Empowered by Hope

Embark on a journey of hope and celebration with us, as Emily Whiting and Ashlyn Thompson unveil the grandeur of the upcoming Celebration of Hope Gala. This episode of Empowered by Hope is about painting the town with the vibrancy of giving, where every dance step taken and every bid placed at the auction is a stride toward empowering families with children facing complex medical needs. Get ready to don your Derby hats and raise your mint juleps to the cause that binds us in unity and resilience, echoing the stories of those who've found strength in the embrace of our community.It’s not just a gala; it’s a beacon of light for many, akin to the guiding mission of Charlotte's Hope Foundation, explored in detail through our heartfelt conversation. Feel the anticipation build for an evening suffused with the spirit of philanthropy, featuring live music that stirs the soul and heartfelt narratives that remind us why we gather. Whether gracing us with your presence or championing the cause from afar by joining our silent auction, your support carves pathways of hope for countless families. And when the curtain rises on this special night in Wooster, Ohio, remember the power of community and the shared promise that none of us walks this path alone.Get your tickets or donate early if you can't attend: https://go.rallyup.com/celebrationofhope/Campaign/DetailsGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

"Feeling lost in the maze of funding options for your child's needs? My proven system can help. I'll guide you through a clear, step-by-step process to identify grants and foundations that match your child's needs. Stop wasting time on dead-end searches. Gain the confidence to secure the financial support your child deserves, and free up your time to focus on what matters most."  -Abby Zacharitz, Empowered by Hope Podcast Guest Abby Zacharitz, joins us to share her heart-wrenching yet inspiring journey of hope and advocacy in today's episode of Empowered by Hope. From the depths of a near-drowning incident with her toddler son, Advocacy Abby emerged as a force of support for all parents facing the complexities of raising children with medical needs. She offers a system to help families find financial backing and emotional solace without the exhaustive searches that steal precious time.Hope can often be the strongest medicine, a theme powerfully woven through our conversation as we traverse the paths of families relentlessly pursuing treatments like hyperbaric oxygen and stem cells for their children. These aren't just treatments; they're lifelines, often unreachable through the net of traditional insurance. We spotlight the shared strength and ingenious resourcefulness of Abby's community, parents uniting under the banner of Relentless Hope to share breakthroughs across diverse diagnoses. Finally, Abby offers a beacon of guidance for parents navigating the treacherous waters of healthcare costs, and caregiving support. Her comprehensive grant coaching course delivers the tools and knowledge to secure crucial support, moving beyond the noise to address practical needs like insurance nuances and finding custom grants. It's about teaching families to fish in the vast sea of resources, empowering them with independence and clarity. We wrap up by reinforcing our commitment to the mission of Charlotte's Hope Foundation, inviting our listeners to engage, subscribe, and draw strength from stories that cement our belief in unity and the power of a community that faces challenges together, for our children.Be sure to get on the waitlist for her exciting live digital course that will be packed with tools, guides, and realistic implementation steps to help your family break through limitations that stand in the way of getting your child what they need:Advocacy AbbyUnlocking Financial Resources: Step-by-StepJoin the waitlist today to be the first notified when it's available:https://www.advocacyabby.com/#text-d07eb8b2Get Abby's FREE Workbook: 7 Key Topics: Asking Questions of Your Insurance or Medicaid: https://www.advocacyabby.com/#row-a4dac49bOther ways to connect with Advocacy Abby:Website: https://www.advocacyabby.com/#headline-0eda7099Instagram: Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

