Carers in Epilepsy: Quality of Life, Hidden Costs & Research - Dr. Florien Boele
Description
How much do carers really contribute to epilepsy care, & why are their struggles so often invisible? š
Dr. Florien Boele, a researcher in psychosocial oncology & caregiving, talks about the essential but often overlooked role of unpaid carers for adults with epilepsy.
Florien talks with Torie about:
- Who carers are
- The staggering Ā£184 billion value that carers add to the UK economy
- The personal costs of caregiving - sleep, stress, health, finances & relationships
- Why epilepsy research rarely includes carers (compared with other diseases)
- The importance of measuring carer outcomes through core outcome sets
- Florienās study to define what truly matters most to carers
šš» Tune in to hear how research is beginning to highlight carersā voices & why supporting them means supporting people with epilepsy too.
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š More about episode šš»
https://www.torierobinson.com/epilepsy-sparks-insights/florien-boele-quality-of-life-carers-epilepsy
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š¤© More about Florien šš»
Dr. Florien Boele | Family caregiving, quality of life, & the epilepsies ā Torie Robinson
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https://youtu.be/7F7N3TvnMjMĀ
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