an ultimate halt to all impact sports at 24 to leading a vibrant life despite her limitations. It's not simply a tale of resilience and courage but an exploration of alternative forms of exercise that can help maintain a healthy lifestyle while dealing with osteoarthritis.As a coach and author of the 'Healthy Knees book series, Robin walks us through the nuts and bolts of osteoarthritis care in knees, hips, and feet, extolling the virtues of strength training and cycling. It's a fascinating look into her journey to become a 'Healthy Knees' coach, driven by her own experience with knee issues. Robin's mantra, "rest is rust" serves as a powerful reminder of the importance of movement and proper exercise for joint health. Hear the story of the fear, the despair, and the monumental shift in lifestyle after a diagnosis of osteoarthritis. But also hear the hope, the resilience, and the adaptability that leads to strength training and a cycling adventure across America. Discover how we’ve refused to let arthritis limit our lives and find inspiration in the pursuit of a path that's right for you. Dive into our conversation about knee health, managing knee pain, and the upcoming Jingle Bell Run. Tune in, listen, learn, and be inspired by the relentless pursuit of life despite the challenges.Healthy Knees Books: https://www.healthykneescoach.com/Shop   Healthy Knees for You (YouTube): https://www.youtube.com/@healthykneesforyouHealthy Knees Coach: https://healthykneescoach.com/Ride Across America Coast to Coast (Travel Journal): https://www.healthykneescoach.com/C2CListHealthy Knees News email signup (and get the “Save Your Knees” Cheatsheet!): https://www.healthykneescoach.com/save-your-knees-cheatsheetBellingham Training & Tennis Club (information about the Healthy Knees Strength & Cycle program): www.bttc.fit New Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

Imagine finding yourself in a whirlwind of chronic pain and being told by the medical world to just lose weight and follow a keto diet. Picture the emotional turmoil that comes with such advice and the relief of finally finding a medical professional who listens. This is the narrative of our guest, Kayla, a brave individual who faced chronic conditions head-on. Her journey from diagnosis, mental health struggles, the empowerment of finding the right medical team, to finally being diagnosed with Psoriatic Arthritis, is nothing short of inspiring. The resilience and determination she displayed in the face of prognosis will inspire listeners who might be in a similar situation or simply need a story of triumph against adversity.With her unique toolkit of coping strategies for managing chronic pain, Kayla offers listeners a wealth of practical tips, from the utilitarian—like ice packs and ergonomic keyboards—to the emotional—such as building a supportive network and harnessing the power of faith and social media. Kayla underlines the necessity of self-care, drawing strength from devotional readings, prayer, and inspiring individuals who candidly share their own journeys. As a writer, she brings a fresh perspective on the themes of ability and disability and how they shape one's sense of self. Join us for a tale of hope, resilience, and the power of community in the face of chronic pain. This episode promises to stir, educate, and empower.Links:Website/Blog: https://theunicornwriter.com/ Instagram: https://www.instagram.com/theunicornwriter93 Facebook: https://www.facebook.com/theunicornwriter Newsletter: https://bit.ly/theunicornwritersnewsletter Find Aivan: The One Truth on Amazon: https://amzn.to/3nFEBB5Find Metamorphosis on Amazon: https://amzn.to/3LIqoLNHope Amid the Pain devotional journal on Amazon: https://amzn.to/3SCtNkpHope Amid the Pain Facebook support group: https://www.facebook.com/groups/hopeamidthepain/ Follow Daphne Self on Instagram: https://www.instagram.com/authordaphneself New Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters

Imagine waking up to find your body in a revolt against the change in weather. Sounds crazy, right? Yet, it's a reality that we've grappled with, alongside life's unexpected roller-coaster rides and the influence of modern fashion trends. This episode is an honest, heartfelt conversation about dealing with chronic illnesses, adapting to medication, finding the right doctor, and even coping with the stress that positive changes can bring. Buckle in as we share some laugh-out-loud moments discussing the world of hats and the pressure to be stylish even when our bodies are in a flare. We've got some invaluable insights to share about the power of self-care, rest, and the underrated role of sleep in managing chronic illnesses. Most importantly, we address how to turn life's challenges into opportunities and find support during testing times. So sit back, relax and tune in for an episode filled with candid advice, laughter, and shared experiences.https://www.instagram.com/perfectlyimperfectlinnea/#New Intro 2024 2024 Thoughtful premium products for all the immune challenged.We make living with chronic illnesses easier! BeWell - Thoughtful products for those with an autoimmune disease. (wearebewell.com)Support the showWebsite: https://myspooniesisters.com/Support:https://www.etsy.com/shop/MySpoonieSisters