Epilepsy Sparks Insights

Generalised epilepsy is often described as involving the whole brain at once. But does it start all at once? Dr. Frederic Schaper discusses research mapping subtle brain abnormalities to shared brain networks in generalised epilepsy, and how these networks overlap with targets used for deep brain stimulation. The conversation explores what this may reveal about seizure mechanisms and future neuromodulation research. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en    🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/generalised-epilepsy-network-dbs    🌐 More about Frederic 👇🏻 https://www.epilepsysparks.com/guests/frederic-schaper    📃 Paper "A generalized epilepsy network derived from brain abnormalities and deep brain stimulation" 👇🏻 https://www.nature.com/articles/s41467-025-57392-7   👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights   🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤   Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​

Psychiatric symptoms are common in the epilepsies, yet they are often overlooked in clinical care. Dr. Andres M. Kanner, epileptologist and Professor of Clinical Neurology at the University of Miami, explains why mental health symptoms are central to epilepsy outcomes - not peripheral! Topics include depression, anxiety, psychosis, ADHD, suicide risk, family psychiatric history, and how these factors influence antiseizure medication choices and quality of life. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en    🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/mental-health-epilepsy    🌐 More about Andres 👇🏻 https://www.epilepsysparks.com/guests/andres-miguel-kanner    👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights   🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤   Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​

Flash-back to our most popular episode*! Epileptologist & neurologist Dr. Ángel Aledo-Serrano talks of his review and opinion on a former paper regarding the antiseizure medication Levetiracetam/Keppra, its effectiveness in controlling seizures, but also the importance of precision medicine. He also speaks of the need to improve prescribing and avoid polypharmacy for people with an epilepsy, the need for further qualitative research into treatment and care, and convincing clinicians that epilepsy is far more than seizures alone. This episode is sponsored by EASEE® by  This episode is sponsored by EASEE® by Precisis GmbH, who had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en   🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/keppra-levetiracetam-quality-of-life    🌐 More about Ángel 👇🏻 https://www.epilepsysparks.com/guests/angel-aledo-serrano    👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights   🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤   Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​     *2023

Who should receive genetic testing in epilepsy, and how should results really be interpreted? Epileptologist and scientist Dr. Christian Bosselmann explores genome sequencing, diagnostic yield, variants of uncertain significance, and why results are rarely black and white. The discussion highlights how quickly things are changing in epilepsy genetics and how re-analysis and improved interpretation can meaningfully influence clinical decision-making. This episode is sponsored by EASEE® by Precisis GmbH, who had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en   🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/genetic-testing-variant-interpretation   🌐 More about Christian 👇🏻 https://www.epilepsysparks.com/guests/christian-bosselmann   👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights   🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤   Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​   ​

Who is already using generative AI in health care, and what does the evidence actually show? Researcher Charlotte Blease, PhD, examines the positives, patient and clinician uptake, emerging risks, and where major gaps in training, policy, and research remain. The discussion explores mental health use, long-term conditions, empathy, and why regulation is struggling to keep pace with real-world practice. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en   🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/ai-in-healthcare-evidence    🌐 More about Charlotte 👇🏻 https://www.epilepsysparks.com/guests/charlotte-blease    👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights   🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider!   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​

Accelerated brain ageing is a key feature of epilepsy that cannot be explained by seizures alone. Drawing on longitudinal imaging and biomarker research, Dr. Marian Galovic discusses neurodegeneration beyond seizure activity and the clinical importance of early intervention. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en   🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/neurodegeneration-brain-ageing   🌐 More about Marian 👇🏻 www.epilepsysparks.com/guests/marian-galovic   👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights   🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider!   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​

Seizures are often the focus in childhood epilepsies, but they certainly are not the only symptoms affecting outcomes and quality of life. This episode with Prof. Kette Valente looks at the non-seizure features that matter personally and clinically, why they can be missed, and why identifying them early can change care and long-term impact. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights//seizures-not-only-problem 🌐 More about Kette 👇🏻 https://www.epilepsysparks.com/guests/kette-valente 👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com 🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social ​