Imagine being 21 years old, newly married, in the middle of dental school and excited to start a family, then finding yourself in the NICU with your newborn for four months, completely unexpected. When life presented Leah Crum with the surprise of raising a daughter with extremely rare medical needs, she embraced it with resilience and hope. On our podcast, Leah shares her uplifting journey, revealing how she transformed her worldview to celebrate her daughter Camilla's unique milestones, rather than conform to societal expectations. Her story isn't just one of parenting through adversity but a lesson in treating oneself with the same kindness we would offer the little ones we fiercely protect.This episode is a tapestry of real emotions, strategies, and coping mechanisms that speak to any parent facing their own set of challenges. Leah's narrative takes us from the disarming moments of Camilla's early medical battles to finding joy in the everyday nuances of family life that redefine 'normal.' Her insights shed light on the power of initiating open conversations and finding strength in community support, proving that isolation can be conquered with a proactive stance and a compassionate heart.As we wrap up our heartfelt discussion, Leah & Ashlyn leave us with valuable takeaways on personal growth, childhood nostalgia, and the creative outlets that help manage anxiety—be it walking the dog or crafting bead bracelets. Her vibrant spirit is a reminder to listen to our needs and find solace in the things that bring us simple pleasures. Join us for this powerful conversation, where we celebrate the courage it takes to face the hard things and do so together, for the sake of the children we love.Please consider leaving a review if this episode resinated with you and sharing it with others so they too can feel supported and encouraged by the incredible courage and enthusiasm for life Leah shares with us. Follow Leah Crum:Instagram: https://www.instagram.com/leahcrum_/Join us at the Celebration of Hope Gala: a Derby Affair on May 4th in Wooster, OH as we gather to celebrate the undeniable impact of hope and band together to carve a better path forward for families who find themselves on the journey of rising a child with medical challenges. Tickets available now—secure your spot today! Space is limited, and we want you to be part of this extraordinary event. Individual tickets and tables are available for purchase.PS - Can't attend but still want to make a difference? You can support the cause in various ways:Make a direct donation through our event website.Share this invitation with your network, inviting them to join our movement of hope and compassion.Spread awareness by sharing our mission and podcast, Empowered by Hope, with your community.Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

Kristy Cook, the heart behind Accessible Adventures, dedicated wife and mother of four, joins us to share her family's story, illuminating the joy and beauty found in life's unexpected paths. Embracing each day with a philosophy of "I'm glad I tried it" over "I wish I had," Kristy's narrative is a beacon of positivity for parents who have yet to step outside society's assumptions of life raising a child with special needs. Take a seat at our "campfire conversation", where Kristy recounts adventures that have not only united her family but also provided healing and personal growth. From wheelchair-accessible escapades to the creation of an online community that offers a lifeline of information and support, Accessible Adventures is her family's answer to the scarcity of resources they once faced. With tales of their scenic travels and the impact on their family dynamics, listeners will discover just how transformative new environments and experiences can be for everyone involved.Navigating the emotional currents of quality-of-life decisions, Kristy offers insights into the challenges and triumphs they've faced with their son Robbie's medical treatments. She opens a window into the careful balance between preserving a child's spirit and the efficacy of medical interventions, showing how trusting parental instincts can lead to moments of pure joy. As we wrap up, we're reminded of the importance of supporting each other—just as Kristy and her husband, TJ, have done through their journey. Listen in and be inspired by the strength of a family focused on living a full life, no matter the odds.Accessible Adventures: https://accessibleadventures.net/index.html#/Instagram: https://www.instagram.com/accessible.adventures/?hl=enAccessible Adventures LinkTree: https://linktr.ee/Accessible.adventuresGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

Today's episode is a heartwarming and powerful testament to the strength of the human spirit, as we're joined by Kyla Thomson, mother to Bella of TikTok fame from the account Bella Brave. Kyla's moving narrative takes us from the deepest worries a parent can face to a horizon of hope, as she recounts the transformative effect of Bella's medical journey on their family. Amidst the laughter and tears, Kyla's story is one of a mother's fierce love and unwavering advocacy, transforming personal grief into a rallying cry for community and purpose.As we navigate the complexities of parenting a child with serious health conditions, Kyla reveals how she turned feelings of isolation into a beacon of hope for others. The Thomson family's narrative is a profound reflection on the shared experiences that bind us, whether we are laughing in the dark or finding solace in the kindness of strangers online. Kyla's shift from a life focused inward to one of empathy and connection is an inspiring call to action, highlighting the critical need for humor, support systems, and a community that understands the relentless demands of a medical odyssey.Our conversation culminates in a raw exploration of the challenges and triumphs in navigating the healthcare system, the life-saving power of trusting a parent's intuition, and the remarkable journey towards healing and resilience. Kyla's wisdom shines as she shares how therapy, including EMDR, served as a linchpin in her recovery from trauma, and reinforces the vital importance of preparedness for families embarking on similar paths. This episode promises not just insights, but a shared experience of strength, courage, and the unshakeable bond forged in the fires of adversity.If you found this episode helpful, please consider sharing so that those who need to hear Kyla's message have a better chance of receiving it. Everyone knows someone and we never know who is waiting to hear that one message that can heal their pain. Thank you!Kyla Thomson: https://linktr.ee/kylactKyla Thomson: https://linktr.ee/kylactInstagram: @kylact https://www.instagram.com/kylact/TikTok: KylaCT https://www.tiktok.com/search?q=kylact&t=1709190850795Kyla is available to be your next Keynote Speaker: https://bella-brave.com/en-usd/pages/speaking-servicesGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

