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© 2024 BrainStorm by UsAgainstAlzheimer's
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BrainStorm, a podcast series by UsAgainstAlzheimer’s, features conversations with doctors, researchers, authors and luminaries, people living with dementia and their caregivers. We’ll delve into what matters most to you about your brain and ask questions about keeping your memory sharp and maintaining optimal brain health. Learn about the latest in the science of longevity, Alzheimer’s and cognitive disease research. We’ll look at disparities in diseases, and equity and access for all. New episodes, hosted by Meryl Comer, are available first and third Tuesdays of every month. Join Us!
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COVID-19 has heavily impacted communities of color, making health inequities even worse. This BrainStorm webcast is the second in a series on health equity challenges created by COVID-19 in the dementia community and beyond. Our host, Meryl Comer, talks with an expert panel of research organizations about what they are doing to prioritize health equity in their COVID-19 research programs and why diversity matters in brain health research. We also share our latest A-LIST survey results on the pandemic's effects on the Alzheimer's community. Our guests include Gerren Wilson of Genentech; Phyllis Ferrell of Eli Lilly; Dr. Jaime Perales of Kansas University’s Alzheimer’s Disease Center; Kevin Kimble of the Southern Christian Leadership Conference; and Jason Resendez of our LatinosAgainstAlzheimer’s Coalition. We also talk one-on-one with caregiver-advocate Daisy Duarte and former U.S. Surgeon General Dr. David Satcher.Support the show (https://www.usagainstalzheimers.org)
COVID-19 is affecting all communities but is taking a particularly heavy toll among communities of color, just like Alzheimer's does. This Alzheimer's Talks kicks off a two-part series exploring the health equity challenges presented by COVID-19 in the dementia community and beyond. We invited an expert panel to discuss the virus’ effects on family caregivers of color and what social service providers and health systems are doing to support seniors in this challenging time. We also shared a few highlights from our latest A-LIST survey results on the COVID-19 pandemic's impact on the Alzheimer's community. Our panel included mental health researcher Iris Aguilar, MSPA, of the University of Southern California’s Roybal Institute on Aging; research nurse and educator Angela Allen, PhD, of Banner Health and Arizona State University, a former board member of the National Black Nurses Association; and medical director Lauren Barial, MD, of naviHealth. Host Meryl Comer also spoke one-on-one with caregiver-advocate and author Loretta Veney and former U.S. Surgeon General Dr. David Satcher.Support for the COVID Insight Series and this Alzheimer's Talks is provided by educational grants from the Eisai USA Foundation, naviHealth and Biogen. Support the show (https://www.usagainstalzheimers.org)
Note: Our apologies for the audio issues upfront -- its clears up after a few seconds.So much in our lives is uncertain now: the way we work, shop, interact, and try to stay healthy. For Americans of all ages, brain health should be a priority now, just as in normal times.This marks our first BrainStorm webcast! BrainStorm is a new UsAgainstAlzheimer’s series that features conversations with brain health experts on the science of keeping your brain healthy, early detection and intervention in Alzheimer’s, and working toward brain health equity regardless of sex, race or ethnicity. In this inaugural episode, University of Texas researcher Dr. Sandra Chapman talks with host Meryl Comer about the impact of stress and anxiety, the science of cognitive training, and the promising future of taking charge of your brain.Watch for BrainStorm every other month and, in the alternating months, Alzheimer’s Talks, which features discussions of groundbreaking research and its importance to those living with Alzheimer’s and their caregivers.Support the show (https://www.usagainstalzheimers.org)
While caring for someone with Alzheimer’s is challenging at any time, the COVID-19 pandemic and stay-at-home orders may make those challenges exponentially greater.In this Alzheimer’s Talks, we share findings from two recent survey of our A-LIST community, made up of Alzheimer’s caregivers and those at increased Alzheimer’s risk. We asked how they are coping during the COVID-19 pandemic and about their stress levels and concerns during this time. Our host Meryl Comer talks with two mental health experts about the findings. They shared coping suggestions for those with a loved one with Alzheimer's at home or in a nursing facility in this very difficult time. Joining Meryl is Dr. Dale Atkins, an author, psychologist and regular guest on NBC's Today Show. Also joining us is Dr. Barry Jacobs, an author, clinical psychologist and healthcare consultant who writes a caregiving blog for AARP.This Alzheimer’s Talk is generously supported by the Eisai USA Foundation. Support the show (https://www.usagainstalzheimers.org)