Routine EEG provides a brief snapshot of brain activity and may not capture seizures or epileptiform activity. In this conversation, neurologist Prof. Norman Delanty explains how extended and implantable EEG monitoring can improve assessment of seizure burden, support treatment decisions, and clarify diagnosis and management when short recordings are insufficient. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en    🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/long-term-eeg-monitoring   🌐 More about Norman 👇🏻 https://www.epilepsysparks.com/guests/norman-delanty    📃 Related paper 👇🏻 "Unilateral ultra long-term subcutaneous EEG monitoring in drug-refractory idiopathic generalized epilepsy" https://onlinelibrary.wiley.com/doi/10.1111/epi.18644   👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights   🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider!   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks  Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

In part two of this conversation, Dr. Ching Soong Khoo discusses practical approaches to managing obesity in epilepsy, including exercise safety, diet, and multidisciplinary care. The episode highlights why weight and physical health are often overlooked in routine practice, and how simple clinical changes can support better quality of life and overall outcomes in people with an epilepsy.   🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/obesity-quality-of-life    🌐 More about Ching Soong 👇🏻 https://www.epilepsysparks.com/guests/ching-soong-khoo   📜 Related publications - “High prevalence of obesity and reduced physical activity among people with epilepsy: A single-centre cross-sectional study” https://www.sciencedirect.com/science/article/pii/S1525505025004755 - “Epilepsy, seizures, physical exercise, and sports: A report from the ILAE Task Force on Sports and Epilepsy” https://pubmed.ncbi.nlm.nih.gov/26662920 - “Stop stigma, start exercising: How clinicians can encourage people with epilepsy to engage in physical activity” https://www.ilae.org/journals/epigraph/epigraph-vol-25-issue-1-winter-2023/stop-stigma-start-exercising-how-clinicians-can-encourage-people-with-epilepsy-to-engage-in-physical-activity   👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights   🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider!   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks  Bluesky https://bsky.app/profile/epilepsysparks.bsky.social

Why is obesity so common in people with epilepsy - and why is it often overlooked in clinical care? Dr. Ching Soong Khoo shares new research findings on obesity prevalence, physical activity, and mobility, and discusses how fear, diet, and behaviour intersect with epilepsy management. The episode highlights why addressing weight alongside seizure control matters for long-term health and quality of life.   🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/obesity-health-fitness    🌐 More about Ching Soong 👇🏻 https://www.epilepsysparks.com/guests/ching-soong-khoo   📜 Related publications - “High prevalence of obesity and reduced physical activity among people with epilepsy: A single-centre cross-sectional study” https://www.sciencedirect.com/science/article/pii/S1525505025004755 - “Epilepsy, seizures, physical exercise, and sports: A report from the ILAE Task Force on Sports and Epilepsy” https://pubmed.ncbi.nlm.nih.gov/26662920 - “Stop stigma, start exercising: How clinicians can encourage people with epilepsy to engage in physical activity” https://www.ilae.org/journals/epigraph/epigraph-vol-25-issue-1-winter-2023/stop-stigma-start-exercising-how-clinicians-can-encourage-people-with-epilepsy-to-engage-in-physical-activity   👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights   🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider!   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks 

The updated seizure terminology aims to make life easier for everyone both affected by focal seizures and those involved in epilepsy care. In this episode, Prof. Sándor Beniczky breaks down why "consciousness" is now the key term used to describe focal seizures, and how it imporves clarity, consistency, and global usability - benefiting those with with an epilepsy, carers, GPs/physicians, nurses, and specialists alike. We discuss… why focal "awareness” has been retired what "consciousness" means during a seizure the difference between responsiveness and recall why the number of seizure types has been reduced how the update strengthens communication at all levels of care what these changes mean for real clinical practise how shared language supports better decision-making 🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/focal-consciousness-seizures-explained   🌐 More about Sándor 👇🏻 https://www.torierobinson.com/guests/sandor-beniczky   📖 Paper spoken of 👇🏻 https://onlinelibrary.wiley.com/doi/10.1111/epi.18338   👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights   🎬 Watch the Epilepsy Sparks Insights podcast on YouTube 👇🏻 https://www.youtube.com/@EpilepsySparksInsights    🔗 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks  

