DiscoverEpilepsy Sparks InsightsRare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl
Rare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl

Rare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl

Update: 2025-09-18
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In this second episode with Dr Phillip Pearl, we explore the human side of rare epilepsies: what drives him as a paediatric neurologist, how advocacy transforms progress, and why research in ultra-rare conditions can change the lives of people with common disorders. We also tackle difficult but vital topics - SUDEP, depression, and suicide in epilepsy - and end on a hopeful note with music and the brain!


 


🌐 More about Phillip 👇🏻


https://www.torierobinson.com/epilepsy-sparks-insights/phillip-pearl-rare-epilepsies-sudep-neurology-journey  


 


👕 Check out our cool merch 👇🏻


https://epilepsy-sparks.creator-spring.com 


 


🌐 More Epilepsy Sparks Insights 👇🏻


https://www.torierobinson.com/epilepsy-sparks-insights 


 


🎧 Watch the chat on YouTube 👇🏻


https://youtu.be/scBYPashBAs 


 


📖 Chapters


00:00 – Intro


00:56 – Meet Dr Phillip Pearl


01:17 – What keeps you going, as a paediatric neurologist


03:19 – Choosing paediatric neurology


05:06 – Falling in love with neurology


06:25 – Future of metabolic epilepsies


07:30 – Gene therapy breakthroughs


09:44 – SUDEP & risk awareness


11:18 – Depression, mortality, & suicide in epilepsy


11:55 – The intersection of music and epilepsy


12:28 – Conclusion & thanks


 


🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 


 


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Rare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl

Rare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl

Torie Robinson