How are community-level organizations helping our health system to improve its capabilities to care for those with dementia in diverse communities? What resources are available to support them in this goal? This informational webinar highlights regional efforts to promote dementia-capable communities with a focus on under-represented and under-resourced populations. Our panelists discuss projects supported by the federal Administration for Community Living (ACL), to promote dementia capability through innovative models like community health workers. Our guest speakers include Erin Long of ACL; Petra Niles, who leads African American services, education and dementia care networks for Alzheimer's Los Angeles; and Constantina Mizis, president and CEO of the Latino Alzheimer's & Memory Disorders Alliance. Jason Resendez, executive director of our LatinosAgainstAlzheimer's network, moderates the discussion.Support the show (https://www.usagainstalzheimers.org)
A Featured Conversation from UsAgainstAlzheimer's 2019 National Alzheimer's SummitThe fight against Alzheimer's, frontotemporal degeneration, and other dementias is driven by the stories of those on the front lines—people living with the disease and their care partners. "A priest, a marine, a journalist and a millennial walk into a bar ..." Four diverse advocates offer a glimpse into their lives, connected by a common mission to stop this disease. At times funny and surprising, but powerful throughout, this conversation reveals how and why these advocates share their personal stories: to disrupt the status quo, shatter stigma, improve brain health, educate physicians, speed research and improve the lives of others facing this disease now and in the future.Alzheimer's Talks host Meryl Comer—Alzheimer's care partner, Founding Board Member of UsAgainstAlzheimer's, and Chair of the Global Alliance on Women's Brain Health—moderates this discussion with:The Very Rev. Tracey Lind, retired Episcopal minister and city planner, living with frontotemporal degenerationAndrés Martin, U.S. Marine with the Jalisco genetic mutation linked to early-onset Alzheimer’sConor O’Brien, millennial care partner, son of Greg O’BrienGreg O'Brien, journalist, award-winning author, UsAgainstAlzheimer's Board Member, living with Alzheimer’sSupport the show (https://www.usagainstalzheimers.org)
This special Alzheimer’s Talks is presented by Sunrise Senior Living.Our guest speaker, Grace Whiting, President and CEO of the National Alliance for Caregiving, shares insights on resources and proposals to bring better systems and supports to family caregivers. Our guest moderator is Jill Lesser, an UsAgainstAlzheimer’s board member and President of our WomenAgainstAlzheimer’s network.They discuss the changing face of caregiving and legislative measures underway to support caregivers, including the CHANGE (Concentrating on High Value Alzheimer’s Needs to Get to an End) Act. The CHANGE Act is bipartisan legislation that would encourage timely and accurate assessment, detection and diagnosis of Alzheimer’s; foster innovative approaches to support family caregivers; and remove regulatory barriers to disease-modifying treatments. Support the show (https://www.usagainstalzheimers.org)
How does music benefit the brain? An opera star & a scientist discuss.In this special Alzheimer’s Talks we hear from world-renowned soprano Renee Fleming, one of the most acclaimed singers of our time. Joining her to discuss music and the mind was Dr. Marie Bernard, deputy director of the National Institute on Aging (NIA) at the National Institutes of Health and NIA’s top geriatrician.Our host Meryl Comer spoke with Ms. Fleming about her ongoing advocacy and educational efforts around music and the mind. Inspired by the Kennedy Center’s Sound Health initiative, Ms. Fleming created Music and the Mind, which explores the power of music as it relates to health and the brain, including music therapy and cognitive neuroscience. We will hear from Dr. Bernard on our current understanding of the neurological effects of music on those living with Alzheimer’s or other dementias, and opportunities to enhance that knowledge.Support the show (https://www.usagainstalzheimers.org)
Current treatments for Alzheimer's disease have only minimal and temporary benefits. While the search for more effective Alzheimer’s treatments has seen many disappointments in recent years, the pipeline of drugs in development is far from empty.ResearchersAgainstAlzheimer’s released its 2019 state-of-the pipeline report, and the findings give cause for optimism. A broader range of ideas is being considered to fight the disease, including three new pathways to attack Alzheimer’s that have emerged in the past year alone. In addition, drugs that target amyloid – historically one of the most popular targets of potential Alzheimer’s drugs – have increased 30% since 2017, showing continued interest in the amyloid pathway. And, researchers believe an effective Alzheimer’s treatment may lie in a “cocktail”—a combination of drugs that target various pathways to treat the disease. Finally, the first wave of Alzheimer's prevention trials is well underway - with results available in coming years.Alzheimer's Talks host Meryl Comer speaks with one of the nation’s leading Alzheimer’s disease researchers, Dr. R. Scott Turner, director of the Georgetown University Memory Disorders Program, about the current Alzheimer's drug pipeline and related questions of diagnosis and prevention methods.Support the show (https://www.usagainstalzheimers.org)