When Sarah Kalis walked into the room with her son, Crew, I saw more than just a mother and her child; I saw a beacon of hope personified. Sarah, a former special education teacher turned medical mama, joins us to share the profound lessons and stories from her life with Crew, who has cerebral palsy. Her candid narration of the transformations she's undergone – from shock and grief to acceptance and advocacy – is a testament to the power of resilience amidst the unpredictable waves of parenting a child with special needs. This episode is dedicated to every parent who finds themselves on a similar journey, as we offer solidarity and comfort in knowing that even in the depths of challenge, there is community and support ready to lift you up.Navigating the often-uncharted waters of disability parenting, our conversation extends to the wider aspects of entrenched systems that impact families like ours. The frustrations with healthcare policies, the inadequacies of insurance systems, and the fight for necessary resources are all on the table as we discuss Sarah's own experiences within Illinois' challenging framework. It's not just a dialogue but a rallying cry for collective advocacy and systemic change. And amidst these heavyweight topics, we also celebrate the small victories, like achieving milestones and acquiring adaptive equipment, because joy and gratitude are just as vital to our stories as the obstacles we confront.Drawing on her background as a special education teacher, she underscores the indispensable role parents play in shaping their child's educational journey. The chapter on empowering parents in special education reveals strategies for more impactful and collaborative IEP meetings, highlighting the importance of parents' insights and strengths. We conclude with a powerful message of hope and support, reminding listeners of the monumental impact they have in their child's life. We urge families to harness their innate strength, to lean into the support network around them, and to keep moving forward on the path to accessibility and inclusion. Share this episode with someone who could use a reminder that they are not alone, and join us as we continue to support and empower each other through every challenge and triumph.Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

Discover the transformative power of Snyder's Hope Theory as it intertwines with the aspirations and resilience of children facing medical challenges. Ashlyn Thompson, joined by the compassionate child life specialist Kimberly Flood, unravels how setting realistic goals can fortify a young one's emotional landscape. Throughout our heartfelt discussions, we shed light on the delicate dance between parenting and advocating, all while fostering independence and self-esteem in our brave little warriors.Taking a deep dive into the nuances of goal-setting, we connect with families from various walks of life, learning how they tailor their approach to celebrate each small triumph. Kim Flood brings invaluable insights from her practice, Bridge to Bravery, illustrating the profound impact of play in reaching developmental milestones and the art of being your child's unwavering champion. We don't just talk about challenges; we celebrate the joyous moments that bond siblings, ensuring every family member feels cherished despite the demands of medical care. As we round off the week, I warmly invite you to lean on the strength of our shared experiences through the Charlotte Hope Foundation. Here, your stories of perseverance and hope resonate, reminding us all that we are part of a larger, supportive community. Subscribe and join us on this journey, where every parent is equipped to raise resilient children amidst adversity, and every child is encouraged to reach for the stars.Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