Prof. Nicola Specchio shares insights into how regional and global collaboration can strengthen epilepsy care, highlighting the need for coordinated systems, improved pathways and fairer access to expertise. The episode also examines the impact of emerging scientific developments and how shared standards across countries could support better long-term outcomes for people living with an epilepsy. We discuss: • Diagnostic delays and treatment access • Priorities for ILAE Europe • Cross-border collaboration • Networks for rare epilepsies • Precision medicine and biomarkers • Neuroimaging developments • Earlier intervention and improved outcomes Check out: 🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/global-epilepsy-care-challenges-opportunities    🌐 More about Nicola 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights-guests-/nicola-specichio     👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com    🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights    🎧 Watch the Epilepsy Sparks Insights podcast on YouTube 👇🏻 https://www.youtube.com/@EpilepsySparksInsights    📲 Join us on social media! LinkedIn https://www.linkedin.com/company/epilepsy-sparks  Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  Instagram https://www.instagram.com/epilepsysparks  Facebook https://www.facebook.com/epilepsysparks   TikTok https://www.tiktok.com/@epilepsysparks 

The epilepsies are a complex neurological disease, and patients, families, and clinicians all deserve clear, empowering information! Torie Robinson sits down with nurse, writer Cheryl Tveit and paediatric neurologist/epileptologist writer Dr. Charbel El Kosseifi. from Gillette Children’s Hospital to discuss their new Mac Keith Press book: “Epilepsy”. They explain how they simplified the science for everyone, highlighting crucial topics often ignored in clinic-like morbidities, driving, and the vital need for reassurance. An empowering publication!   We discuss: How the new Gillette Children's Hospital & Mac Keith Press book makes complex epilepsy science accessible for everyone The importance of plain language - not patronising, just clear The book's value for med students, residents, and practicing physicians Quality of life beyond seizures - school, work, relationships & mental health Cognition, anxiety, and other common comorbidities Writing with empathy and the voice of families Why collaboration between patients, clinicians, and educators matters   🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/epilepsy-book-full-life-guide   👤👤 More about Cheryl & Charbel 👇🏻 Cheryl https://www.torierobinson.com/guests/cheryl-tveit Charbel https://www.torierobinson.com/guests/charbel-el-kosseifi   📘 Get the book "Epilepsy" (Mac Keith Press) with 20% off 👇🏻 https://www.mackeith.co.uk/book/epilepsy - code: epilepsysparks20   👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights   🎧 Watch the video-podcast 👇🏻 https://youtu.be/bHhtMfNxErw    📒 Glossary 👇🏻 https://www.epilepsysparks.com/glossary  

This chat delves into the intricate relationship between the blood-brain barrier and epilepsy - particularly temporal lobe epilepsy! Claire, Chris, and Torie highlight the dysfunction of the blood-brain barrier in people with an epilepsy, the role of imaging techniques in assessing this dysfunction, and the outcomes of surgical interventions. Excitingly, Claire and Chris also explore future research directions aimed at targeting the blood-brain barrier to improve treatment outcomes! 🌐 More about the episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/claire-behan-chris-greene-blood-brain-barrier-temporal-lobe-epilepsy-neurosurgery    🌐 More about Claire https://www.torierobinson.com/guests/claire-behan    🌐 More about Chris https://www.torierobinson.com/guests/chris-greene    👕 Check out our cool merch 👇🏻 https://epilepsy-sparks.creator-spring.com    🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights      🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com      🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary   📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks  - TikTok https://www.tiktok.com/@epilepsysparks

Around 20–30% of people with an epilepsy don’t respond well to anti-seizure medications - so what happens next? Dr. Ricardo Morcos (UCLH) joins host Torie Robinson to explain the epilepsy surgery journey: how people are assessed, what tests are involved, and how teams make decisions together. We discuss: The “tube map”(!) that helps explain this complex process Why surgery isn’t talked about enough Common myths & fears What to expect from surgery & recovery How neuromodulation, new medications & trials also fit in This empowering conversation is for anyone affected by the epilepsies - patients, carers, and clinicians alike! Check out:  🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-morcos-epilepsy-surgery-journey  🌐 More about Ricardo 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ricardo-morcos  👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com  🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights  🎞️ Watch the Epilepsy Sparks Insights podcast on YouTube 👇🏻 https://youtu.be/QzIoLlRG1Lw    📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks  - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  - Instagram https://www.instagram.com/epilepsysparks  - Facebook https://www.facebook.com/epilepsysparks   - TikTok https://www.tiktok.com/@epilepsysparks   