Research is showing us how we can protect our brain health and reduce our risk of Alzheimer’s later in life—through exercise, healthy eating, getting enough sleep, managing medical risks (like high blood pressure), and staying mentally and socially engaged.Women particularly are hit hard by Alzheimer’s, as two-thirds of those with the disease and two-thirds of those caring for loved ones with Alzheimer’s. If we can help women “Be Brain Powerful,” we change the face of the disease.Susan Spencer, editor-in-chief of Woman’s Day magazine, joined host Meryl Comer to talk about brain health: what we can do to preserve it and why women especially should take note. Susan and Woman’s Day are partners in our Be Brain Powerful™ campaign to help women (and men) learn how to protect their brain health.Support the show (https://www.usagainstalzheimers.org)
To help our brain span match our lifespan, we need a focus on brain health. Increasingly, research shows ways to prevent or reverse mild cognitive impairment and improve brain health. If we each do more to keep our brain healthy, with our doctor’s help, we will be better prepared as individuals and as a healthcare system to fight cognitive decline.Our host Meryl Comer will sit down with healthcare/aging expert Anne Tumlinson. She has authored recommendations for building a system of brain health care, including a yearly brain health check-up.Support the show (https://www.usagainstalzheimers.org)
Are we thinking about Alzheimer’s the wrong way? Best-selling author Dr. Mark Hyman believes we should shift from seeking a single disease path or drug—to a more dynamic framework that considers the many factors that may contribute to Alzheimer’s and then tailoring therapy to the individual. In this Alzheimer’s Talks, host Meryl Comer speaks with Dr. Hyman, of the UltraWellness Center and Cleveland Clinic, about his field (Functional Medicine) and its innovative approaches to Alzheimer’s and dementia. They also discuss a new report, from our ResearchersAgainstAlzheimer’s network, analyzing the science behind lifestyle changes that seem to delay, slow or reduce risk for Alzheimer’s--and take lots of listener questions. Support the show (https://www.usagainstalzheimers.org)
While Alzheimer's disease is most common among people aged 65 and older, research from AARP and UsAgainstAlzheimer's finds its effects are being felt more and more by young people. Our chief of staff and executive director of our LatinosAgainstAlzheimer's network, Jason Resendez, spoke with young people who are shaping the Alzheimer's movement through advocacy, research and storytelling: Veronica Segovia of AARP; Andres Martin, millennial Alzheimer's caregiver and advocate; Nihal Satyadev of the Youth Movement Against Alzheimer's; and Brooks Kenny of our WomenAgainstAlzheimer's network. Brain Health ChallengeWe also talked about ways to "Be Brain Powerful" by taking the UsAgainstAlzheimer's 30-day Brain Health Challenge.We want young people to Be Brain Powerful. That's why UsAgainstAlzheimer's launched the Brain Health Challenge to give young people something they can do every day to take charge of their brain health. We've taken the six pillars of brain health from the Cleveland Clinic, plus one of our own--Make an Impact--to ensure that young people have things they can do to take care of their brains and take actions that will have a social impact for families touched by Alzheimer's.Support the show (https://www.usagainstalzheimers.org)
While Alzheimer's disease is most common among people aged 65 and older, research from AARP and UsAgainstAlzheimer's finds its effects are being felt more and more by young people. Our chief of staff and executive director of our LatinosAgainstAlzheimer's network, Jason Resendez, spoke with young people who are shaping the Alzheimer's movement through advocacy, research and storytelling: Veronica Segovia of AARP; Andres Martin, millennial Alzheimer's caregiver and advocate; Nihal Satyadev of the Youth Movement Against Alzheimer's; and Brooks Kenny of our WomenAgainstAlzheimer's network. Brain Health ChallengeWe also talked about ways to "Be Brain Powerful" by taking the UsAgainstAlzheimer's 30-day Brain Health Challenge.We want young people to Be Brain Powerful. That's why UsAgainstAlzheimer's launched the Brain Health Challenge to give young people something they can do every day to take charge of their brain health. We've taken the six pillars of brain health from the Cleveland Clinic, plus one of our own--Make an Impact--to ensure that young people have things they can do to take care of their brains and take actions that will have a social impact for families touched by Alzheimer's.