In Part 2,  Emily & Ashlyn examine the intricacies of Snyder's Hope Theory, revealing how it can ignite creativity and lead to innovative treatment options. We delve into the importance of seeking multiple medical opinions and building a robust support network, sharing stories that highlight the transformative journey from acceptance to active pursuit of the best care for our children.Navigating the emotional landscape of parenting a child with special needs is akin to steering a ship through stormy seas—daunting yet possible with a steadfast mindset. This episode emphasizes the power of emotions in shaping our experiences and the value of a motivated mindset in fostering personal and creative solutions for our children. By adopting positive self-talk and reframing our narratives, we uncover strategies to combat feelings of inadequacy and reinforce our agency. Our dialogue doesn't shy away from the realistic aspects of hope, ensuring we view it as a strategy for better outcomes, not a magical cure.In life's most tumultuous chapters, spirituality and faith often become the anchors that keep us grounded. We reflect on their indispensable role in providing solace and guidance, especially when faced with critical decisions regarding our children's well-being. You'll hear how faith can be a source of comfort, assuring us that we're part of a larger plan and never alone in our struggles. Remember, reaching out is a sign of strength, and Charlotte's Hope Foundation is here to extend a helping hand. By sharing our stories and connecting through this platform, we pave the way for hope and support to flourish in the lives of those who need it most.Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

In Part 1, Snyder's Hope Theory takes the spotlight, unveiling its profound impact on navigating life's hurdles, especially when it comes to  parenting children facing medical challenges.  As we dissect the elements of hope—goals, pathways, and agency—we translate them into tangible strategies for fostering resilience, both in harrowing times and the mundane stretches of everyday life.The conversation takes a turn through the festive season's joy, reflecting on the importance of family and health.  As the rhythm of routine beckons with the return of school bells, we reflect on the simple joys and trials of parenting, from the evolution of homeschooling to creating a 'comfort box' that grants Charlotte the gift of self-soothing during the night.Lastly, hope shifts from an abstract emotion to a concrete mindset, a tool for advocacy and navigating the labyrinth of life's challenges. We dissect the pragmatic side of hope, illuminating how it can bring solace and solutions to the daunting journey of raising a child with medical needs. By sharing our experiences and the comforting echo of community support, this episode is an invitation to a sanctuary of shared stories and encouragement. So tune in, and let's walk together on this path of empowered growth and relentless hope.Additional Resource:"Snyder Hope Theory" by Society Supports Alliance - this is not our video: https://youtu.be/zTVVaVIE9yw?si=LXWUftTbHYVhIFo1Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

Navigating the unpredictable journey of parenting a child with medical challenges can feel like sailing in uncharted waters. But imagine finding a constellation of hope that guides you through the darkest nights. That's the essence of our latest conversation, where we share intimate experiences of hospital holidays, the strength it takes to smile in the face of adversity, and the infectious joy of celebrating every small victory. Our stories, including sweet Christmas anecdotes, will warm your heart and remind us all of the resilience that defines families like ours.The festive season often paints pictures of joy and togetherness, but for many of us, it comes with its own set of challenges. In the tender retelling of Emily's daughter Charlotte's NICU journey during Christmas, we uncover the serene moments amidst the chaos, allowing for a deep reflection on what truly matters. We also extend our narrative to celebrate the excitement and hope of the New Year, even as we deal with unforeseen health scares and the constant adaptation required to keep our little ones safe and happy. These stories aren't just ours; they resonate with anyone whose love for their child is the beacon that shines through the toughest storms.This episode doesn't just recount past experiences; it's a clarion call to join hands as we forge a supportive community for parents on similar paths. We're catapulting into 2024 with an open invitation for you to help shape our new program—created to honor milestones, foster connections, and be a non-judgmental space where laughter, tears, and encouragement flow freely. We're more than just voices in your ear; we're fellow travelers on this profound journey, and together, we're building a lighthouse to guide us all to shore. Join us, share your story, and be part of a community where every parent is equipped, capable, and never alone.Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