We discuss: Why epilepsy is up to four times more common in prison populations The role of traumatic brain injuries, substance use & mental health Barriers to accessing epilepsy specialists behind bars Misuse, mistiming, & under-optimisation of anti-seizure medications The continued use of rectal diazepam and lack of rescue treatment awareness Increased SUDEP risks for people with epilepsy in prisons How NICE guidelines should be improving care - but often aren’t What needs to change to ensure prisoners get the epilepsy care they are entitled to   🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/karen-mcleod-uk-prisons   More about Karen McLeod 👇🏻 https://www.torierobinson.com/guests/karen-mcleod   👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights   🎥 Watch the video 👇🏻 https://youtu.be/2yKOxliR1pY   🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary 👇🏻 https://www.epilepsysparks.com/glossary   📲 Connect with us Website https://www.epilepsysparks.com LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks

The ILAE Academy is changing how clinicians and researchers learn about the epilepsies! Prof. Gagandeep Singh, Chair of the ILAE Education Council, joins Torie to explain how this innovative, self-paced, and structured platform is helping to shape the next generation of epilepsy specialists! We discuss: What the ILAE Academy is and who it’s for How it keeps up with new discoveries Why accessibility and affordability matter The future of interactive, AI-based learning 🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/gagandeep-singh-ilae-academy    🤩 More about Gagandeep 👇🏻 https://www.torierobinson.com/guests/gagandeep-singh    🎓 The ILAE Academy https://ilae-academy.totaratalent.com    👕 Join the Epilepsy Sparks community with our merch 👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights    🎞️ Watch episode on YouTube 👇🏻 https://youtu.be/PrYZyKrb4Ec    🔤  Learn key terms related to the epilepsies and neuroscience here 👇🏻 https://www.epilepsysparks.com/glossary    📲 Connect with us! 👇🏻 Website https://www.epilepsysparks.com  LinkedIn https://www.linkedin.com/company/epilepsy-sparks  Bluesky https://bsky.app/profile/epilepsysparks.bsky.social  Instagram https://www.instagram.com/epilepsysparks  Facebook https://www.facebook.com/epilepsysparks  TikTok https://www.tiktok.com/@epilepsysparks 

How much do carers really contribute to epilepsy care, & why are their struggles so often invisible? 💜 Dr. Florien Boele, a researcher in psychosocial oncology & caregiving, talks about the essential but often overlooked role of unpaid carers for adults with epilepsy. Florien talks with Torie about: Who carers are The staggering £184 billion value that carers add to the UK economy The personal costs of caregiving - sleep, stress, health, finances & relationships Why epilepsy research rarely includes carers (compared with other diseases) The importance of measuring carer outcomes through core outcome sets Florien’s study to define what truly matters most to carers 👉🏻 Tune in to hear how research is beginning to highlight carers’ voices & why supporting them means supporting people with epilepsy too.   🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/florien-boele-quality-of-life-carers-epilepsy   🤩 More about Florien 👇🏻 Dr. Florien Boele | Family caregiving, quality of life, & the epilepsies — Torie Robinson   👕 Join the Epilepsy Sparks community with our merch!👇🏻 https://epilepsy-sparks.creator-spring.com   🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights   🎧 Watch episode on YouTube 👇🏻 https://youtu.be/7F7N3TvnMjM    🔤 Learn key terms related to the epilepsies and neuroscience here 👇🏻 https://www.epilepsysparks.com/glossary    📲 Connect with us! 👇🏻 Website https://www.epilepsysparks.com LinkedIn https://www.linkedin.com/company/epilepsy-sparks Bluesky https://bsky.app/profile/epilepsysparks.bsky.social Instagram https://www.instagram.com/epilepsysparks Facebook https://www.facebook.com/epilepsysparks TikTok https://www.tiktok.com/@epilepsysparks