![[AlzTalks-Archive] What Matters Most in an Alzheimer's Treatment? Dr. Brett Hauber](https://storage.buzzsprout.com/variants/suBJmfYtQaAVat4g6CZ7Bytm/60854458c4d1acdf4e1c2f79c4137142d85d78e379bdafbd69bd34c85f5819ad?.jpg "[AlzTalks-Archive] What Matters Most in an Alzheimer's Treatment? Dr. Brett Hauber")
Does research into new Alzheimer's treatments reflect what matters most to those living with the disease and their care partners? When new drugs become available, will they address the symptoms and make the changes in people’s lives that are most important to them? Researcher Brett Hauber of RTI Health Solutions discusses the new What Matters Most Study. UsAgainstAlzheimer’s and its partners are launching this study to learn what matters most to those living with Alzheimer’s, so that insights from those with Alzheimer's and their care partners are considered as drugs are developed, approved, and brought into patient’s lives.Support the show (https://www.usagainstalzheimers.org)
![[AlzTalks-Archive] Alzheimer's, Depression & Anxiety - Dr. Jennifer Gatchel](https://storage.buzzsprout.com/variants/v48PG9CZaTJqQLnP16JFnTce/60854458c4d1acdf4e1c2f79c4137142d85d78e379bdafbd69bd34c85f5819ad?.jpg "[AlzTalks-Archive] Alzheimer's, Depression & Anxiety - Dr. Jennifer Gatchel")
Are depression and anxiety risk factors for Alzheimer’s – or is it the other way around? The better we understand the link between psychiatric symptoms and dementia, the more we can improve brain health. Harvard/Massachusetts General's Dr. Jennifer Gatchel discusses her groundbreaking research into the links between depression, anxiety and Alzheimer’s. Support the show (https://www.usagainstalzheimers.org)
![[AlzTalks-Archive] Can Texting Boost Alzheimer's Knowledge in Diverse Communities? Dr. Karen Lincoln](https://s3.castbox.fm/c2/a2/0a/4838828e2213b1c76654f3e803564d0078_scaled_v1_400.jpg "[AlzTalks-Archive] Can Texting Boost Alzheimer's Knowledge in Diverse Communities? Dr. Karen Lincoln")
How can texting help fight Alzheimer's? Brainworks, led by Dr. Karen Lincoln, is the first study of its kind, using daily, tailored texting to boost knowledge about Alzheimer’s and to change views toward clinical trials among African-Americans. Stephanie Monroe, Executive Director, AfricanAmericansAgainstAlzheimer's, talks with Karen Lincoln, PhD, Director, Hartford Center of Excellence in Geriatric Social Work; Associate Professor, School of Social Work; and Founder, Advocates for African American Elders, University of Southern California.Support the show (https://www.usagainstalzheimers.org)
![[AlzTalks-Archive] Demystifying Alzheimer's Clinical Trials - Dr. Reisa Sperling, Nate O'Keefe, Geri & Jim Taylor](https://storage.buzzsprout.com/variants/1f3E6kpuBdeipnDCXPAUiH1R/60854458c4d1acdf4e1c2f79c4137142d85d78e379bdafbd69bd34c85f5819ad?.jpg "[AlzTalks-Archive] Demystifying Alzheimer's Clinical Trials - Dr. Reisa Sperling, Nate O'Keefe, Geri & Jim Taylor")
How can I find out about Alzheimer's clinical trials and whether I qualify? What is it like to be in a trial? Hear from a Harvard Alzheimer's researcher, two clinical trial participants, and a decision-tool developer on these and other questions.Support the show (https://www.usagainstalzheimers.org)
1What if a blood test or other simple exam could one day detect Alzheimer’s? Scientists are in pursuit of ways to test for Alzheimer’s by measuring a biomarker—a substance in the body that may indicate or rule out the presence of a disease. This could make Alzheimer’s diagnosis more common in the future, so doctors might be able to intervene before symptoms appear. Where do we stand on developing such a test, and what might the implications be for those who take it?In this Alzheimer’s Talks, we heard more about these questions. Scott Lewis, Director, Alzheimer’s Disease Diagnostic Pathway at Biogen, works with a range of stakeholders to understand and address the current and future challenges associated with the screening and detecting Alzheimer’s disease. He described techniques used today to diagnose Alzheimer’s and what we might expect in the future. Melissa Bianchi is an expert in patient protections at the law firm Hogan Lovells. She discussed how families might prepare for receiving a biomarker confirmation of Alzheimer’s in the early stages of the disease.Support the show (https://www.usagainstalzheimers.org)
Research has linked head injury and a variety of mental health conditions to a higher risk of Alzheimer’s and dementia. Given veterans’ exposure to traumatic brain injury, PTSD, blast-induced neurotrauma, successive concussion syndrome, and depression, what do they and their families need to know about Alzheimer’s? And what’s currently done to help the nearly 50% of our veterans age 65 or older, who face an even greater risk of Alzheimer’s?With Veterans Day approaching, two experts from the U.S. Department of Veterans Affairs (VA) joined us. Dr. Tom Edes oversees Geriatrics & Extended Care Operations, for VA Clinical Operations. Dr. Alex Chiu leads VA’s portfolio of Alzheimer’s disease research.Dr. Edes discussed how VA is addressing this looming crisis and some of the resources that VA offers to veterans who are facing this disease. Dr. Chiu shared on overview of current and recent VA research into Alzheimer’s as it affects our nation’s veterans. This health crisis is affecting our veterans at an alarming rate, when they have already given so much in service to our country. Support the show (https://www.usagainstalzheimers.org)
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