Bridging the gap between children's fear and understanding of medical procedures is no small task. That's where our guest, Kim Flood, a child life specialist from Columbus, Ohio, steps in. Kim has been an invaluable beacon of hope in Emily's journey, helping Charlotte find confidence and coping skills that work for her. She transforms the cold, sterile hospital environment into a safe space where honesty, play, and resilience take center stage. Listen in as we share our personal experiences and discuss the transformative power of child life specialists in pediatric care.Navigating the medical world can be daunting for both children and parents alike. From coping with pain and traumatic procedures to advocating for a child's needs, the challenges can be overwhelming. But Kim, armed with years of experience in multiple departments such as organ transplant floors and burn units , shows us the importance of fostering emotional well-being and maintaining a positive association with the medical environment. In our candid conversation, we explore the value of psychosocial support, the necessity and power of a coping plan, and the significance of letting children witness healthy expressions of emotions. Finishing off our discussion, we touch upon the magic of celebrating small victories and the significance of community and support in parenting. We delve into the impact of Kim's private practice, Bridge to Bravery, designed to navigate children and families through medical needs in their own home. Our conversation underscores the importance of community and the power of resilience in the face of adversity. This podcast is more than just a storytelling platform; it's a resource filled with practical advice, shared experiences, and hope. About Kim Flood: Kim Flood is a Certified Child Life Specialist. She has her MS in child development with a child life specialization.  Kim is passionate about her work with children and teenagers.  She is a mom of 3 kids. Since becoming a parent she has truly valued her child life skills when it comes to preparing kids for challenges in life.   She would be honored to work with your family to help facilitate positive coping skills.  Once certain conversational skills are mastered, she is certain your family will no longer need her expertise as you’ll have the skills to manage it on your own.Bridge to Bravery: Bridge to Bravery offers child life services through home visiting, phone consults, and also video consulting. Bridge to Bravery BlogClick here to learn more about Child Life Specialists from Association of Child Life Professionals.Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

This is a rerun of an episode from earlier this summer. Ashlyn & Emily will be back next week with a new episode. Happy Thanksgiving to everyone, we are grateful for everyone of you!Imagine the shock of hearing a cancer diagnosis for your small child, an innocent soul you would die to protect, only to realize that dying won't change the prognosis. If that's not hard enough to imagine, add on top of that the shocking discovery that your infant is also facing their own unique medical complexities while still undergoing chemo with your toddler. That's the harsh reality our guest, Lori Szabo, and her husband, Ron, had to face. As a very experienced parent to children with complex medical needs, Lori takes us through her unexpected journey, from the initial diagnosis to the daily challenges and joys that come with raising her unique family. She offers invaluable insights into parenting a child with severe illness, yet living life beyond the medical, emphasizing the importance of unity and resilience within the family.From snorkeling with whale sharks in the Philippines to a hilarious encounter with spicy Indian food in Kuala Lumpur, Lori has filled her family's life with rich travel experiences. She is a passionate explorer, constantly seeking to learn about different cultures. As a mother of four biological children, an adopted child, and a host to an exchange student who joined the family, Lori's love for children knows no bounds. She shares these heartwarming adventures and her family's commitment to maintain a sense of normalcy, despite the medical needs of her children.Life may not always be a serene sail across calm waters, but Lori reminds us that there is always hope and beauty in the chaos. Balancing the needs of a sick child with the needs of other siblings can be a daunting task. However, she provides insightful strategies on how to handle the emotional dynamics of such situations. She also offers a helpful look into the process of transitioning from parent advocate to support mom as children become young adults. As we end this enriching conversation, we would like to remind you that whatever emotional storm you may be weathering, remember, you are not alone. Together, we can navigate through life's turbulent currents. So, tune in, reach out, and let's walk this journey together.Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

This is a rerun of a past episode that Ashlyn & Emily want more people to listen to because it is loaded with invaluable knowledge and support for parents expecting a child with medical needs. We will be back with new episodes after Thanksgiving!Navigating the complexities of parenthood is a challenge in itself, but what happens when you add the hurdles of medical needs into the mix? Emily had the privilege of having a heart-to-heart talk with our guest, Elaine Bishop, a seasoned care coordinator and certified nurse midwife, who has been our guiding light through the fog of the shock from the anomalies found in Charlotte at 20 weeks pregnant. Elaine's story of resilience and hope gives comfort and inspiration to all parents paddling through the same waters.Healthcare for children is a labyrinth, especially when they can't voice their needs. Elaine has turned this challenge into her life's work, advocating for children's health from the womb to the world. Our conversation delves into the tough realities of medical treatments, the heartache of seeing your child in pain, and the triumph of standing as their voice. We also unpack the power of parental instinct - it's the unquestionable partner in your child's care team. Make no mistake, you have the right to question, understand and insist on informed consent with any medical treatment.As the saying goes, joy and sorrow are inseparable. Elaine's wisdom shows us that the silver lining in this clouded journey is the ability to trust your instincts, adjust your expectations, and continue finding joy amidst the heartache. How do we steer through unexpected pregnancy challenges? How do we set goals for our children's healthcare? How do we advocate with trust? Tune in for this inspiring conversation, and let's navigate parenthood with hope and resilience, together.Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

Have you ever wondered how it feels to care for a child with complex medical needs? We've got the insider scoop for you, direct from the heart of a parent in the thick of it, battling insurance bureaucracy, juggling career advancements, and dealing with unexpected family health scares that life seems to throw as curveballs. Personal, relatable, and raw - our talk is an open book that peels back layers of fear, guilt, and the innate human capacity to endure and adapt.In this episode, we tackle the all-too-familiar financial fears that go hand-in-hand with managing medical complexities. We share first-hand experiences about balancing medical costs, insurance, and maintaining a semblance of normalcy in family life. It's not all doom and gloom, though. We discuss resources and strategies that have been our lifeline, including the importance of accepting help and nurturing open communication within our relationships.Finally, we delve into the emotional labyrinth of parenting a child with medical complexities. Expect conversations about fostering empathy in our children, discussing feelings of isolation and loneliness, and reminding ourselves that it's okay not to have all the answers. After all, we are all capable of more than we often give ourselves credit for. Join us for an episode that is as empowering as it is empathetic, brimming with hope for every parent navigating medical complexities. Tune in for a dose of courage, resilience, and unwavering love.Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

Have you ever thought about how trauma could be impacting your journey as a parent or caregiver? Be prepared to journey with me, Ashlyn, and my own therapist, Chelsea Cassel, as we break down this intricate subject. We aim to arm you with the basic knowledge necessary to recognize & understand trauma, its emotional and physical toll, and how to navigate parenting and caregiving while on your own healing path.Throughout the episode, we explore the importance of processing trauma. We dig deep into the brain's response to trauma, with Chelsea explaining how our "lizard brain" can be overwhelmed. We delve into how trauma manifests differently in men and women, touching on reactions like guilt, anger, survivor's guilt, and lack of self-belief. We also discuss the profound power of externalizing our thoughts and feelings, either through speaking or writing, as a practical way to process trauma even if professional help isn't immediately available or a viable option for your circumstances.In the final part of our discussion, we drive home the transformative power of understanding, acknowledging, and processing trauma. We explore how this can liberate us, allowing us to move beyond our past, without letting it define us or our children. We urge you to never minimise your trauma or compare it to others, but instead, fully recognise its impact on your life. We also highlight the crucial role that seeking professional help can play in navigating the healing journey. So join us on this transformative conversation, and let's journey together towards healing and freedom from the chains of trauma.Guest Bio: CHELSEA CASSEL, MA, LMFTAChelsea received her Master’s degree in Marriage and Family Therapy from Indiana Wesleyan University and completed her Bachelor of Science in Psychology at Indiana State University. She is familiar with a variety of therapeutic approaches and techniques that can assist with her clients getting to the source of the problems they are currently struggling with. Chelsea has experience working with a wide range of clientele such as individuals, children, adolescents, couples, infidelity, families, LGBTQ, veterans, grief, addictions and trauma. She has also worked with numerous cognitive and emotional issues such as depression, anxiety, negative self-esteem and much more. When working with couples, Chelsea’s main goal is to explore ways where the couple can get back to what made them fall in love in the first place. She wants to assist the couple in finding a stronger emotional connection and a healthier way to communicateChelsea considers herself a compassionate, empathetic and non-judgmental therapist who always has her clients’ best interest in mind. Therapy is a safe place in which Chelsea will assist you in exploring the past, creating peace in the present and feeling hope for the future. In her spare time Chelsea enjoys traveling, watching movies and spending time with friends and family.Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

Welcome to our intimate chat about the tumultuous yet enlightening journey to acceptance when parenting special needs children. We, Ashlyn Thompson and Emily Whiting, invite you to join us as we navigate the ebbs and flows of acceptance, a state that we revisit on a regular basis, supercharged with hard-earned wisdom and grace. Listen to our personal tales of the trials and triumphs that have peppered the landscape of our own journeys to acceptance, time and time again.This episode has us candidly discussing the unique challenges and joys we encounter as parents to children with special needs. We share how redefining "normal" and seeking support from even our pets, such as Ashlyn's new puppy Letty, can provide comfort during testing times. We also delve into "mastering" the art of being your child's primary caregiver, while simultaneously grieving the dream you thought parenting would look like.  As we venture further, we touch upon the importance of letting go of unrealistic expectations, the power of advocacy, and the significance of self-care, for both ourselves and our families.Our conversation concludes on a hopeful note, underscoring the gifts of acceptance—the miraculous ability to love our children for who they are while finding joy amidst the chaos through our evolved perspective. We reflect on our personal journeys, the struggle to come to terms with our children's medical conditions, and the importance of maintaining a hopeful outlook even during challenging times. Embark on this journey with us to find understanding, comfort, and hopefully a sense of camaraderie. Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon today: https://www.amazon.com/She-Charlotte-Emotional-Spiritual-Complexities/dp/1735401994/ref=sr_1_1?crid=3B8LVR7E5PLSH&keywords=she+is+charlotte&qid=1697506854&sprefix=she+is+charlotte%2Caps%2C152&sr=8-1Subscribe to the Empowered by Hope podcast to receive alerts about new episodes and exciting updates from Charlotte’s Hope Foundation: https://charlotteshopefoundation.org/Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

Do you ever find yourself wanting to ask your child's doctor(s) more questions, but find yourself holding back?  Today is all about arming you with strategies to take control of medical decisions for your child. We share how we confidently question our daughters' medical providers and expand on the importance of questioning  in our role as advocates. You'll learn how to push past  "white coat syndrome," weigh risks and benefits of treatments, and learn the value of hitting pause so you aren't rushed into a decision before you are ready. We highlight the importance of considering the impact of these decisions on your entire family and emphasize the necessity of choice in selecting your child's medical team. It's no secret both Emily and Ashlyn are big supporters of seeking multiple opinions when possible! So press play, prepare to be empowered by hope, and together, we'll navigate these challenging waters.Get your copy of She is Charlotte: A Mother's Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon today: https://www.amazon.com/She-Charlotte-Emotional-Spiritual-Complexities/dp/1735401994/ref=sr_1_1?crid=3B8LVR7E5PLSH&keywords=she+is+charlotte&qid=1697506854&sprefix=she+is+charlotte%2Caps%2C152&sr=8-1Subscribe to the Empowered by Hope podcast to receive email updates about new episodes and exciting updates from Charlotte's Hope Foundation (scroll down to see where you submit your information): https://charlotteshopefoundation.org/Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

There is so much joy to be had in the midst of the chaos. That is the key takeaway as Emily K. Whiting shares a month in the life of pediatric complex care for her daughter Charlotte. As Emily recounts the last month's wild journey of outpatient appointments, ER visits, infections, unidentified excruciating pain episodes, fevers, DME orders, IVs, catheters, blood draws, ultrasounds, x-rays, prescription refills, side effect management and even a vacation snuck in there somehow, you'll get a sneak peak into the constant barrage of medical management for a child with complex needs. As Emily shares the sometimes overwhelming amount of issues that arise in Charlotte's care, she coaches listeners on how to find the joy in the midst of the chaos. In this episode you'll learn how to focus on a mindset that allows for reality and emotion, while also holding onto the positive aspects of the situation. Many listeners will relate to Emily's 'month in the life' because your life looks very similar. If you're looking for relatability and some help with your mindset about your life of pediatric medical complexities, this episode is for you! Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

On today’s episode, Ashlyn takes the reins while Emily navigates 12 big appointments for Charlotte crammed into 4 days. While Emily is greatly missed, this episode was so much fun to record with our 3 guests, DMI Experts & owners of Beelievability: Allie Watkins, OD OTR and Maggie Pisano, PT, DPT, along with their trusty therapy assistant, yellow lab Thistle.The dynamic between Allie & Maggie is full of so much positive energy and passion, you can’t help but instantly be drawn to them and love their hearts for children with medical complexities.The main goal is to introduce you to the groundbreaking therapy technique, Dynamic Movement Intervention (DMI). DMI is disrupting outdated views on therapy and the belief system that children will only achieve as much as their diagnosis says is possible.Charlotte’s Hope Foundation and BeelievAbility share the belief that it should be up to the child to tell us what they can do and not let others such as geneticists, doctors, even other families navigating the same diagnosis, place limitations on them. DMI is all about embracing that thought process and supporting each child while challenging them to reach their highest potential. As Allie and Maggie say, “The first step is Beelieving.”Allie & Maggie go on to explain the history of DMI and the core principles that make it so different from traditional occupational and physical therapy. They describe what an intensive session entails and why they often lead to many breakthroughs at a faster pace than traditional therapy. You will hear the helpful ways they guide parents to accept and embrace appropriate goals that are the best thing for their child at that time and how to celebrate every small win like they won the lottery.With DMI being so new to the therapy field, many families travel across state lines seeking Allie and Maggie’s expertise. You can also view the resources below to learn how to find a certified DMI practitioner in your state. While DMI intensives are not yet covered by insurance, there are opportunities for grants that can be found by searching the web.If you haven’t hit play yet, don’t wait another second – you are going to love this episode and walk away feeling invigorated and full of hope for the future of complex medical care for our children! Please help us share this podcast with as many people as possible so we can spread the hope.BeelievAbility is an outpatient pediatric clinic founded by co-owners, Allie (Occupational Therapist) and Maggie (Physical Therapist). We offer intensive therapy utilizing dynamic movement intervention (DMI) as a main treatment tool. Our mission is to greatly improve a child’s quality of life and empower families in a safe and caring environment. Our goal is to never give up on a child’s potential and to help guide them to reaching their greatest abilities. The first step is Beelieving.Socials: @beelievability instagram/facebook/tik tokwebsite: www.beelievability.comThe foundation we areGet your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc

Have you found yourself in the grasp of complete overwhelm & despair at least once (or maybe hundreds) since receiving the shock of your child's medical challenge(s)? Does it feel impossible to find joy and acceptance in the midst of chaos and heartbreak? Join us, as we candidly share our personal journeys to acceptance, full of ups and downs, and the many surprising gifts we never could have imagined. Personal experiences, reflections, and lessons learned are laid bare, offering insights that are not only enlightening but also inspiring. Our discussion touches on the importance of acceptance, advocacy, balancing expectations, and how adapting to new roles and realities can be REALLY hard . Hear our stories of how we have come to embrace acceptance, redefining norms, and the power of letting go of perfection. Our hope is to help you understand that acceptance is not just about coping, but it's about transforming our perspectives and growing in the process. We share how the beauty of acceptance has allowed us to understand our children's needs better and become more assertive in medical situations.Lastly, we explore the freedom of embracing imperfection and letting our children explore life. Balancing parental support and a child's independence is crucial, and we talk about how acceptance plays a significant role in this. We underscore the importance of being kind to ourselves and having a strong support network. On this journey, celebrating our children's strengths and seeking support when needed becomes an important aspect of acceptance. So, join us on this enlightening journey of acceptance, transformation, and finding joy even in the most challenging situations.Additional resources:For more information on acceptance, we recommend looking into  Nobody’s Perfect: Living and Growing with Children Who Have Special Needs by author, Dr. Nancy Miller.Parent to Parent USA: Our mission is to support a national network of Parent to Parent programs to ensure access to quality emotional support for families of individuals with disabilities and/or special health care needs.https://www.p2pusa.org/Get your copy of She is Charlotte: A Mother’s Physical, Emotional, and Spiritual Journey with Her Child with Medical Complexities by Emily K Whiting on Amazon To get more personal support, connect with us directly at: CharlottesHopeFoundation.org Email: Contact@CharlottesHopeFoundation.orgFacebook: Charlotte's Hope FoundationInstagram: CharlottesHopeFoundationInc